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Hellström, Ingrid
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Publikasjoner (10 av 45) Visa alla publikasjoner
Lasrado, R., Bielsten, T., Hann, M., Davies, L., Schumm, J., Reilly, S., . . . Hellström, I. (2018). Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower): Protocol for a Nonrandomized Feasibility Trial. JMIR Research Protocols, 7(8), Article ID e171.
Åpne denne publikasjonen i ny fane eller vindu >>Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower): Protocol for a Nonrandomized Feasibility Trial
Vise andre…
2018 (engelsk)Inngår i: JMIR Research Protocols, ISSN 1929-0748, E-ISSN 1929-0748, Vol. 7, nr 8, artikkel-id e171Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.

sted, utgiver, år, opplag, sider
JMIR Publications, 2018
Emneord
couple management guide; dementia; dementia intervention; dementia self-help
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-156007 (URN)10.2196/resprot.9087 (DOI)30097423 (PubMedID)
Tilgjengelig fra: 2019-04-01 Laget: 2019-04-01 Sist oppdatert: 2019-08-23
Harding, A. J. E., Morbey, H., Ahmed, F., Opdebeeck, C., Wang, Y.-Y., Williamson, P., . . . Reilly, S. (2018). Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions. Trials, 19, Article ID 247.
Åpne denne publikasjonen i ny fane eller vindu >>Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions
Vise andre…
2018 (engelsk)Inngår i: Trials, ISSN 1745-6215, E-ISSN 1745-6215, Vol. 19, artikkel-id 247Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Background: The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people living at home with dementia. Methods/design: Drawing on the guidance and approaches of the Core Outcome Measures in Effectiveness Trials (COMET), this study uses a four-phase mixed-methods design: 1 Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. 2 Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. 3 A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. 4 A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. Discussion: To the best of our knowledge, this study is the first to use a modified Delphi process to involve people living with dementia as a participant group. Though the study is confined to collecting data in the United Kingdom, use of the COS by researchers will enhance the comparability of studies evaluating non-pharmacological and community-based interventions.

sted, utgiver, år, opplag, sider
BIOMED CENTRAL LTD, 2018
Emneord
Core outcome set; Dementia; Non-pharmacological interventions; Community-based programmes; Neighbourhood; Delphi method; Public involvement
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-147928 (URN)10.1186/s13063-018-2584-9 (DOI)000431359600001 ()29690920 (PubMedID)
Merknad

Funding Agencies|ESRC; NIHR

Tilgjengelig fra: 2018-05-23 Laget: 2018-05-23 Sist oppdatert: 2019-08-23
Odzakovic, E., Hellström, I., Ward, R. & Kullberg, A. (2018). 'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.. Dementia, Article ID 1471301218817453.
Åpne denne publikasjonen i ny fane eller vindu >>'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.
2018 (engelsk)Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, artikkel-id 1471301218817453Artikkel i tidsskrift (Fagfellevurdert) Epub ahead of print
Abstract [en]

This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish field site of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method. Four themes were revealed from these interviews: life narratives embedded within neighbourhood; the support of selfhood and wellbeing through movement; the neighbourhood as an immediate social context; and restorative connections to nature. These themes were distilled into the 'essence' of what neighbourhood meant for the people we interviewed: A walkable area of subjective significance and social opportunity in which to move freely and feel rejuvenated. We have found that the neighbourhood for community-dwelling people with dementia holds a sense of attachment and offers the potential for freedom of movement. Our research indicates that a dementia diagnosis doesn't necessarily reduce this freedom of movement. The implications for practice and policy are considered: future research should explore and pay closer attention to the diverse living conditions of people living with dementia, and not least the particular challenges faced by people living alone with dementia.

Emneord
community-dwelling, dementia, interpretative phenomenology, lived experiences, neighbourhood, walking interviews
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-153897 (URN)10.1177/1471301218817453 (DOI)30541394 (PubMedID)
Tilgjengelig fra: 2019-01-18 Laget: 2019-01-18 Sist oppdatert: 2019-08-23
Hedman, R., Hellström, I., Ternestedt, B.-M., Hansebo, G. & Norberg, A. (2018). Sense of Self in Alzheimers Research Participants. Clinical Nursing Research, 27(2), 191-212
Åpne denne publikasjonen i ny fane eller vindu >>Sense of Self in Alzheimers Research Participants
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2018 (engelsk)Inngår i: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 27, nr 2, s. 191-212Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The sense of self is vulnerable in people with Alzheimers disease (AD), and might be positively and negatively influenced by research participation. The purpose of this study was to describe how people with AD express their experience of being a research participant with respect to their sense of self. Interviews and support group conversations involving 13 people with mild and moderate AD were analyzed using qualitative content analysis. Three themes were constructed: contributing to an important cause, gaining from participating, and experiencing risks and drawbacks. Participants described contributing to research as being in line with their lifelong values and lifestyles. They expressed contentment and pride about being research participants, emphasized their positive relationships with the researchers, and described participation as a meaningful activity. When research procedures threatened their sense of self, they were able to reason about risks and decline participation.

sted, utgiver, år, opplag, sider
SAGE PUBLICATIONS INC, 2018
Emneord
Alzheimers disease; research participation; self; support group
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-145122 (URN)10.1177/1054773816672671 (DOI)000423586200005 ()29374986 (PubMedID)
Merknad

Funding Agencies|Oscar and Maria Ekman Foundation; Ersta Diakoni; Dementia Association-The National Association for the Rights of the Demented; Swedish Order of St. John; Erling-Persson Family Foundation

Tilgjengelig fra: 2018-02-19 Laget: 2018-02-19 Sist oppdatert: 2019-08-23
Österlind, J., Ternestedt, B.-M., Hansebo, G. & Hellström, I. (2017). Feeling lonely in an unfamiliar place: older peoples experiences of life close to death in a nursing home. International Journal of Older People Nursing, 12(1), Article ID e12129.
Åpne denne publikasjonen i ny fane eller vindu >>Feeling lonely in an unfamiliar place: older peoples experiences of life close to death in a nursing home
2017 (engelsk)Inngår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 12, nr 1, artikkel-id e12129Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The aim of the study was to deepen the understanding of how older persons living in a nursing home experience life close to death.

sted, utgiver, år, opplag, sider
John Wiley & Sons, 2017
Emneord
end-of-life care; nursing home care; older people; palliative care; transition
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-145579 (URN)10.1111/opn.12129 (DOI)000405747300008 ()27624362 (PubMedID)
Tilgjengelig fra: 2018-03-20 Laget: 2018-03-20 Sist oppdatert: 2018-03-20
Hellström, I. & Hydén, L.-C. (Eds.). (2016). Att leva med demens (1ed.). Malmö: Gleerups Utbildning AB
Åpne denne publikasjonen i ny fane eller vindu >>Att leva med demens
2016 (svensk)Collection/Antologi (Annet vitenskapelig)
Abstract [sv]

För att personer med demenssjukdom ska kunna leva ett fullgott liv behövs mer kunskap. I grunden handlar det om att förändra föreställningar och attityder till personer som lever med en demenssjukdom så att personerna själva, deras anhöriga och personal inom hälso- och sjukvården och politiker, kan se nya möjligheter i stället för enbart förluster. I den här boken presenteras kunskap och forskning som sätter personer med demenssjukdom i centrum. Boken utgår alltså inte i första hand från vården eller anhöriga, utan från dem som lever med sjukdomen. På så sätt skapas en tankeram som ger stöd vid både utvecklingsarbete och reflektion bland människor som på olika sätt arbetar med och för personer med demenssjukdom.

Cirka 110 000 och 170 000 svenskar har i dag en demenssjukdom. Om ett tiotal år är det betydligt fler: ökad livslängd och en större medvetenhet om demenssjukdomar gör att allt fler personer får en diagnos tidigt i förloppet. Som en konsekvens av detta kommer alltfler personer att leva med en demenssjukdom under lång tid, och ofta i hemmet. Detta innebär inte bara en utmaning för vård, omsorg och socialpolitik, utan väcker också frågor som berör såväl personer med demens, som anhöriga och andra i det sociala nätverket: Hur kan personer med demens leva och fungera i sitt hem tillsammans med eventuella familjemedlemmar? Hur kan de fungera som medborgare och delta i samhällslivet, ha makt över sitt eget vardagsliv och fatta egna beslut om sitt eget liv?

I boken medverkar forskare från Centrum för demensforskning (CEDER) vid Linköpings universitet. Den innehåller många pedagogiska exempel och riktar sig till utbildningar inom vård, omvårdnad, socialt arbete och omsorg.

sted, utgiver, år, opplag, sider
Malmö: Gleerups Utbildning AB, 2016. s. 240 Opplag: 1
Emneord
Dementia, Cognition disorders, Demenssjuka, Demens, Hjärnsjukdomar
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-123704 (URN)9789140691651 (ISBN)
Tilgjengelig fra: 2016-01-08 Laget: 2016-01-08 Sist oppdatert: 2018-01-10bibliografisk kontrollert
Nilsson, E. & Hellström, I. (2016). Demens och identitet i relationer (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 71-77). Malmö: Gleerups Utbildning AB
Åpne denne publikasjonen i ny fane eller vindu >>Demens och identitet i relationer
2016 (svensk)Inngår i: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, s. 71-77Kapittel i bok, del av antologi (Annet vitenskapelig)
sted, utgiver, år, opplag, sider
Malmö: Gleerups Utbildning AB, 2016 Opplag: 1
Emneord
Demenssjuka, Demens
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-126087 (URN)978-91-4069-165-1 (ISBN)
Tilgjengelig fra: 2016-03-14 Laget: 2016-03-14 Sist oppdatert: 2016-04-04bibliografisk kontrollert
Bielsten, T. & Hellström, I. (2016). Den bortglömda kroppen (1ed.). In: Ingrid Hellström & Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 97-103). Malmö: Gleerups Utbildning AB
Åpne denne publikasjonen i ny fane eller vindu >>Den bortglömda kroppen
2016 (svensk)Inngår i: Att leva med demens / [ed] Ingrid Hellström & Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, s. 97-103Kapittel i bok, del av antologi (Annet vitenskapelig)
sted, utgiver, år, opplag, sider
Malmö: Gleerups Utbildning AB, 2016 Opplag: 1
Emneord
Demenssjuka, Demens
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-126081 (URN)978-91-4069-165-1 (ISBN)
Tilgjengelig fra: 2016-03-14 Laget: 2016-03-14 Sist oppdatert: 2016-08-23
Hedman, R., Hansebo, G., Ternestedt, B.-M., Hellström, I. & Norberg, A. (2016). Expressed Sense of Self by People With Alzheimers Disease in a Support Group Interpreted in Terms of Agency and Communion. Journal of Applied Gerontology, 35(4), 421-443
Åpne denne publikasjonen i ny fane eller vindu >>Expressed Sense of Self by People With Alzheimers Disease in a Support Group Interpreted in Terms of Agency and Communion
Vise andre…
2016 (engelsk)Inngår i: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523, Vol. 35, nr 4, s. 421-443Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The self is constructed in cooperation with other people and social context influences how people perceive and express it. People with Alzheimers disease (AD) often receive insufficient support in constructing their preferred selves, but little is known about how they express themselves together with other people with AD. In accordance with Harres social constructionist theory of self, this study aimed to describe how five people with mild and moderate AD express their Self 2 (i.e., their personal attributes and life histories) in a support group with a facilitator experienced in communicating with people with AD. The participants expressions of their Self 2 were analyzed with qualitative abductive content analysis and interpreted in terms of agency and communion and a lack of agency and communion. The findings highlight the importance of supporting a sense of agency and communion when assisting people with AD in constructing their self.

sted, utgiver, år, opplag, sider
SAGE PUBLICATIONS INC, 2016
Emneord
self; Alzheimers disease; agency; communion; support group
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-126798 (URN)10.1177/0733464814530804 (DOI)000371695800004 ()24776791 (PubMedID)
Merknad

Funding Agencies|Oscar and Maria Ekman Foundation; Ersta Diakoni; Dementia Association-The National Association for the Rights of the Demented; Swedish Order of St. John; Erling-Persson Family Foundation

Tilgjengelig fra: 2016-04-07 Laget: 2016-04-05 Sist oppdatert: 2017-04-21
Ekdahl, A. W., Odzakovic, E. & Hellström, I. (2016). LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY. The Journal of Nutrition, Health & Aging, 20(3), 275-279
Åpne denne publikasjonen i ny fane eller vindu >>LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY
2016 (engelsk)Inngår i: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 20, nr 3, s. 275-279Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Objectives: To investigate the correlation between MMSE <= 23 and the presence of a diagnosis of dementia in the medical record in a population with multimorbidity. Design, setting, and participants: This cross-sectional study was part of the Ambulatory Geriatric Assessment - a Frailty Intervention Trial (AGe-FIT; N = 382). Participants were community dwelling, aged >= 75 years, had received inpatient hospital care at least three times during the past 12 months, and had three or more concomitant diagnoses according to the International Classification of Diseases, 10th revision. Measurements: The Mini Mental State Examination (MMSE) was administered at baseline. Medical records of participants with MMSE scores < 24 were examined for the presence of dementia diagnoses and two years ahead. Results: Fifty-three (16%) of 337 participants with a measure of MMSE had a MMSE scores < 24. Six of these 53 (11%) participants had diagnoses of dementia (vascular dementia, n = 4; unspecified dementia, n = 1; Alzheimers disease, n = 1) according to medical records; 89% did not. Conclusions: A MMSE-score < 24 is not well correlated to a diagnosis of dementia in the medical record in a population of elderly with multimorbidity. This could imply that cognitive decline and the diagnosis of dementia remain undetected in older people with multimorbidity. Proactive care of older people with multimorbidity should focus on cognitive decline to detect cognitive impairment and to provide necessary help and support to this very vulnerable group.

sted, utgiver, år, opplag, sider
SPRINGER FRANCE, 2016
Emneord
Multimorbidity; cognitive decline; dementia; under-diagnosis
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-128973 (URN)10.1007/s12603-015-0580-2 (DOI)000374701800006 ()26892576 (PubMedID)
Tilgjengelig fra: 2016-06-09 Laget: 2016-06-07 Sist oppdatert: 2017-11-30
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