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Berterö, C. & Grundström, H. (2017). The double-edged experience of healthcare encounters among women with endometriosis: a qualitative study. Journal of Clinical Nursing, 27(1-2), 205-211
Open this publication in new window or tab >>The double-edged experience of healthcare encounters among women with endometriosis: a qualitative study
2017 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 1-2, p. 205-211Article in journal (Refereed) Published
Abstract [en]

Aims and objectives

To identify and describe the experience of healthcare encounters among women with endometriosis.

Background

Endometriosis is a “hidden” chronic gynaecological disease appearing in every 10th woman of fertile age. Different manifestations of pain are the main symptoms, often leading to impaired physical and mental health, and lower quality of life. Previous research on healthcare experiences among women with endometriosis has focused on diagnostic delay and experiences of encountering general practitioners.

Design

A qualitative, interpretive, phenomenological approach was used.

Methods

We interviewed nine women aged 23–55, with a laparoscopy-confirmed diagnosis of endometriosis. The interviews were recorded and transcribed verbatim. The data were analysed following the steps of the interpretive phenomenological approach.

Results

Two themes were identified in the interview transcripts: being treated with ignorance and being acknowledged. The essence: “the double-edged experience of healthcare encounters” emerged from the themes. The women's experience was double-edged as it involved contradictory feelings: the encounters were experienced as both destructive or constructive. On the one hand, the destructive side was characterised by ignorance, exposure and disbelief. On the other hand, the constructive side made the women feel acknowledged and confirmed, boosting their self-esteem.

Conclusions

The new and important aspects of the findings are that the experience of healthcare encounters is for the first time expressed as double-edged: both destructive and constructive. The experience was of specific importance as it affected the women's perceptions of themselves and of their bodies.

Relevance to clinical practice

The information about the constructive side of the experience is of clinical valuable for all healthcare professionals (nurses, midwives and doctors) encountering these women, as it provides a new level of understanding of the experiences. The findings demonstrate both psychological and practical aspects that can help professionals to improve the encounters.

Place, publisher, year, edition, pages
Wiley-Blackwell Publishing Inc., 2017
Keywords
dysmenorrhoea, endometriosis, experience, healthcare encounter, healthcare professionals, phenomenology, qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-141005 (URN)10.1111/jocn.13872 (DOI)000418871000042 ()28493635 (PubMedID)
Note

Funding agencies: County Council of Ostergotland; Linkoping University; Medical Research Council of Southeast Sweden

Available from: 2017-09-20 Created: 2017-09-20 Last updated: 2018-05-02Bibliographically approved
Grundström, H., Kjølhede, P., Berterö, C. & Alehagen, S. (2016). “A challenge” – healthcare professionals' experiences when meeting women with symptoms that might indicate endometriosis. Sexual & Reproductive HealthCare, 7, 65-69
Open this publication in new window or tab >>“A challenge” – healthcare professionals' experiences when meeting women with symptoms that might indicate endometriosis
2016 (English)In: Sexual & Reproductive HealthCare, ISSN 1877-5756, E-ISSN 1877-5764, Vol. 7, p. 65-69Article in journal (Refereed) Published
Abstract [en]

Objective

The aim of the study was to identify and describe the experiences of healthcare professionals when meeting women with symptoms that might indicate endometriosis.

Methods

Semi-structured interviews were conducted with 10 gynecologists, six general practitioners and nine midwives working at one university hospital, one central hospital, one private gynecology clinic and five healthcare centers in south-east Sweden. The interviews were recorded and transcribed verbatim and analyzed using qualitative conventional content analysis.

Results

Three clusters were identified: the corroborating encounter, the normal variation of menstruation cycles, and the suspicion of endometriosis. The healthcare professionals tried to make a corroborating encounter by acknowledging the woman, taking time to listen, and giving an explanation for the problems. Healthcare professionals had different ways to determine what was normal as regards menstrual pain, ovulation pain and dyspareunia. They also needed to have the competence to act and react when the symptoms indicated endometriosis.

Conclusions

Meeting women with symptoms that might indicate endometriosis is challenging and demands a certain level of competence from healthcare professionals. Sometimes the symptoms are camouflaged as “normal” menstruation pain, making it hard to satisfy the needs of this patient group.

Keywords
Chronic pelvic pain;Dysmenorrhea;Endometriosis;Healthcare professional;Qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-124016 (URN)10.1016/j.srhc.2015.11.003 (DOI)000370089000012 ()
Available from: 2016-01-18 Created: 2016-01-18 Last updated: 2017-11-30
Bergdahl, E. & Berterö, C. M. (2016). Concept analysis and the building blocks of theory: misconceptions regarding theory development.. Journal of Advanced Nursing, 72(10), 2558-2566
Open this publication in new window or tab >>Concept analysis and the building blocks of theory: misconceptions regarding theory development.
2016 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 72, no 10, p. 2558-2566Article in journal (Refereed) Published
Abstract [en]

AIM: The purpose of this article is to discuss the attempts to justify concepts analysis as a way to construct theory - a notion often advocated in nursing.

BACKGROUND: The notion that concepts are the building blocks or threads from which theory is constructed is often repeated. It can be found in many articles and well-known textbooks. However, this notion is seldom explained or defended. The notion of concepts as building blocks has also been questioned by several authors. However, most of these authors seem to agree to some degree that concepts are essential components from which theory is built.

DESIGN: Discussion paper.

DATA SOURCES: Literature was reviewed to synthesize and debate current knowledge.

IMPLICATIONS FOR NURSING: Our point is that theory is not built by concepts analysis or clarification and we will show that this notion has its basis in some serious misunderstandings. We argue that concept analysis is not a part of sound scientific method and should be abandoned.

CONCLUSION: The current methods of concept analysis in nursing have no foundation in philosophy of science or in language philosophy. The type of concept analysis performed in nursing is not a way to 'construct' theory. Rather, theories are formed by creative endeavour to propose a solution to a scientific and/or practical problem. The bottom line is that the current style and form of concept analysis in nursing should be abandoned in favour of methods in line with modern theory of science.

Place, publisher, year, edition, pages
John Wiley & Sons, 2016
Keywords
young adults, energy end-users, end-use efficiency, employment
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-130638 (URN)10.1111/jan.13002 (DOI)000383626900027 ()27218439 (PubMedID)
Available from: 2016-08-19 Created: 2016-08-19 Last updated: 2018-01-10Bibliographically approved
Gustafsson, E., Litström, E., Berterö, C. & Drott, J. (2016). Reliability testing of oxaliplatin-associated neurotoxicity questionnaire (OANQ), a pilot study. Supportive Care in Cancer, 24(2), 747-754
Open this publication in new window or tab >>Reliability testing of oxaliplatin-associated neurotoxicity questionnaire (OANQ), a pilot study
2016 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 24, no 2, p. 747-754Article in journal (Refereed) Published
Abstract [en]

PURPOSE:

The purpose of this study was to test the reliability of the Swedish version of the Oxaliplatin-Associated Neurotoxicity Questionnaire (OANQ) administrated throughout a self-reported mobile phone-based system, a pilot study.

METHODS:

Twenty-three patients from two university hospitals and two regional hospitals who had been treated with oxaliplatin were included through purposive sampling between autumn 2013 to autumn 2014. A test-retest was performed through a mobile phone-based system, with a recall period of 1 h to determine the reliability of the questionnaire.

RESULTS:

Internal consistency was strong for the three domains of the scale (α > 0.840). The statistical analyses for the test-retest indicated that the OANQ was stable. Intraclass correlation (ICC) for symptom items and effect on daily activities items showed an overall excellent reproducibility at 69 and 83 %, respectively. The weighted kappa for symptom items and daily activities items showed an overall almost perfect agreement at 59 and 52 %, respectively. A paired samples t test did not reveal any significant differences between the two measures.

CONCLUSIONS:

The OANQ was tested and considered a reliable assessment for capturing the oxaliplatin-induced peripheral neurotoxicity (OIPN) in patients receiving oxaliplatin. However, further reliability testing of the OANQ is needed.

Place, publisher, year, edition, pages
Springer, 2016
Keywords
Oxaliplatin-induced peripheral neurotoxicity; Oxaliplatin; Symptom
National Category
Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:liu:diva-121518 (URN)10.1007/s00520-015-2838-y (DOI)000367458200028 ()26137985 (PubMedID)
Note

Funding agencies: Division of Nursing Science at the Department of Medical and Health Sciences

Available from: 2015-09-23 Created: 2015-09-23 Last updated: 2017-12-01Bibliographically approved
Drott, J., Starkhammar, H., Kjellgren, K. & Berterö, C. (2016). The trajectory of neurotoxic side effects' impact on daily life: a qualitative study. Supportive Care in Cancer, 24(8), 3455-3461
Open this publication in new window or tab >>The trajectory of neurotoxic side effects' impact on daily life: a qualitative study
2016 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 24, no 8, p. 3455-3461Article in journal (Refereed) Published
Abstract [en]

PURPOSE:

The purpose of this study was to explore the experiences of oxaliplatin-induced neurotoxic side effects among patients with colorectal cancer (CRC) and how these side effects influenced their daily lives over time.

METHODS:

To assess neurotoxic side effects, ten patients were repeatedly interviewed. The patients were recruited from two hospitals in south of Sweden, had stage II-III CRC, and had been treated with adjuvant oxaliplatin postoperatively, from November 2013 to October 2015. They had received FOLFOX and XELOX, with a mean total dose of 791 mg oxaliplatin. After completed chemotherapy, at 3, 6, and 12 months into the post-treatment phase, 25 interviews were conducted and thematic analysis was used according to Braun and Clarke.

RESULTS:

Oxaliplatin-induced neurotoxicity affects patients in several ways in the long term. Four themes were identified: Expectation of cure, Dubiety, Normalization, and Learn to live with neurotoxicity. The findings of this study describe the trajectory of neurotoxicity and its impact on these patients' life situation. The findings confirmed that neurotoxicity is multi-faceted and that the experience of it changes over time.

CONCLUSION:

The desire to survive stimulates adaptations and strategies to manage daily life, and patients learn to live with the neurotoxic side effects. This study provides evidence that these patients need individual attention and support during the trajectory of neurotoxic side effects. Current care provision is inadequate due to a lack of knowledge of the ways in which neurotoxicity impacts the patient's daily life. This study provides insights that could be used to develop a more person-centered care.

Keywords
Adjuvant chemotherapy; Colorectal cancer; Neurotoxicity; Oxaliplatin; Qualitative interviews; Thematic analysis
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-126626 (URN)10.1007/s00520-016-3179-1 (DOI)000378884400030 ()26992409 (PubMedID)
Note

Funding agencies:We thank all patients for their participation in this study. We also thank the Swedish Cancer Society, the Department of Oncology and Surgery, Linkoping University Hospital, and the Division of Nursing Science at the Department of Medical and Health Sciences for the financial support. Further thanks go to all the health professionals in the oncology clinics who were involved in the study in different ways.

Available from: 2016-03-31 Created: 2016-03-31 Last updated: 2018-05-15
Mylen, J., Nilsson, M. & Berterö, C. (2016). To feel strong in an unfamiliar situation; Patients lived experiences of neurosurgical intensive care. A qualitative study. Intensive & Critical Care Nursing, 32, 42-48
Open this publication in new window or tab >>To feel strong in an unfamiliar situation; Patients lived experiences of neurosurgical intensive care. A qualitative study
2016 (English)In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 32, p. 42-48Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of this study was to explore the lived experiences of conscious patients in neurosurgical intensive care. Method: Data collection was performed by qualitative interviews using an interview guide. Eleven former patients, seven women and four men, were interviewed two to 14 months after discharge. The interviews were recorded and transcribed verbatim and analysed using an interpretive phenomenological approach. Findings: The analysis revealed three themes: To feel safe in an unfamiliar situation, to experience strains and limitations, and to be confirmed as a human being. These three themes culminated in the essence: To feel strong in an unfamiliar situation. Patients experienced a soothing environment where, despite strains, they felt safe being cared for in a ward with specialised medical treatment. When mental and physical strains decreased during the period of care, they experienced the ability to cope with the simplest tasks as a sign of regained identity. Conclusion: Patients main experience during intensive care was security. Security along with human contact and interaction with staff and next of kin made the patients feel strengthened as human beings in an unfamiliar situation. The fact that the patients were conscious enabled them to understand their situation and to experience security. (C) 2015 Elsevier Ltd. All rights reserved.

Place, publisher, year, edition, pages
ELSEVIER SCI LTD, 2016
Keywords
Interaction; Interpretive phenomenology; Neurosurgical intensive care; Nursing; Security
National Category
Clinical Medicine
Identifiers
urn:nbn:se:liu:diva-124079 (URN)10.1016/j.iccn.2015.08.001 (DOI)000366954700006 ()26552575 (PubMedID)
Note

Funding Agencies|Department of Neuro Surgery and Neurosurgical Intensive Care, Linkoping University Hospital; Division of Nursing Science, Department of Medical and Health Sciences Linkoping University, Linkoping, Sweden

Available from: 2016-01-25 Created: 2016-01-19 Last updated: 2018-03-23
Muniz da Costa Vargens, O. & Berterö, C. M. (2015). Defining contentment in quality of life in the context of breast cancer experience: a meta-synthesis. Journal of Palliative Care & Medicine, 5(6)
Open this publication in new window or tab >>Defining contentment in quality of life in the context of breast cancer experience: a meta-synthesis
2015 (English)In: Journal of Palliative Care & Medicine, E-ISSN 2165-7386, Vol. 5, no 6Article in journal (Refereed) Published
Abstract [en]

Purpose: There has been a great deal of qualitative research conducted that has examined the impact of breast cancer on the concept of Quality of Life (QoL); however, there has been little effort to analyse the psycho-social components of QoL findings from a meta-perspective.

Method: Computer searches in electronic databases, search date from 2000 onwards; Publications focusing on women with breast cancer; using qualitative research/studies or combining qualitative and quantitative research, including a clear presentation of qualitative findings; and focused on women’s perspectives and experiences of QoL and affected life situation due to breast cancer. Thirty articles were selected for appraisal and 12 qualitative studies were interpreted and analysed.

Results: The fusions identified from this meta-synthesis reveal three aspects of QoL affected by the diagnosis of breast cancer and its treatment: contentment, comfort, and contentedness. The results, understanding what QoL is about from the women’s perspectives may guide nurses and health care professionals when caring for women with breast cancer.

Conclusion: The breast cancer experience has powerful impacts on women’s lives, and affects their QoL. This QoL is identified as contentment, comfort and contentedness, which are closely related but diverse. These results of the present study highlight the importance of providing support for women who have breast cancer in order to help them find the best strategies to overcome the impact of the disease and improve their QoL.

Place, publisher, year, edition, pages
Durham, NC, United States: Rhine Research Center, 2015
Keywords
Breast cancer; Quality of life; Qualitative analysis; Contentment
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-123976 (URN)10.4172/2165-7386.1000239 (DOI)
Available from: 2016-01-15 Created: 2016-01-15 Last updated: 2017-11-30Bibliographically approved
Berterö, C. (2015). Developing qualitative methods - or "same old wine in a new bottle". International Journal of Qualitative Studies on Health and Well-being, 10, 27679
Open this publication in new window or tab >>Developing qualitative methods - or "same old wine in a new bottle"
2015 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 10, p. 27679-Article in journal, Editorial material (Refereed) Published
National Category
Clinical Medicine
Identifiers
urn:nbn:se:liu:diva-118011 (URN)10.3402/qhw.v10.27679 (DOI)000355187600001 ()25977121 (PubMedID)
Available from: 2015-05-20 Created: 2015-05-20 Last updated: 2017-12-04
Back, C. & Berterö, C. (2015). Interpretativ fenomenologisk analys (2ed.). In: Andreas Fejes och Robert Thornberg (Ed.), Handbok i kvalitativ analys: (pp. 148-161). Stockholm: Liber
Open this publication in new window or tab >>Interpretativ fenomenologisk analys
2015 (Swedish)In: Handbok i kvalitativ analys / [ed] Andreas Fejes och Robert Thornberg, Stockholm: Liber, 2015, 2, p. 148-161Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Liber, 2015 Edition: 2
Keywords
Fenomenologi
National Category
Psychiatry Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-113798 (URN)978-91-47-11165-7 (ISBN)
Available from: 2015-01-30 Created: 2015-01-30 Last updated: 2018-01-11Bibliographically approved
Drott, J., Wilhelmson, M. & Berterö, C. (2015). Kolorektal cancer patienters upplevelser av att besvara symtom via ett mobiltelefonbaserat system. In: : . Paper presented at Kirurgveckan Örebro 17-21 augusti, Örebro, Sverige.
Open this publication in new window or tab >>Kolorektal cancer patienters upplevelser av att besvara symtom via ett mobiltelefonbaserat system
2015 (Swedish)Conference paper, Poster (with or without abstract) (Other academic)
National Category
Clinical Medicine
Identifiers
urn:nbn:se:liu:diva-121253 (URN)
Conference
Kirurgveckan Örebro 17-21 augusti, Örebro, Sverige
Available from: 2015-09-10 Created: 2015-09-10 Last updated: 2016-09-26
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-1588-135X

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