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Ahlberg, M., Hollman Frisman, G., Berterö, C. & Ågren, S. (2020). Family Health Conversations create awareness of family functioning.. Nursing in Critical Care (2), 102-108
Open this publication in new window or tab >>Family Health Conversations create awareness of family functioning.
2020 (English)In: Nursing in Critical Care, ISSN 1362-1017, E-ISSN 1478-5153, no 2, p. 102-108Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The whole family is affected if one family member is critically ill. The Family Health Conversation Intervention may give the family tools that support healthier family functioning.

AIMS AND OBJECTIVES: The aim of this study was to identify which components of family function are affected when families participate in Family Health Conversations.

DESIGN: A secondary analysis was performed of existing qualitative interviews. The Family Health Conversation is an intervention where nurses ask the family reflective questions, and reflection is made possible in three conversation sessions.

METHODS: This study included transcribed data from 13 follow-up interviews from seven families attending Family Health Conversations after three and 12 months. Data were analysed with narrative analysis, focusing on family function.

RESULTS: Three themes were identified. The families' family functioning had been supported with: improved understanding of each other-there was an understanding of being in the same situation but still having totally different experiences; more concern for each other-they talked about their different experiences and felt they had become closer to each other; and a process of working through-they had experienced working through various experiences, standing by and supporting, and then being able to move on.

CONCLUSIONS: The Family Health Conversation Intervention is provided to families, accompanied by nurses. The families in this study gained an awareness of their family function that brought the family closer because of improved understanding of each other and the situation. The families experienced openness, and the family members spoke more freely with each other, which facilitated the progress of working through the experience of critical illness and helped to maintain healthy family functioning.

RELEVANCE TO CLINICAL PRACTICE: It is important to have an overall perspective and to recognize the patient and the family as equally important within the family for awareness of family function.

Keywords
family members, family nursing, intensive care, narrativism, secondary analysis
National Category
Clinical Medicine
Identifiers
urn:nbn:se:liu:diva-157714 (URN)10.1111/nicc.12454 (DOI)000516973500006 ()31197904 (PubMedID)
Note

Funding agencies: Health Research Council in the South-East of Sweden [FORSS 466311]; Department of Anaesthesiology and Intensive Care, and Department of Medical and Health Sciences, Linkoping University, Norrkoping, Sweden

Available from: 2019-06-19 Created: 2019-06-19 Last updated: 2020-03-19
Back, C. & Berterö, C. (2019). Interpretativ fenomenologisk analys (3ed.). In: Andreas Fejes, Robert Thornberg (Ed.), Handbok i kvalitativ analys: (pp. 165-178). Stockholm: Liber, Sidorna 165-178
Open this publication in new window or tab >>Interpretativ fenomenologisk analys
2019 (Swedish)In: Handbok i kvalitativ analys / [ed] Andreas Fejes, Robert Thornberg, Stockholm: Liber, 2019, 3, Vol. Sidorna 165-178, p. 165-178Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Liber, 2019 Edition: 3
Keywords
Fenomenologi
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-162279 (URN)9789147129706 (ISBN)
Available from: 2019-11-26 Created: 2019-11-26 Last updated: 2019-11-26Bibliographically approved
Drott, J., Fomichov, V., Starkhammar, H., Börjeson, S., Kjellgren, K. I. & Berterö, C. (2019). Oxaliplatin-Induced Neurotoxic Side Effects and Their Impact on Daily Activities. Cancer Nursing, 42(6), E40-E48
Open this publication in new window or tab >>Oxaliplatin-Induced Neurotoxic Side Effects and Their Impact on Daily Activities
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2019 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 42, no 6, p. E40-E48Article in journal (Refereed) Published
Abstract [en]

Background: Oxaliplatin (OXA) is frequently used in the treatment of patients with colorectal cancer, and OXA-induced neurotoxic side effects are common. Reports on real-time patient-reported neurotoxic side effects and impact on the patient's daily activities are sparse in existing studies. Objective: The aim of this study was to identify and assess patient-reported OXA-induced neurotoxic side effects and their impact on the patient's daily activities, during and after chemotherapy. Methods: In a multicenter prospective longitudinal study, 46 chemo-naïve patients with colorectal cancer treated with postoperative adjuvant OXA-based chemotherapy were monitored during treatment and at 3-, 6-, 9-, and 12-month follow-ups. Patients were recruited from September 2013 to June 2016. In total, 370 Oxaliplatin-Associated Neurotoxicity Questionnaire responses were available for analysis. A mobile phone-based system was used to receive real-time assessments. Results: All patients reported neurotoxic side effects and impact on daily activities during treatment. The side effects changed in character and body location over time and had an impact on the daily activities. Conclusions: The high prevalence of OXA-induced neurotoxic side effects significantly interfered with the patients' daily activities. We found significant differences between baseline data and follow-up time points for neurotoxicity, and the patients had not returned to baseline after 1 year. Implications for Practice: The real-time assessment using mobile phone technology seems to be a valuable tool for monitoring patient-reported neurotoxicity and interventions for tailored care. Effectively identifying neurotoxicity and its impact on the patient's daily activities is important in supportive cancer care.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2019
Keywords
Cancer nursing; Chemotherapy; Colorectal cancer; Daily activities, mHealth; Neurotoxicity; Patient-reported outcomes; Symptom control
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-154883 (URN)10.1097/ncc.0000000000000674 (DOI)000494795400005 ()
Note

Funding agencies: Swedish Cancer SocietySwedish Cancer Society; Linkoping University

Available from: 2019-03-04 Created: 2019-03-04 Last updated: 2019-11-27
Grundström, H., Gerdle, B., Alehagen, S., Berterö, C., Arendt-Nielsen, L. & Kjölhede, P. (2019). Reduced pain thresholds and signs of sensitization in women with persistent pelvic pain and suspected endometriosis. Acta Obstetricia et Gynecologica Scandinavica, 98(3), 327-336
Open this publication in new window or tab >>Reduced pain thresholds and signs of sensitization in women with persistent pelvic pain and suspected endometriosis
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2019 (English)In: Acta Obstetricia et Gynecologica Scandinavica, ISSN 0001-6349, E-ISSN 1600-0412, Vol. 98, no 3, p. 327-336Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Endometriosis is a gynecological disorder that may cause considerable pelvic pain in women of fertile age. Determining pain mechanisms is necessary in order to optimize the treatment of the disease. The objective of the study was to evaluate pain thresholds in women with persistent pelvic pain with and without confirmed endometriosis, and healthy, unaffected controls, and analyze how pain thresholds in these cohorts related to duration of pelvic pain, quality of life, and symptoms of anxiety and depression.

MATERIAL AND METHODS: Pain thresholds for heat, cold and pressure were assessed with quantitative sensory testing on six locations on a reference group of 55 healthy women and on 37 women with persistent pelvic pain who had been admitted for diagnostic laparoscopy on the suspicion of endometriosis. Validated instruments were applied to assess quality of life and symptoms of anxiety and depression. Data were analyzed by means of uni- and multivariate analysis of variance and Spearman's rank-order correlation.

RESULTS: The women with persistent pelvic pain had significantly lower pain thresholds compared with the reference women. In the women with pain, no differences were observed in pain thresholds between women with (n = 13) and women without (n = 24) biopsy-proven endometriosis. The duration of pelvic pain correlated significantly positively with reduced pain thresholds, ie, the longer the duration, the more sensitization. In the persistent pelvic pain group, pain thresholds for heat correlated significantly with the Short Form Health Survey 36 dimension of bodily pain, and thresholds for cold correlated with Short Form Health Survey 36 bodily pain and with symptoms of depression.

CONCLUSIONS: Our results showed widespread alterations in pain thresholds in women with persistent pelvic pain that are indicative of central sensitization and a time-dependent correlation. Women with pelvic pain and suspicion of endometriosis should probably be treated more thoroughly to prevent or at least minimize the concomitant development of central sensitization.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
chronic pain, endometriosis, health-related quality of life, pain thresholds, persistent pelvic pain, quantitative sensory testing, sensitization
National Category
Obstetrics, Gynecology and Reproductive Medicine
Identifiers
urn:nbn:se:liu:diva-154816 (URN)10.1111/aogs.13508 (DOI)000459481000007 ()30472739 (PubMedID)2-s2.0-85059291957 (Scopus ID)
Note

Funding agencies:  Medical Research Council of Southeast Sweden; Region Ostergotland; Linkoping University

Available from: 2019-02-28 Created: 2019-02-28 Last updated: 2019-06-28Bibliographically approved
Bergdahl, E., Ternestedt, B.-M., Berterö, C. & Andershed, B. (2019). The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time. Paper presented at 2018/11/23. Nursing Open, 6(1), 175-188
Open this publication in new window or tab >>The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time
2019 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 6, no 1, p. 175-188Article in journal (Refereed) Published
Abstract [en]

Aims and objectives

The aim of this study was to test the theoretical conceptualization of the co‐creative process in home care nursing encounters over time.

Method and design

This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases.

Results

The co‐creative process was complex and contained main, sub‐ and micro‐processes. Time was important and valuable, giving the patient and relatives space to adjust the process to their own pace. Some processes were worked on more intensively in accordance with the patients’ and relatives’ needs, and these are considered the main‐process. The further developed theory of the co‐creative process and its main, sub‐ and microprocesses can be understood as a concretization of how good nursing care can be performed within caring relationships in the context of advanced palliative home care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
caring, case study research, nurse–patient relationship, palliative care
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-152865 (URN)10.1002/nop2.203 (DOI)
Conference
2018/11/23
Available from: 2018-11-23 Created: 2018-11-23 Last updated: 2019-04-12
Johansson, H., Berterö, C., Berg, K. & Jonasson, L.-L. (2019). To live a life with COPD: the consequences of symptom burden. The International Journal of Chronic Obstructive Pulmonary Disease, 14, 905-909
Open this publication in new window or tab >>To live a life with COPD: the consequences of symptom burden
2019 (English)In: The International Journal of Chronic Obstructive Pulmonary Disease, ISSN 1176-9106, E-ISSN 1178-2005, Vol. 14, p. 905-909Article in journal (Refereed) Published
Abstract [en]

Background: Chronic obstructive pulmonary disease (COPD) is a prevalent illness that, due to its symptoms and treatment, entails a significant burden for the affected person, and his/her family, health care and private finances. Today, knowledge and understanding are sparse regarding COPD-affected persons’ own lived experiences and about the symptom burden and its effect on their daily life. Due to this knowledge gap the aim of this study was to identify and describe the symptom burden and its effect on daily life in people with COPD, based on their own lived experiences.

Subject and method: Eleven males and 14 females in GOLD stages III and IV, in an age range of 58–82 years, were interviewed. An interview guide was used to direct the face-to-face interviews. Data was analyzed with thematic analysis following the six steps according to Braun and Clarke.

Results: The results highlighted one theme: an altered everyday life. The altered everyday life leads to a need for support to handle everyday life and for different strategies to live as desired. Persons with COPD need to take each day as it comes and their life is not easy to plan since it depends on how they feel from day to day. Life is handled with several strategies such as breathing techniques, and ways to take care of the home and garden as well as the emotions. Support from the next of kin, society and the health care service is important.

Conclusion: This study provides the insight that persons with COPD in stages III and IV have an altered life caused by the symptom burden. They must struggle with strategies to handle everyday life. There is a need of support from the next of kin and society to facilitate daily living, but this support needs to be well-balanced.

Place, publisher, year, edition, pages
Auckland, New Zealand: Dove Medical Press Ltd.(DovePress), 2019
Keywords
chronic obstructive pulmonary disease, symptom burden, daily life, thematic analysis
National Category
Clinical Medicine
Identifiers
urn:nbn:se:liu:diva-156645 (URN)10.2147/COPD.S192280 (DOI)000467095200002 ()
Available from: 2019-05-02 Created: 2019-05-02 Last updated: 2019-06-14Bibliographically approved
Drott, J., Starkhammar, H., Kjellgren, K. I. & Berterö, C. (2018). Neurotoxic Side Effects Early in the Oxaliplatin Treatment Period in Patients With Colorectal Cancer. Oncology Nursing Forum, 45(6), 690-697
Open this publication in new window or tab >>Neurotoxic Side Effects Early in the Oxaliplatin Treatment Period in Patients With Colorectal Cancer
2018 (English)In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 45, no 6, p. 690-697Article in journal (Refereed) Published
Abstract [en]

PURPOSE: To identify and describe experiences of patients with colorectal cancer (CRC) who have neurotoxic side effects early in the oxaliplatin treatment period, and how neurotoxicity affects their daily lives.

PARTICIPANTS & SETTING: 10 patients with stage II-III CRC were included. All were treated with adjuvant oxaliplatin postoperatively and assessed neurotoxicity via a platform-independent mobile phone-based system. Patients were recruited from two hospitals in southern Sweden from November 2013 to August 2014.

METHODOLOGIC APPROACH: Qualitative interview study conducted through open-ended, face-to-face, qualitative interviews. Thematic analysis was used.

FINDINGS: A main theme was identified.

IMPLICATIONS FOR NURSING: Nurses have an obligation to communicate the importance of early detection of neurotoxicity. Mobile phone technology seems to be a valuable tool for monitoring patient-reported neurotoxicity to improve communication and supportive care.

Place, publisher, year, edition, pages
Pittsburgh, PA, United States: Oncology Nursing Society, 2018
Keywords
chemotherapy, colorectal cancer, daily life, neurotoxicity, qualitative methodology
National Category
Cancer and Oncology Nursing
Identifiers
urn:nbn:se:liu:diva-154815 (URN)10.1188/18.ONF.690-697 (DOI)000459360700005 ()30339148 (PubMedID)2-s2.0-85055071697 (Scopus ID)
Note

Funding agencies: Swedish Cancer Society; Division of Nursing Science, Department of Medical and Health Sciences at Linkoping University

Available from: 2019-02-28 Created: 2019-02-28 Last updated: 2019-04-10Bibliographically approved
Berterö, C. & Grundström, H. (2018). The double-edged experience of healthcare encounters among women with endometriosis: a qualitative study. Journal of Clinical Nursing, 27(1-2), 205-211
Open this publication in new window or tab >>The double-edged experience of healthcare encounters among women with endometriosis: a qualitative study
2018 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 1-2, p. 205-211Article in journal (Refereed) Published
Abstract [en]

Aims and objectives

To identify and describe the experience of healthcare encounters among women with endometriosis.

Background

Endometriosis is a “hidden” chronic gynaecological disease appearing in every 10th woman of fertile age. Different manifestations of pain are the main symptoms, often leading to impaired physical and mental health, and lower quality of life. Previous research on healthcare experiences among women with endometriosis has focused on diagnostic delay and experiences of encountering general practitioners.

Design

A qualitative, interpretive, phenomenological approach was used.

Methods

We interviewed nine women aged 23–55, with a laparoscopy-confirmed diagnosis of endometriosis. The interviews were recorded and transcribed verbatim. The data were analysed following the steps of the interpretive phenomenological approach.

Results

Two themes were identified in the interview transcripts: being treated with ignorance and being acknowledged. The essence: “the double-edged experience of healthcare encounters” emerged from the themes. The women's experience was double-edged as it involved contradictory feelings: the encounters were experienced as both destructive or constructive. On the one hand, the destructive side was characterised by ignorance, exposure and disbelief. On the other hand, the constructive side made the women feel acknowledged and confirmed, boosting their self-esteem.

Conclusions

The new and important aspects of the findings are that the experience of healthcare encounters is for the first time expressed as double-edged: both destructive and constructive. The experience was of specific importance as it affected the women's perceptions of themselves and of their bodies.

Relevance to clinical practice

The information about the constructive side of the experience is of clinical valuable for all healthcare professionals (nurses, midwives and doctors) encountering these women, as it provides a new level of understanding of the experiences. The findings demonstrate both psychological and practical aspects that can help professionals to improve the encounters.

Place, publisher, year, edition, pages
Wiley-Blackwell Publishing Inc., 2018
Keywords
dysmenorrhoea, endometriosis, experience, healthcare encounter, healthcare professionals, phenomenology, qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-141005 (URN)10.1111/jocn.13872 (DOI)000418871000042 ()28493635 (PubMedID)
Note

Funding agencies: County Council of Ostergotland; Linkoping University; Medical Research Council of Southeast Sweden

Available from: 2017-09-20 Created: 2017-09-20 Last updated: 2019-12-04Bibliographically approved
Grundström, H., Kjølhede, P., Berterö, C. & Alehagen, S. (2016). “A challenge” – healthcare professionals' experiences when meeting women with symptoms that might indicate endometriosis. Sexual & Reproductive HealthCare, 7, 65-69
Open this publication in new window or tab >>“A challenge” – healthcare professionals' experiences when meeting women with symptoms that might indicate endometriosis
2016 (English)In: Sexual & Reproductive HealthCare, ISSN 1877-5756, E-ISSN 1877-5764, Vol. 7, p. 65-69Article in journal (Refereed) Published
Abstract [en]

Objective

The aim of the study was to identify and describe the experiences of healthcare professionals when meeting women with symptoms that might indicate endometriosis.

Methods

Semi-structured interviews were conducted with 10 gynecologists, six general practitioners and nine midwives working at one university hospital, one central hospital, one private gynecology clinic and five healthcare centers in south-east Sweden. The interviews were recorded and transcribed verbatim and analyzed using qualitative conventional content analysis.

Results

Three clusters were identified: the corroborating encounter, the normal variation of menstruation cycles, and the suspicion of endometriosis. The healthcare professionals tried to make a corroborating encounter by acknowledging the woman, taking time to listen, and giving an explanation for the problems. Healthcare professionals had different ways to determine what was normal as regards menstrual pain, ovulation pain and dyspareunia. They also needed to have the competence to act and react when the symptoms indicated endometriosis.

Conclusions

Meeting women with symptoms that might indicate endometriosis is challenging and demands a certain level of competence from healthcare professionals. Sometimes the symptoms are camouflaged as “normal” menstruation pain, making it hard to satisfy the needs of this patient group.

Keywords
Chronic pelvic pain;Dysmenorrhea;Endometriosis;Healthcare professional;Qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-124016 (URN)10.1016/j.srhc.2015.11.003 (DOI)000370089000012 ()
Available from: 2016-01-18 Created: 2016-01-18 Last updated: 2019-06-28
Bergdahl, E. & Berterö, C. M. (2016). Concept analysis and the building blocks of theory: misconceptions regarding theory development.. Journal of Advanced Nursing, 72(10), 2558-2566
Open this publication in new window or tab >>Concept analysis and the building blocks of theory: misconceptions regarding theory development.
2016 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 72, no 10, p. 2558-2566Article in journal (Refereed) Published
Abstract [en]

AIM: The purpose of this article is to discuss the attempts to justify concepts analysis as a way to construct theory - a notion often advocated in nursing.

BACKGROUND: The notion that concepts are the building blocks or threads from which theory is constructed is often repeated. It can be found in many articles and well-known textbooks. However, this notion is seldom explained or defended. The notion of concepts as building blocks has also been questioned by several authors. However, most of these authors seem to agree to some degree that concepts are essential components from which theory is built.

DESIGN: Discussion paper.

DATA SOURCES: Literature was reviewed to synthesize and debate current knowledge.

IMPLICATIONS FOR NURSING: Our point is that theory is not built by concepts analysis or clarification and we will show that this notion has its basis in some serious misunderstandings. We argue that concept analysis is not a part of sound scientific method and should be abandoned.

CONCLUSION: The current methods of concept analysis in nursing have no foundation in philosophy of science or in language philosophy. The type of concept analysis performed in nursing is not a way to 'construct' theory. Rather, theories are formed by creative endeavour to propose a solution to a scientific and/or practical problem. The bottom line is that the current style and form of concept analysis in nursing should be abandoned in favour of methods in line with modern theory of science.

Place, publisher, year, edition, pages
John Wiley & Sons, 2016
Keywords
young adults, energy end-users, end-use efficiency, employment
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-130638 (URN)10.1111/jan.13002 (DOI)000383626900027 ()27218439 (PubMedID)
Available from: 2016-08-19 Created: 2016-08-19 Last updated: 2018-01-10Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-1588-135X

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