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Örulv, Linda
Publications (10 of 13) Show all publications
Örulv, L. (2016). Självhjälpsgrupper, nätverk och aktivism (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 203-211). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Självhjälpsgrupper, nätverk och aktivism
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 203-211Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126090 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-04Bibliographically approved
Örulv, L. & Strandroos, L. (2016). Vardagsdraman på det särskilda boendet (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 79-86). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Vardagsdraman på det särskilda boendet
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 79-86Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126091 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-04Bibliographically approved
Nedlund, A.-C., Taghizadeh Larsson, A., Örulv, L. & Österholm, J. (2015). Voice: An Analytical Framework for Exploring Citizenship in Dementia Research. In: : . Paper presented at the 2015 International Conference on Claiming Full Citizenship: Self Determination, Personalization and Individualized Funding,October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC.
Open this publication in new window or tab >>Voice: An Analytical Framework for Exploring Citizenship in Dementia Research
2015 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

We will present voice as an analytical framework to enhance the problematization and investigation of citizenship for people living with dementia. We will also discuss the strengths and the potential of using such a framework when doing research on citizenship in general, and more specifically, for people living with dementia. The analytical framework that we will propose focuses on the multiple accounts of voice in use. Thus, the framework does not only embrace the issue of "whose voices?", but also the various ways voice has been conceptualised, framed and understood in different theoretical and empirical contexts as well as how these together in different ways have the potential to shed light on the possibility for people with dementia to remain participative actors in their neighbourhood, in society and furthermore, to have the opportunity to claim full citizenship.

National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-124431 (URN)
Conference
the 2015 International Conference on Claiming Full Citizenship: Self Determination, Personalization and Individualized Funding,October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC
Projects
Medborgarskap och demens, CEDER
Available from: 2016-01-31 Created: 2016-01-31 Last updated: 2018-05-16
Örulv, L. (2014). The subjectivity of disorientation: moral stakes and concerns. In: Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier (Ed.), Beyond Loss: dementia, identity, personhood (pp. 191-207). Oxford: Oxford University Press
Open this publication in new window or tab >>The subjectivity of disorientation: moral stakes and concerns
2014 (English)In: Beyond Loss: dementia, identity, personhood / [ed] Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier, Oxford: Oxford University Press, 2014, p. 191-207Chapter in book (Refereed)
Abstract [en]

This collection of interdisciplinary essays by international researchers tries to see beyond the loss in dementia, exploring it as transformation and change of personhood and identity that typically is embedded in social life. The chapters identify three important themes: persons and personhood, identity and agency, and the social and the communal.

Place, publisher, year, edition, pages
Oxford: Oxford University Press, 2014
Keywords
Dementia, Alzheimer's disease., Identity (Psychology), Self (Philosophy), Demens, Alzheimers sjukdom, Identitet (psykologi)
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-91269 (URN)9780199969265 (ISBN)
Available from: 2013-04-18 Created: 2013-04-18 Last updated: 2018-01-11Bibliographically approved
Hydén, L.-C., Plejert, C., Samuelsson, C. & Örulv, L. (2012). Feedback and common ground in conversational storytelling involvning people with Alzheimer's disease. Journal of Interactional Research in Communication Disorders/Equinox, 4(2), 211-247
Open this publication in new window or tab >>Feedback and common ground in conversational storytelling involvning people with Alzheimer's disease
2012 (English)In: Journal of Interactional Research in Communication Disorders/Equinox, ISSN 2040-5111, E-ISSN 2040-512X, Vol. 4, no 2, p. 211-247Article in journal (Refereed) Published
Abstract [en]

The present article focuses on feedback in storytelling involving people with Alzheimer’s disease (AD), and how feedback is related to the ways participants establish a common ground (Clark 1996) in interaction. The establishment of common ground is important in all kinds of interaction and becomes an especially intricate process if participants have AD, since the achievement of common ground requires the ability to draw from knowledge and experiences relating to past as well as present events; an ability that is often hampered by the disease. Analyses show that other aspects than the actual content of the conversation are important for the participants – for instance being together, supporting the positive identities both presented in the story and embodied in the socially rewarding activity that they manage to engage in, implying that the participants create and sustain a common ground not so much about the story-layer as of the storytelling activity.

Place, publisher, year, edition, pages
Equinox Publishing, 2012
National Category
Humanities and the Arts Medical and Health Sciences General Language Studies and Linguistics
Identifiers
urn:nbn:se:liu:diva-98070 (URN)
Funder
Riksbankens Jubileumsfond, M10-0187:1
Available from: 2013-09-27 Created: 2013-09-27 Last updated: 2018-01-11Bibliographically approved
Örulv, L. (2012). Reframing dementia in Swedish self-help group conversations: Constructing citizenship. International journal of self help & self care, 6(1), 9-41
Open this publication in new window or tab >>Reframing dementia in Swedish self-help group conversations: Constructing citizenship
2012 (English)In: International journal of self help & self care, ISSN 1091-2851, E-ISSN 1541-4450, Vol. 6, no 1, p. 9-41Article in journal (Refereed) Published
Abstract [en]

This study explores on a micro-level the activity of a self-help group for persons with dementia in Swedish municipal care, based on audio-recordings from 18 months' ethnographic fieldwork. The study focuses on the discursive construction of a shared meaning perspective and its inherent possibilities for liberation. Applying a citizenship perspective, the study approaches people with dementia as vulnerable to marginalization while at the same time capable of agency within the boundaries of their condition. The findings paint a complex picture involving opportunities and limitations of experiential knowledge, issues of double stigmatization, and constructs of being interrelated with other people and with the surrounding society. In the center is the overarching struggle of retaining citizenship in the face of the evolving disease.

Place, publisher, year, edition, pages
Baywood Publishing Company, Inc., 2012
Keywords
Dementia, citizenship, self-help groups, mutual support, meaning perspective, experiential knwoledge, discourse, Sweden
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-72831 (URN)10.2190/SH.6.1.c (DOI)
Available from: 2011-12-08 Created: 2011-12-08 Last updated: 2018-10-03Bibliographically approved
Örulv, L. (2011). Demens: diagnosen som utmanar våra rädslor och fördomar. In: Georg Drakos, Lars-Christer Hydén (Ed.), Diagnos & identitet: (pp. 100-129). Stockholm: Gothia Förlag AB
Open this publication in new window or tab >>Demens: diagnosen som utmanar våra rädslor och fördomar
2011 (Swedish)In: Diagnos & identitet / [ed] Georg Drakos, Lars-Christer Hydén, Stockholm: Gothia Förlag AB, 2011, p. 100-129Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Gothia Förlag AB, 2011
Keywords
diagnos, identitet, kollektiv identitet, demens, kognitiv svikt, föreställningar, förväntningar, upplevelser, levd erfarenhet, vardag, mening, kulturbundna rädslor, stigma, skam, osäkerhet, tid, kontroll, hantera, stöd, ömsesidighet, sociokulturellt perspektiv, etnografi, samtal
National Category
Social Sciences
Identifiers
urn:nbn:se:liu:diva-72832 (URN)9789172057807 (ISBN)
Projects
Demens och person, FAS dnr 2008-0334
Available from: 2011-12-08 Created: 2011-12-08 Last updated: 2015-08-21Bibliographically approved
Örulv, L. (2010). Placing the place, and placing oneself within it: (dis)orientation and (dis)continuity in dementia. Dementia, 9, 21-44
Open this publication in new window or tab >>Placing the place, and placing oneself within it: (dis)orientation and (dis)continuity in dementia
2010 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 9, p. 21-44Article in journal (Refereed) Published
Abstract [en]

Disorientation as experienced by persons with progressive dementia diseases involves both existential and social dimensions. Based on video observations from a small residential care unit and exploring social interaction on a micro-level, this case study focuses on how a woman with vascular dementia actively tries to make sense of an everyday lunch situation. The analysis addresses strategies used by her to contextualize where she has ended up, and also how the meaning of the place is altered in communication. Findings point to social interaction between residents as an important resource to help maintain continuity with previous social life. However, there also seems to be an impending need for caregivers to help residents patch up their broken life-stories to render everyday situations comprehensible and the setting socially meaningful. Helping them find a way of placing themselves within it — also affording a positive self-identity and continuity with previous life history — is a major challenge in daily care.

Place, publisher, year, edition, pages
Sage Publications, 2010
National Category
Social Sciences
Identifiers
urn:nbn:se:liu:diva-13252 (URN)10.1177/1471301210364449 (DOI)
Available from: 2008-05-06 Created: 2008-05-06 Last updated: 2017-12-13Bibliographically approved
Hydén, L.-C. & Örulv, L. (2009). Narrative and identity in Alzheimer’s disease: a case study. Journal of Aging Studies, 23(4), 205-214
Open this publication in new window or tab >>Narrative and identity in Alzheimer’s disease: a case study
2009 (English)In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 23, no 4, p. 205-214Article in journal (Refereed) Published
Abstract [en]

In this case study, focus is on how persons with AD use their remaining linguistic and cognitive resources, together with non-verbal aspects of the storytelling event, as resources in communicating and negotiating their identities in everyday encounters. The results of the analysis, focusing on the telling of the stories, indicate that other aspects than the temporal and referential organization of the narratives has become important resources for the teller in establishing and negotiating identity. The telling of temporally discontinuous narratives does not appear to affect or disrupt the teller's experience of some sort of a continuous sense of self and identity but are probably more a problem to persons without this kind of diagnosis. Being afflicted by AD most likely leads persons to try to invent and use alternative communicative recourses in order to sustain factors like their senses of self and identities. For researchers this makes it important to try to base their analysis on the actual organization of the talk and to focus on the functions of various responses and utterances in the interaction.

Keywords
identity, narrative, Alzheimer’s disease, performance, story-telling
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-13253 (URN)10.1016/j.jaging.2008.01.001 (DOI)
Available from: 2008-05-06 Created: 2008-05-06 Last updated: 2017-12-13
Örulv, L. (2008). Fragile identities, patched-up worlds: Dementia and meaning-making in social interaction. (Doctoral dissertation). Linköping: Linköping University Electronic Press
Open this publication in new window or tab >>Fragile identities, patched-up worlds: Dementia and meaning-making in social interaction
2008 (English)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[sv]
Fragila identiteter och en hoplappad värld : Demens och meningsskapande i socialt samspel
Abstract [sv]

Denna avhandling fokuserar på det meningsskapande och begripliggörande som fortgår vid tilltagande demenssjukdom, i det sociala samspelet, och de utmaningar för demens-omsorgen som detta innebär. Studien är aktörsorienterad och adresserar frågan om hur personer med åldersrelaterade progressiva demenssjukdomar i den vardagliga kommuni-kationen söker förstå sina situationer, omgivningen och sina liv – alltsammans inom ra-men för det dagliga samspelet på ett demensboende. Av särskilt intresse är hur dessa per-soner hanterar problem som har att göra med att handla tillsammans med andra i en gemensamt delad värld och hitta sin roll i det pågående samspelet, och hur de etablerar och upprätthåller en identitet i detta samspel. Detta trots svåra minnesproblem, desorien-tering i tid och rum, olika sätt att förstå den pågående situationen samt svårigheter att be-rätta om sina liv på ett sätt som både stämmer överens med biografiska data och har en tillfredsställande temporal organisering. Avhandlingen adresserar också frågan om hur omsorgspersonalen kan hantera det komplexa samspelet mellan de boende i den dagliga omsorgen, med avseende på att upprätthålla och respektera dessa personers värdighet.

Studien ansluter till en växande tradition av att studera interaktion vid demens som meningsbaserad och situerad i en kontext snarare än enbart som beteende som orsakas av kognitiva svårigheter. Metodologiskt är studien etnografisk och bygger på observationer fördelade över en tidsperiod av sex månader. Materialet, som består av ca 150 h videoma-terial och kompletterande fältanteckningar, möjliggör att samspelet studeras både i detalj och i relation till det större sammanhang som det ingår i.

Studien visar på kvarvarande kompetenser och bidrar med ny kunskap om strategier som personerna med demens använder sig av i ett aktivt, kreativt och på många sätt ratio-nellt meningsskapande i det sociala samspelet med andra människor. Detta diskuteras i termer av resurser för demensomsorgen i relation till den stora utmaning som det innebär att lappa ihop och upprätthålla en begriplig och socialt delad värld, samt upprätthålla kon-tinuitet med personernas livshistorier på ett sätt som möjliggör en önskad identitet.

Abstract [en]

This thesis focuses on the identity work and the meaning- or sense-making that continue in the face of evolving dementia diseases, in social interaction, and the challenges for care this involves. The study adopts an actor-oriented approach and addresses the question of how persons with age-related progressive dementia diseases in everyday communication make sense of their situations, their surroundings, and their lives – all within the context of daily life in residential care. Of particular interest is how these persons handle issues of joint action in a shared world and how they establish and maintain an identity in the inte-raction. This is in spite of severe memory problems, disorientation in time and space, dif-fering understandings of the current situation, and difficulties in telling “accurate” and temporally ordered stories about their lives. The thesis also addresses the question of how caregivers may handle the complex interplay between residents in daily care, in maintain-ing and respecting these persons’ dignity.

The study follows a growing tradition of studying interaction in dementia as mean-ing-based and situated in a context rather than merely as behavior caused by cognitive impairment. Methodologically, this is an ethnographic study based on observations made within a period of six months. The data consist of around 150 hours of video recordings and complementary field notes. This extensive material has made it possible to study the social interaction both in detail and situated in a larger context.

The findings point to remaining competences and strategies that persons with demen-tia use actively and creatively in the ongoing interaction – and, given the premises, often in a rational way. This is discussed in terms of resources for dementia care, in relation to the great challenge of patching up and putting together a comprehensive socially shared world as well as maintaining continuity with the persons’ previous life histories in a way that preserves a positive self-identity.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2008. p. 108 + papers A-D
Series
Linköping Studies in Arts and Science, ISSN 0282-9800 ; 428Linköping Dissertations on Health and Society, ISSN 1651-1646 ; 12
Keywords
Alzheimer’s disease, communication, confabulation, context, continuity, dignity, disorientation, ethnographic methods, ethnography, identity, life history, life story, meaning, microethics, narrative, progressive dementia diseases, sense-making, social interaction, storytelling, vascular dementia, Alzheimers sjukdom, berättande, desorientering, etnografiska metoder, identitet, kommunikation, konfabulering, kontext, kontinuitet, livsberättelse, mening, mikroetik, narrativ, progressiva demenssjukdomar, samspel, social interaktion, vaskulärdemens, värdighet
National Category
Communication Studies
Identifiers
urn:nbn:se:liu:diva-11736 (URN)978-91-7393-929-4 (ISBN)
Public defence
2008-04-25, Aulan, Hus 240, Campus US, Linköpings universitet, Linköping, 13:15 (English)
Opponent
Supervisors
Available from: 2008-05-06 Created: 2008-05-06 Last updated: 2014-09-24Bibliographically approved
Organisations

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