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Wilhelmsson, Susan
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Publications (10 of 35) Show all publications
Strömfors, L., Wilhelmsson, S., Falk, L. & Höst, G. E. (2017). Experiences among children and adolescents of living with spina bifida and their visions of the future. Disability and Rehabilitation, 39(3), 261-271
Open this publication in new window or tab >>Experiences among children and adolescents of living with spina bifida and their visions of the future
2017 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 39, no 3, p. 261-271Article in journal (Refereed) Published
Abstract [en]

Purpose: Transitioning to independence may be problematic for persons with spina bifida (SB). Experiences of young persons with SB may provide insights into this group's needs for support. Therefore, the aim of this study was to investigate children'€™s and adolescents' experiences of living with SB, their social and emotional adjustment, and their thoughts about becoming independent adults. Method: Semi-structured interviews were conducted with young persons with SB (N = 8, age range 10 - 17 years). Social and emotional problems were assessed using Beck Youth Inventories. The interview transcripts were analyzed using qualitative content analysis. Results: Three main themes were found: being a person with SB; everyday living as a person with SB; and preparing for life as an adult with SB. Indications of emotional and social problems were most prominent among participants with milder physical disability. Conclusions: The findings indicate that young persons with SB may overestimate their independence. Other potentially problematic areas were lack of motivation, planning and preparedness for becoming independent. Research on transition to independence in this group should consider assistance at an early age in planning and executing strategies for independence. In addition, the potentially difficult situation for young persons with mild SB should be investigated further.

Place, publisher, year, edition, pages
Taylor & Francis, 2017
Keywords
spina bifida, independence, qualitative content analysis, children, adolescents, adjustment
National Category
Social Work Occupational Therapy
Identifiers
urn:nbn:se:liu:diva-125792 (URN)10.3109/09638288.2016.1146355 (DOI)000392480400006 ()26939640 (PubMedID)
Note

Funding agencies: Swedish Inheritance Fund, County Council of Ostergotland; Research Fund of the Linkoping University Hospital

Available from: 2016-03-04 Created: 2016-03-04 Last updated: 2018-04-18Bibliographically approved
Johnson, C., Wilhelmsson, S., Börjeson, S. & Lindberg, M. (2015). Improvement of communication and interpersonal competence in telenursing - development of a self-assessment tool. Journal of Clinical Nursing, 24(11-12), 1489-1501
Open this publication in new window or tab >>Improvement of communication and interpersonal competence in telenursing - development of a self-assessment tool
2015 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, no 11-12, p. 1489-1501Article in journal (Refereed) Published
Abstract [en]

Aims and objectivesThe aim of this study was to develop a self-assessment tool aiming to raise telenurses awareness of their communication and interpersonal competence, and highlight areas in need of improvement. BackgroundSeveral studies have revealed the need for development of communication competence in telenursing. Structured analyses of conversations with patients/callers, is one way to increase telenurses awareness of their unique communication and interpersonal competence. DesignInstrument development, Validation assessment using the method Content Validity Index. MethodThe process to determine content validity was done in two stages; the development stage and the assessment stage. The development stage started with a literature search. The assessment stage was separated into two phases, assessment by an expert group and assessment and test by telenurses. The telenurses also participated in consensus discussions. ResultsA telenursing self-assessment tool with 58 items was developed. The items were sorted into five sections according to the nursing process. ConclusionThis study describes the thorough development process of the telenursing self-assessment tool to be used by telenurses in order to become aware of their unique communication and interpersonal competence when analysing their own conversations with patients/callers. As a formative tool it is meant to provide self-direction, feedback and coaching, and create learning opportunities. Relevance to clinical practiceThe self-assessment tool helps the telenurse to follow the nursing process, to be patient-centred, and it is meant to provide self-direction, feedback, and coaching, as well as create learning opportunities. The tool can contribute to the development of communication and interpersonal competence in telephone advice nursing. Further development of the tool may provide an objective scoring instrument for evaluating communication training and education in the field.

Place, publisher, year, edition, pages
Wiley: 12 months, 2015
Keywords
clinical competence; communication; hotlines; instrument development; nurse-patient relations; self-assessment; telenursing; triage
National Category
Communication Studies
Identifiers
urn:nbn:se:liu:diva-119577 (URN)10.1111/jocn.12705 (DOI)000355331300006 ()25393698 (PubMedID)
Note

Funding Agencies|National Medical Advisory Service Ltd (in Swedish Sjukvardsradgivningen SVR AB); County Council of Ostergotland, Sweden

Available from: 2015-06-23 Created: 2015-06-22 Last updated: 2019-01-04
Strömfors, L., Falk, L., Wilhelmsson, S. & Höst, G. E. (2014). Condition-related knowledge among children and adolescents with spina bifida in a Swedish county. Scandinavian Journal of Disability Research, 16(2), 127-140
Open this publication in new window or tab >>Condition-related knowledge among children and adolescents with spina bifida in a Swedish county
2014 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 16, no 2, p. 127-140Article in journal (Refereed) Published
Abstract [en]

Spina bifida is a congenital birth defect, resulting in physical and cognitive dysfunctions. Condition-related knowledge among children and adolescents with spina bifida is essential to facilitate independent management of their condition. The aim was to describe the condition-related knowledge among children and adolescents with spina bifida in a Swedish county. Thirteen persons with spina bifida (10 to 17 years) participated. Condition-related knowledge was assessed (n = 13) using a questionnaire (KOSB) and a semi-structured interview (n = 8). Interview data were analyzed using qualitative content analysis. The participants had well-developed knowledge concerning proper bladder management, but were lacking knowledge of signs of shunt malfunctioning and etiology. Some participants were uninterested in learning about their condition, despite being aware that they lacked knowledge. The findings indicate potential areas that may be included in local educational initiatives. It should be considered that persons with spina bifida may not be motivated to learn more about their condition.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2014
Keywords
spina bifida, children, adolescents, condition knowledge, qualitative content analysis
National Category
Psychology
Identifiers
urn:nbn:se:liu:diva-84979 (URN)10.1080/15017419.2012.735202 (DOI)
Available from: 2012-10-29 Created: 2012-10-29 Last updated: 2017-12-07
Roos, S., Ingrid, H., Hallert, C. & Susan, W. (2013). Everyday life for women with celiac disease. Gastroenterology Nursing, 36(4), 266-273
Open this publication in new window or tab >>Everyday life for women with celiac disease
2013 (English)In: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 36, no 4, p. 266-273Article in journal (Refereed) Published
Abstract [en]

The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2013
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-96441 (URN)10.1097/SGA.0b013e31829ed98d (DOI)000330364800004 ()23899485 (PubMedID)
Available from: 2013-08-20 Created: 2013-08-20 Last updated: 2017-12-06Bibliographically approved
Lorefält, B. & Wilhelmsson, S. (2012). A multifaceted intervention model can give a lasting improvement of older peoples nutritional status. The Journal of Nutrition, Health & Aging, 16(4), 378-382
Open this publication in new window or tab >>A multifaceted intervention model can give a lasting improvement of older peoples nutritional status
2012 (English)In: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 16, no 4, p. 378-382Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was with a multifaceted intervention model improve the nutritional status of elderly people living in residential homes to increase their energy intake and to maintain improvements over time. less thanbrgreater than less thanbrgreater thanThree different municipal residential homes in the south-east of Sweden. less thanbrgreater than less thanbrgreater thanThe study population consisted of 67 elderly people. A within-subjects design was used which means that the participants were their own controls. less thanbrgreater than less thanbrgreater thanA multifaceted intervention model was chosen, which included education on both theoretical and practical issues, training and support for staff, and individualized snacks to the residents. less thanbrgreater than less thanbrgreater thanNutritional status was measured by Mini Nutritional Assessment (MNA), the consumption of food was recorded by the staff using a food record method for 3 consecutive days. The length of night-time fasting has been calculated from the food records. less thanbrgreater than less thanbrgreater thanNutritional status improved after 3 months of intervention and was maintained after 9 months. Weight increased during the whole study period. Night-time fasting decreased but not to the recommended level. less thanbrgreater than less thanbrgreater thanThis study shows that it is possible by a multifaceted intervention model to increase energy intake including expanding snacks and thereby improve and maintain nutritional status over a longer period in the elderly living in residential homes. This result was possible to achieve because staff received education and training in nutritional issues and by provision of support during a period when new routines were introduced.

Place, publisher, year, edition, pages
Springer Verlag (Germany), 2012
Keywords
Energy intake, nutritional status, elderly people, intervention
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-78585 (URN)10.1007/s12603-011-0362-4 (DOI)000304134500020 ()
Note

Funding Agencies|Aldrecentrum, County Council of Ostergotland, Sweden||

Available from: 2012-06-15 Created: 2012-06-15 Last updated: 2017-12-07Bibliographically approved
Roos, S., Wilhelmsson, S., Vulcan, A., Sjöberg, K. & Hallert, C. (2011). Bowel symptoms, self-image and comorbidity impact on well-being of women with coeliac disease. Journal of Nursing and Healthcare of Chronic Illness, 3(3), 302-309
Open this publication in new window or tab >>Bowel symptoms, self-image and comorbidity impact on well-being of women with coeliac disease
Show others...
2011 (English)In: Journal of Nursing and Healthcare of Chronic Illness, ISSN 1752-9816, E-ISSN 1752-9824, Vol. 3, no 3, p. 302-309Article in journal (Refereed) Published
Abstract [en]

Aim. To explore if gastrointestinal (GI) symptoms, self-image and comorbidity are related to well-being in women with coeliac disease (CD) and whether a history of CD in childhood impacts on well-being in adulthood.

Background. Women in Sweden living with CD show a reduced level of well-being and report a high rate of GI complaints for unclear reasons. The self-image of these women is unknown.

Design. A cross-sectional survey of 231 Swedish women with CD on long-term treatment (≥5 years) with a gluten-free diet (GFD) was conducted in 2010.

Results.  The study showed that well-being is related to a high rate GI symptoms (OR 16·9, 95% CI 5·6-50·7), a negative self-image (OR 8·9, 95% CI 3·5-22·9) and comorbidity (OR 3·3, 95% CI 1·7-6·4). There was no impact of childhood symptoms on well-being, GI symptoms, self-image or comorbidity in adulthood. Half of the study population showed reduced well-being compared with norms. Practically all women (97%) declared that they were always or usually following a GFD and 62% reported at least one disease besides CD.

Conclusion. The study demonstrated that the well-being of women living with CD is affected by GI complaints, self-image and a high rate of comorbidity whereas a history of signs and symptoms of CD in childhood not seems to impact on the well-being in adulthood.

Relevance to clinical practice. Gastrointestinal symptoms, self-image and comorbidity are factors contributing to a low level of well-being of CD women living on a GFD. Launching a multi-disciplinary team for follow-up would represent a novel approach to support these women and may prove valuable in improving their subjective health.

Place, publisher, year, edition, pages
Oxford: Wiley-Blackwell, 2011
Keywords
adults;comorbidity;gastrointestinal symptoms;nursing;self-image;well-being
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-71428 (URN)10.1111/j.1752-9824.2011.01104.x (DOI)
Available from: 2011-10-17 Created: 2011-10-17 Last updated: 2017-12-08Bibliographically approved
Farsi Razavi, M., Falk, L., Bjorn, A. & Wilhelmsson, S. (2011). Experiences of the Swedish healthcare system: An interview study with refugees in need of long-term health care. SCANDINAVIAN JOURNAL OF PUBLIC HEALTH, 39(3), 319-325
Open this publication in new window or tab >>Experiences of the Swedish healthcare system: An interview study with refugees in need of long-term health care
2011 (English)In: SCANDINAVIAN JOURNAL OF PUBLIC HEALTH, ISSN 1403-4948, Vol. 39, no 3, p. 319-325Article in journal (Refereed) Published
Abstract [en]

Background: Refugees needing long-term health care must adapt to new healthcare systems. The aim of this study was to examine the viewpoints of nine refugees in a county in Sweden, with a known chronic disease or functional impairment requiring long-term medical care, on their contacts with care providers regarding treatment and personal needs. Methods: Semi-structured interviews with nine individuals and/or their next of kin. Inductive content analysis was used to identify experiences. Results: "Care organisations/resources" and "professional competence" were the categories extracted. Participants felt cared for due to accessibility to and regular appointments with the same care provider. Visiting different clinics contributed to a negative experience and lack of trust. The staffs interest in participants lives and health contributed to a sense of professionalism. Most participants said the problems experienced were not related to their backgrounds as refugees. Many patients did not fully understand which clinic they were attending or the purpose of the care that the specific clinic provided. Some lacked knowledge of their disease. Conclusions: Health care was perceived as equal to other Swedish citizens and problems experienced were not explained by refugee backgrounds. Lack of information from care providers and being sent to various levels of care created feelings of a lack of overall medical responsibility.

Place, publisher, year, edition, pages
Sage, 2011
Keywords
Attitudes, content analysis, cross-cultural comparison, cultural diversity, health knowledge, physician-patient relations, practice
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-68012 (URN)10.1177/1403494811399655 (DOI)000289617600013 ()
Available from: 2011-05-06 Created: 2011-05-06 Last updated: 2015-09-22
Lorefelt, B., Andersson, A., Wiréhn, A.-B. & Wilhelmsson, S. (2011). Nutritional status and health care costs for the elderly living in municipal residential homes — An intervention study. The Journal of Nutrition, Health & Aging, 15(2), 92-97
Open this publication in new window or tab >>Nutritional status and health care costs for the elderly living in municipal residential homes — An intervention study
2011 (English)In: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 15, no 2, p. 92-97Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE:

The aim was to study the effect of individualised meals on nutritional status among older people living in municipal residential homes and to compare the results with a control group. An additional aim was to estimate direct health care costs for both groups.

SETTING:

Six different municipal residential homes in the south-east of Sweden.

PARTICIPANTS:

Older people living in three residential homes constituted the intervention group n=42 and the rest constituted the control group n=67.

INTERVENTION:

A multifaceted intervention design was used. Based on an interview with staff a tailored education programme about nutritional care, including both theoretical and practical issues, was carried through to staff in the intervention group. Nutritional status among the elderly was measured by Mini Nutritional Assessment (MNA), individualised meals were offered to the residents based on the results of the MNA. Staff in the control group only received education on how to measure MNA and the residents followed the usual meal routines.

MEASUREMENTS:

Nutritional status was measured by MNA at baseline and after 3 months. Cost data on health care visits during 2007 were collected from the Cost Per Patient database.

RESULTS:

Nutritional status improved and body weight increased after 3 months in the intervention group. Thus, primary health care costs constituted about 80% of the total median cost in the intervention group and about 55% in the control group.

CONCLUSION:

With improved knowledge the staff could offer the elderly more individualised meals. One of their future challenges is to recognise and assess nutritional status among this group. If malnutrition could be prevented health care costs should be reduced.

Place, publisher, year, edition, pages
Springer, 2011
Keywords
Malnutrition; nutritional status; elderly people; intervention; health care costs
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-75769 (URN)10.1007/s12603-011-0019-3 (DOI)000287752900002 ()
Available from: 2012-03-09 Created: 2012-03-09 Last updated: 2017-12-07Bibliographically approved
Roos, S., Wilhelmsson, S. & Hallert, C. (2011). Swedish women with coeliac disease in remission use more health care services than other women: a controlled study. Scandinavian Journal of Gastroenterology, 46(1), 13-19
Open this publication in new window or tab >>Swedish women with coeliac disease in remission use more health care services than other women: a controlled study
2011 (English)In: Scandinavian Journal of Gastroenterology, ISSN 0036-5521, E-ISSN 1502-7708, Vol. 46, no 1, p. 13-19Article in journal (Refereed) Published
Abstract [en]

Objective. To examine whether the perceived poor outcome of dietary treatment makes Swedish women with coeliac disease (CD) prone to use more health care services than other women. Material and methods. The health care consumption over 36 consecutive months was examined for 137 Swedish women aged 20-80 years with CD in remission after living on a gluten-free diet for a median of 4 years (range 1-8 years). Comparisons were made with the health care consumption of 411 women in the general population matched for age and residence. Results. The results show that women with CD use health care services annually a median of 5.0 times (range 0-76) that is more than female controls 3.6 (0-311) (p andlt; 0.05) mainly in primary care and for complaints related to mental and behavioral disorders (ICD F), diseases of the digestive system (ICD K) and diseases of the musculoskeletal system and connective tissue (ICD M). Conclusions. Women with CD used health care services in keeping with studies indicating reduced health-related quality of life of people with this condition. The results provide evidence that women with CD in remission suffer from co-morbidities that may signal a need for a multidisciplinary follow-up of subjects with CD in Sweden.

Place, publisher, year, edition, pages
Informa Healthcare, 2011
Keywords
Adults, coeliac disease, gluten-free diet, health care consumption, Sweden
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-65712 (URN)10.3109/00365521.2010.516448 (DOI)000286124300003 ()
Available from: 2011-02-18 Created: 2011-02-18 Last updated: 2017-12-11Bibliographically approved
Törnvall, E. & Wilhelmsson, S. (2010). Quality of Nursing care from the perspective of patients with leg ulcers. Journal of Wound Care, 19(9), 388-395
Open this publication in new window or tab >>Quality of Nursing care from the perspective of patients with leg ulcers
2010 (English)In: Journal of Wound Care, ISSN 0969-0700, E-ISSN 2052-2916, ISSN 0969-0700, Vol. 19, no 9, p. 388-395Article in journal (Refereed) Published
Abstract [en]

 

Objective: To investigate and analyse the quality of nursing care in a primary care setting from the perspective of patients with leg ulcers and determine the subjective importance that patients attach to various aspects of quality of care. • Method: All of the patients with leg ulcers at 15 primary care centres in the south east of Sweden were invited to participate.They were given the short version of the Quality from the Patient's Perspective questionnaire (QPP) to fill in.This included a number of closed and open questions relating to their perceptions of the quality of their nursing care and the importance of this care to them. • Results: Overall, the patients in this study perceived that the quality of nursing care was high. However, important areas for improvement were revealed, including the need for an increase in patient-focused care, continuity of care and better pain relief. • Conclusion: To address the weak points highlighted by the study, we recommend that nurses explore patient perceptions of pain in greater detail and invite patients take a more active role in the management of their leg ulcers. • Conflict of interest: None.This study was funded by the county council of Östergötland and by Linköping University, Sweden.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Objective: To investigate and analyse the quality of nursing care in a primary care setting from the perspective of patients with leg ulcers and determine the subjective importance that patients attach to various aspects of quality of care.

Method: All of the patients with leg ulcers at 15 primary care centres in the south east of Sweden were invited to participate. They were given the short version of the Quality from Patient’s Perspective questionnaire (QPP) to fill in. This included a number of closed and open questions relating to their perceptions of the quality of their nursing care and the importance of this care to them.

Results: Overall, the patients in this study perceived that the quality of nursing care was high. However, important areas for improvement were revealed, including the need for an increase in patient-focused care, continuity of care and better pain relief.

Conclusion: To address the weak points highlighted by the study, we recommend that nurses explore patient perceptions of pain in greater detail and invite patients take a more active role in the management of their leg ulcers.

Keywords
quality of care; leg ulcers; patient perspective; primary care
Identifiers
urn:nbn:se:liu:diva-66943 (URN)
Available from: 2011-03-22 Created: 2011-03-22 Last updated: 2017-12-11
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