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Hyden, Lars-ChristerORCID iD iconorcid.org/0000-0002-3033-9879
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Publications (10 of 107) Show all publications
Odzakovic, E., Hyden, L.-C., Festin, K. & Kullberg, A. (2018). People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study. Scandinavian Journal of Public Health, Article ID 1403494818755600.
Open this publication in new window or tab >>People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study
2018 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, article id 1403494818755600Article in journal (Refereed) Epub ahead of print
Abstract [en]

AIMS: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area).

METHODS: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables.

RESULTS: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities.

CONCLUSIONS: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

Place, publisher, year, edition, pages
Sage Publications, 2018
Keyword
Home care services, cross-sectional study, dementia, foreign born, ordinary housing, special housing
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:liu:diva-146049 (URN)10.1177/1403494818755600 (DOI)29409432 (PubMedID)2-s2.0-85042217866 (Scopus ID)
Available from: 2018-03-23 Created: 2018-03-23 Last updated: 2018-04-26Bibliographically approved
Hydén, L.-C. & Forsblad, M. (2017). Collaborative Remembering in Dementia: A Focus on Joint Activities. In: Michelle L. Meade, Celia B. Harris, Penny Van Bergen, John Sutton, and Amanda J. Barnier (Ed.), Collaborative Remembering: Theories, Research, and Applications (pp. 436-455). Oxford University Press
Open this publication in new window or tab >>Collaborative Remembering in Dementia: A Focus on Joint Activities
2017 (English)In: Collaborative Remembering: Theories, Research, and Applications / [ed] Michelle L. Meade, Celia B. Harris, Penny Van Bergen, John Sutton, and Amanda J. Barnier, Oxford University Press, 2017, p. 436-455Chapter in book (Refereed)
Abstract [en]

In this chapter we consider collaborative remembering and joint activates in everyday life in the case of people living with dementia.

First, we review past research of practices that scaffolds the participation of persons with dementia in everyday chores under different stages of dementia diseases. We do so by suggesting three analytical types of scaffolding: when the scaffolding practices (i) frame the activity, (ii) guide actions, or (iii) are part of repair activities. Second, we review two aspects of collaborative remembering that are especially important in the case of dementia: training of scaffolding practices, and the sustaining and presentation of identities through collaborative storytelling. Finally, theoretical and methodological tendencies of the research field are summarized and future research needs are formulated.

Place, publisher, year, edition, pages
Oxford University Press, 2017
Keyword
Dementia, Alzheimer’s disease, collaborative remembering, joint activities, scaffolding, distributed cognition, everyday cognition
National Category
Social Psychology
Identifiers
urn:nbn:se:liu:diva-143813 (URN)9780198737865 (ISBN)
Available from: 2017-12-19 Created: 2017-12-19 Last updated: 2018-01-11Bibliographically approved
Björkman, B., Lund, I., Arnér, S. & Hyden, L.-C. (2017). The meaning and consequences of amputation and mastectomy from the perspective of pain and suffering. Scandinavian Journal of Pain, 14(1), 100-107
Open this publication in new window or tab >>The meaning and consequences of amputation and mastectomy from the perspective of pain and suffering
2017 (English)In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 14, no 1, p. 100-107Article in journal (Refereed) Published
Abstract [en]

Background

The concepts ‘pain’ and ‘suffering’ are frequently treated as synonymous. However, they are clearly distinct phenomena. Phantom phenomena including pain and sensory disturbances are still recognized as long-lasting problems after limb amputation and after mastectomy. The complex nature of phantom phenomena makes the interpretation of its results ambiguous, regarding the prevalence of pain, sensory disturbances and the accompanying suffering. There is clinical experience that suffering is a great burden for the individual but there is a lack of systematic studies of patients’ own evaluations of the suffering caused by their phantom phenomena.

Objectives

The overall aim of this study was to identify and describe patients’ suffering related to, and as a part, of their post-amputation situation.

Methods

The present study constitutes a part of a prospective, two-year follow up project investigating interviews of 28 men and women in different ages and who have undergone a limb amputation or mastectomy. The reason for amputation or mastectomy varied among the patients and included vascular diseases, cancer (sarcoma and breast-cancer) and trauma. Our ambition was to extract as much variations as possible in different, individualized aspects of the actual pain and suffering producing situation. The participants were, here, invited to open-ended, narrative-oriented interviews one month after the surgery. The interviews were transcribed verbatim and analyzed within qualitative methodology: thematic content analysis.

Results

Twenty-two of 28 interviewees experienced phantom pain and phantom sensations. The two surgical processes amputation and mastectomy meant for a majority of the interviewees a critical event with threatening consequences for everyday life such as loss of function and personal integrity. Nine interviewees felt even stigmatized as a result of their lost body part. Numerous inter-related factors following the amputation/mastectomy, which can inflict severe suffering on the amputee, were uncovered. The context in which the interviewees were informed about the decision to amputate proved to be one such critical and important factor.

Conclusion

To understand potential suffering in relation to phantom phenomena, it will never be enough merely to have knowledge of the underlying physiological or neurological mechanisms and/or the intensity of phantom pain and phantom sensations. Rather, it is necessary to find out how the loss of the body part and its everyday consequences are experienced by patients.

Implications

It is important to create time for real dialogue with the patients both during pre-operative preparation and post-operative rehabilitation in order to clarify and verbalize elements that constitute the patients individual suffering. Hopefully this strategy can alleviate future chronic pain problems, severe psycho-social distress and suffering. Such an approach ought to have impact also for perceived suffering after other types of surgery or different invasive treatments.

Place, publisher, year, edition, pages
Elsevier, 2017
Keyword
Amputation; Mastectomy; Pain-producing-situation; Phantom phenomena; Suffering
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-145048 (URN)10.1016/j.sjpain.2016.09.012 (DOI)000391262000022 ()28850422 (PubMedID)2-s2.0-85005925762 (Scopus ID)
Available from: 2018-02-08 Created: 2018-02-08 Last updated: 2018-02-20Bibliographically approved
Abramsson, M., Hyden, L.-C. & Motel-Klingebiel, A. (Eds.). (2017). Vem är den äldre? Äldrebilder i ett åldrande Sverige.. Stockholm: Regeringskansliet Kommitteservice
Open this publication in new window or tab >>Vem är den äldre? Äldrebilder i ett åldrande Sverige.
2017 (Swedish)Collection (editor) (Other academic)
Place, publisher, year, edition, pages
Stockholm: Regeringskansliet Kommitteservice, 2017
National Category
Other Social Sciences not elsewhere specified
Identifiers
urn:nbn:se:liu:diva-142539 (URN)
Note

Rapporten framtagen på uppdrag av Utredningen om nationell kvalitetsplan för äldreomsorgen (S 2015:03)

Available from: 2017-10-31 Created: 2017-10-31 Last updated: 2017-11-27Bibliographically approved
Hellström, I. & Hydén, L.-C. (Eds.). (2016). Att leva med demens (1ed.). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Att leva med demens
2016 (Swedish)Collection (editor) (Other academic)
Abstract [sv]

För att personer med demenssjukdom ska kunna leva ett fullgott liv behövs mer kunskap. I grunden handlar det om att förändra föreställningar och attityder till personer som lever med en demenssjukdom så att personerna själva, deras anhöriga och personal inom hälso- och sjukvården och politiker, kan se nya möjligheter i stället för enbart förluster. I den här boken presenteras kunskap och forskning som sätter personer med demenssjukdom i centrum. Boken utgår alltså inte i första hand från vården eller anhöriga, utan från dem som lever med sjukdomen. På så sätt skapas en tankeram som ger stöd vid både utvecklingsarbete och reflektion bland människor som på olika sätt arbetar med och för personer med demenssjukdom.

Cirka 110 000 och 170 000 svenskar har i dag en demenssjukdom. Om ett tiotal år är det betydligt fler: ökad livslängd och en större medvetenhet om demenssjukdomar gör att allt fler personer får en diagnos tidigt i förloppet. Som en konsekvens av detta kommer alltfler personer att leva med en demenssjukdom under lång tid, och ofta i hemmet. Detta innebär inte bara en utmaning för vård, omsorg och socialpolitik, utan väcker också frågor som berör såväl personer med demens, som anhöriga och andra i det sociala nätverket: Hur kan personer med demens leva och fungera i sitt hem tillsammans med eventuella familjemedlemmar? Hur kan de fungera som medborgare och delta i samhällslivet, ha makt över sitt eget vardagsliv och fatta egna beslut om sitt eget liv?

I boken medverkar forskare från Centrum för demensforskning (CEDER) vid Linköpings universitet. Den innehåller många pedagogiska exempel och riktar sig till utbildningar inom vård, omvårdnad, socialt arbete och omsorg.

Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016. p. 240 Edition: 1
Keyword
Dementia, Cognition disorders, Demenssjuka, Demens, Hjärnsjukdomar
National Category
Social Sciences Interdisciplinary Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-123704 (URN)9789140691651 (ISBN)
Available from: 2016-01-08 Created: 2016-01-08 Last updated: 2018-01-10Bibliographically approved
Hydén, L.-C. (2016). Att leva med demenssjukdom (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 17-39). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Att leva med demenssjukdom
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 17-39Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keyword
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126084 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-04Bibliographically approved
Österholm, J. H. & Hydén, L.-C. (2016). Citizenship as practice: Handling communication problems in encounters between persons with dementia and social workers. Dementia, 15(6), 1457-1473
Open this publication in new window or tab >>Citizenship as practice: Handling communication problems in encounters between persons with dementia and social workers
2016 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 15, no 6, p. 1457-1473Article in journal (Refereed) Published
Abstract [en]

The overall aim of the study was to investigate if and how persons with dementia were able to take part in negotiations for formal support, as cases of citizenship as practice. The transcripts used for analysis were from 11 assessment meetings conducted in Sweden, in which the formal applicant was a person with dementia. The findings suggest that the actual participation of persons with dementia in assessment meetings varies. Communication problems were found in the meetings to different degrees and were dealt with differently and with various consequences. For those persons with dementia contributing at the same levels as the other participants, there was an attempt at mutual understanding. For those making fewer contributions, the other interlocutors took over the initiative and thus affected the practice of citizenship by persons with dementia in a negative way. The practice of citizenship is situation based and varies depending on all participants. When the person with dementia is able to participate in the conversation, social workers can facilitate for them to overcome communication problems by giving them more time and signaling acceptance. If the person with dementia has great problems in participating, the other participants can find different strategies to at least involve her or him in the conversation

Place, publisher, year, edition, pages
Sage Publications, 2016
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-119105 (URN)10.1177/1471301214563959 (DOI)000387007700009 ()25525075 (PubMedID)
Note

Funding agencies: Solstickan Foundation; Swedish Riksbankens Jubileumsfond [M10-0187:1]

Available from: 2015-06-09 Created: 2015-06-09 Last updated: 2018-01-11
Henriksen, O. & Hydén, L.-C. (2016). Communicating parent community at prevention meetings in Norwegian schools. Qualitative Social Work, 15(1), 55-69
Open this publication in new window or tab >>Communicating parent community at prevention meetings in Norwegian schools
2016 (English)In: Qualitative Social Work, ISSN 1473-3250, E-ISSN 1741-3117, Vol. 15, no 1, p. 55-69Article in journal (Refereed) Published
Abstract [en]

Parental cooperation has increasingly become a key component in alcohol prevention efforts in schools. Many prevention programs actively utilize parent participation in order to strengthen the sense of community between parents, develop shared attitudes toward alcohol use, delay the beginning of alcohol use for adolescents, and limit alcohol usage by young people. Strengthening community is thus a core goal in prevention activities. This article analyses how community is developed and expressed in discussions during formal school meetings involving parents. The data used in the analysis consists of audio recordings of parent meetings in alcohol prevention programs for eighth-grade students at four separate schools in different regions of Norway. The analysis focuses on how personal pronouns are used in the conversations to signal inclusion or exclusion from the community. The article also discusses how different discursive expressions of community are used by meeting participants to position themselves as responsible parents, and the relevance of these meetings for social work.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS INC, 2016
Keyword
Alcohol; community; parent meetings; prevention program; discourse analysis
National Category
Sociology
Identifiers
urn:nbn:se:liu:diva-124640 (URN)10.1177/1473325015577155 (DOI)000368029500004 ()
Available from: 2016-02-09 Created: 2016-02-08 Last updated: 2017-11-30
Hydén, L.-C. & Nilsson, E. (2015). Couples with dementia: Positioning the ‘we’ . Dementia, 14(6), 716-733
Open this publication in new window or tab >>Couples with dementia: Positioning the ‘we’
2015 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 14, no 6, p. 716-733Article in journal (Refereed) Published
Abstract [en]

The aim of this article is to investigate how spouses in couples with dementia position themselves in relation to each other by analysing their use of pronouns, especially the we. The study uses joint interviews with 11 couples. Based on a quantitative analysis of pronoun use, it is argued that the pronoun we is used by all the spouses; however, it is used less frequently by the spouses with dementia in comparison with healthy spouses. A qualitative analysis of the use of the pronoun we shows that the spouses position, experience and consider themselves as a couple and that they position and experience themselves as individuals in relation to the couple. One of the challenges for couples with dementia is to be able to retain a we in face of the progression of the dementia disease. By positioning themselves in various ways, the spouses establish and negotiate quite a complex and emotionally charged web of relationships. 

Place, publisher, year, edition, pages
Sage Publications, 2015
Keyword
Dementia, couple, couplehood, we-ness, positioning, pronoun
National Category
Applied Psychology
Identifiers
urn:nbn:se:liu:diva-107355 (URN)10.1177/1471301213506923 (DOI)000364640800002 ()
Projects
CEDER
Funder
Riksbankens Jubileumsfond, M10-0187:1
Note

Funding agencies: bank of Sweden Tercentenary Foundation, programme Dementia: agency, personhood and everyday life [M10-0187:1]

Available from: 2014-06-11 Created: 2014-06-11 Last updated: 2017-12-05Bibliographically approved
Hydén, L.-C., Lindemann, H. & Brockmeier, J. (Eds.). (2014). Beyond loss: dementia, identity, personhood (1ed.). New York: Oxford University Press
Open this publication in new window or tab >>Beyond loss: dementia, identity, personhood
2014 (English)Collection (editor) (Other academic)
Abstract [en]
  • Focuses on what people with progressive dementias still have, largely because of their connections with others, is new and important.
  • Collects interdisciplinary essays by internationally established scholars
  • Provides new ways of understanding and dealing with dementia

Coming to terms with dementia is one of the great challenges of our time. This volume of new interdisciplinary essays by internationally established scholars offers new ways of understanding and dealing with it. It explores views of dementia that go beyond the idea of loss, and rather envisions it as multilayered transformation and change of personhood and identity, and as development that mostly is socially shared with others. The studies collected here identify new empirical, theoretical, and methodological areas that will be crucial to future research and clinical practice concerned with age-related dementia. Three general themes are singled out as of particular importance and interest: persons and personhood, identity and agency, and the social and the communal.

Readership: Students and researchers in: nursing, medicine, psychology, social work, gerontology, bioethics, memory research; people engaged in dementia organizations, caregivers, social workers.

Place, publisher, year, edition, pages
New York: Oxford University Press, 2014. p. 211 Edition: 1
Keyword
dementia, personhood, identity
National Category
Applied Psychology
Identifiers
urn:nbn:se:liu:diva-107358 (URN)978-0-19-996926-5 (ISBN)
Projects
CEDER
Funder
Riksbankens Jubileumsfond, M10-0187:1
Note

Contents

Part I: Persons, Personhood, and Dignity

1. Hilde Lindemann: Second Nature and the Tragedy of Alzheimer's

2. Steven R. Sabat: The Person with Dementia as Understood Through Stern's Critical Personalism

3. Lennart Nordenfelt: Dignity and Dementia

4. Ingrid Hellström: 'I'm his wife not his carer!' - Dignity and couplehood in dementia that the relationship>"

Part II: Identity, Agency, Embodiment

5. Jens Brockmeier: Questions of Meaning: Identity, Memory, and Dementia

6. Maria I. Medved: Everyday dramas: Comparing life with dementia and acquired brain injury

7. Pia Kontos: Body and Self in Dementia

8. Alison Phinney: As the Body Speaks: Creative Activity in Dementia Part III: Communication, Family, and Institutions

9. Lars C. Hydén: Narrative collaboration and scaffolding in dementia

10. Camilla Lindholm: Supporting a Co-Conversationalist with Dementia: The Case of Questions

11. Pamela Roach, John Keady & Penny Bee: 'Familyhood' and Early Onset Dementia: Using Narrative and Biography to plot Longitudinal Adjustment to the Diagnosis

12. Linda Örulv: In Battle with Time: Agency and Control in a Self-Help Group for Persons with Dementia

Also available as: eBook

Available from: 2014-06-11 Created: 2014-06-11 Last updated: 2015-01-29Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-3033-9879

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