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Sernheim, Å.-S., Hemmingsson, H., Witt Engerström, I. & Liedberg, G. (2018). Activities that girls and women with Rett syndrome liked or did ot like to do. Scandinavian Journal of Occupational Therapy, 25(4), 267-277
Open this publication in new window or tab >>Activities that girls and women with Rett syndrome liked or did ot like to do
2018 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 25, no 4, p. 267-277Article in journal (Refereed) Published
Abstract [en]

Objective: Activities occur in all people’s lives. This study investigated over a period of time, 15 years, what activities were enjoyed or not enjoyed and what activities parents and staff liked to do with girls/women with Rett syndrome.

Method: A descriptive study was conducted using secondary data from three earlier questionnaires at the Swedish National Rett Center. The first questionnaire provided data on 123 girls/women with Rett syndrome, the second on 52 and the third questionnaire, on 39. Informants were parents and/or staff, in total 365. Open-ended questions were analysed using a content analysis approach.

Results: Three categories appeared: Being in motion, receiving impressions and having contact. Bathing/swimming, listening to music and being outdoors/walking were the most enjoyed activities over the years. Of the few activities that were reported as being unenjoyable, most were daily care activities. The activities that the parents/staff enjoyed doing with the girls/women were similar to those the girls/women themselves liked to do.

Conclusion: A preliminary overview for both liked and disliked activities of girls/women with Rett syndrome was presented. This knowledge could facilitate the choice and use of activities.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keywords
Activities of daily living, human activities, human development, neurodevelopmental disorders, qualitative research
National Category
Health Sciences
Identifiers
urn:nbn:se:liu:diva-136247 (URN)10.1080/11038128.2016.1250812 (DOI)000436878200005 ()27817243 (PubMedID)2-s2.0-84994304785 (Scopus ID)
Available from: 2017-04-03 Created: 2017-04-03 Last updated: 2018-07-26Bibliographically approved
Karlsson, E., Liedberg, G. & Sandqvist, J. (2018). Initial evaluation of psychometric properties of a structured work task application for the Assessment of Work Performance in a constructed environment. Disability and Rehabilitation, 40(21), 2585-2591
Open this publication in new window or tab >>Initial evaluation of psychometric properties of a structured work task application for the Assessment of Work Performance in a constructed environment
2018 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, no 21, p. 2585-2591Article in journal (Refereed) Published
Abstract [en]

Purpose: The Swedish Social Insurance Administration has developed a new assessment tool for sickness insurance. This study is a part of the initial evaluation of the application, called the Assessment of Work Performance, Structured Activities, and focuses on evaluation of the psychometric properties of social validity, content validity, and utility.

Materials and methods: This was a qualitative study using semi-structured telephone interviews with occupational therapists. A convenience sample was used and participants who fulfilled inclusion criteria (n = 15) were interviewed. Data were analyzed using content analysis with a directed approach.

Results: The results indicate that the application provides valuable information and that it is socially valid. Assessors found work tasks suitable for a diverse group of clients and reported that clients accepted the assessments. Improvements were suggested, for example, expanding the application with more work tasks.

Conclusion: The instrument has benefits; however, further development is desired. The use of a constructed environment in assessments may be a necessary option to supplement a real environment. But depending on organizational factors such as time and other resources, the participants had different opportunities to do so. Further evaluations regarding ecological validity are essential to ensure that assessments are fair and realistic when using constructed environments.

  • Implications for rehabilitation
  • This study indicates that assessment in a constructed environment can provide a secure and protected context for clients being assessed.

  • Psychometric evaluations are a never-ending process and this assessment instrument needs further development. However, this initial evaluation provides guidance in development of the instrument but also what studies to give priority to.

  • It is important to evaluate social validity in order to ensure that clients and assessors perceive assessment methods fair and meaningful. In this study, participants found the work tasks appropriate and usable when assessing their clients but client’s perspective must also be included in following studies.

  • This assessment instrument is the only activity-based assessment instrument within the Swedish Social Security Insurance. Psychometric evaluations are important since it affects so many individuals in Sweden.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keywords
Occupational therapy, vocational rehabilitation, Return to Work, Model of Human Occupation, instrument development
National Category
Occupational Therapy
Identifiers
urn:nbn:se:liu:diva-141984 (URN)10.1080/09638288.2017.1342279 (DOI)000446621800014 ()2-s2.0-85021222024 (Scopus ID)
Available from: 2017-10-16 Created: 2017-10-16 Last updated: 2018-10-30Bibliographically approved
Liedberg, G. M. (2017). Occupational life trajectories in the context of chronic pain and immigration. In: : . Paper presented at 7th Association of South-East Asian Pain Societies Congress, Yangon, Myanmar.
Open this publication in new window or tab >>Occupational life trajectories in the context of chronic pain and immigration
2017 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Health Sciences
Identifiers
urn:nbn:se:liu:diva-135793 (URN)
Conference
7th Association of South-East Asian Pain Societies Congress, Yangon, Myanmar
Available from: 2017-03-22 Created: 2017-03-22 Last updated: 2017-03-22
Liedberg, G. & Björk, M. (2017). Pain, self-efficacy, anxiety, and quality of life are central for a bad or good night's sleep in persons with fibromyalgia. In: : . Paper presented at 7th Association of South-East Asian Pain Societies Congress February 16-19, Yangon, Myanmar.
Open this publication in new window or tab >>Pain, self-efficacy, anxiety, and quality of life are central for a bad or good night's sleep in persons with fibromyalgia
2017 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Health Sciences
Identifiers
urn:nbn:se:liu:diva-135791 (URN)
Conference
7th Association of South-East Asian Pain Societies Congress February 16-19, Yangon, Myanmar
Available from: 2017-03-22 Created: 2017-03-22 Last updated: 2017-03-27
Mårtensson, L. & Liedberg, G. (2016). Occupational life trajectories in the context of chronic pain and immigration. Scandinavian Journal of Occupational Therapy, 23(5), 383-390
Open this publication in new window or tab >>Occupational life trajectories in the context of chronic pain and immigration
2016 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 23, no 5, p. 383-390Article in journal (Refereed) Published
Abstract [en]

Background Persons with chronic pain report a range of occupational problems. The specific health needs of immigrants are judged to be poorly understood, and health systems are not prepared to respond adequately. Being an immigrant is regarded as a risk factor for the progression of chronic widespread pain into a state of disability. Objectives To explore occupational life trajectories among immigrant women with chronic pain. Material and methods A qualitative content analysis was used to capture the latent meaning of experiences in individual interviews of eight women with immigrant background and chronic pain. Results An overarching theme, 'making the best of a conditional situation', representing the women's occupational life trajectories, covers the content of two categories: 'being controlled', including affected self-perception, social relations, and future prospects, and 'trying to deal with challenges', comprising a focus on resources, having trust in one's own judgements and getting help from others. Conclusion and significance The experiences demonstrate an occupational life controlled by internal and external factors and may be understood as a disrupted occupational life trajectory. This knowledge may be helpful to occupational therapists supporting immigrant women's attempts to regain a structured life despite the constant presence of pain.

Keywords
activities of daily living, long-term pain, migrant, occupational theray, qualitative method
National Category
Occupational Therapy
Identifiers
urn:nbn:se:liu:diva-124545 (URN)10.3109/11038128.2015.1130167 (DOI)000382173600007 ()26757859 (PubMedID)
Available from: 2016-02-02 Created: 2016-02-02 Last updated: 2017-04-24
Liedberg, G. & Persson, E. (2015). Arbetsterapeutens roll vid rehabilitering av personer med långvarig smärta (1:1ed.). In: Jörgen Borg, Kristian Borg, Björn Gerdle och Katharina Stibrant Sunnerhagen (Ed.), Rehabiliteringsmedicin. Teori och praktik: (pp. 146-149). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Arbetsterapeutens roll vid rehabilitering av personer med långvarig smärta
2015 (Swedish)In: Rehabiliteringsmedicin. Teori och praktik / [ed] Jörgen Borg, Kristian Borg, Björn Gerdle och Katharina Stibrant Sunnerhagen, Lund: Studentlitteratur AB, 2015, 1:1, p. 146-149Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2015 Edition: 1:1
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-127997 (URN)978-91-44-10196-5 (ISBN)
Available from: 2016-05-16 Created: 2016-05-16 Last updated: 2016-05-24
Gustavsson, M., Liedberg, G. & Larsson Ranada, Å. (2015). Everyday doings in a nursing home - described by residents and staff. Scandinavian Journal of Occupational Therapy, 22(6), 435-441
Open this publication in new window or tab >>Everyday doings in a nursing home - described by residents and staff
2015 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 22, no 6, p. 435-441Article in journal (Refereed) Published
Abstract [en]

Objective: For many groups of elderly people it is important to be active, which can be hindered by disabilities that come with age. Research has progressed in this area but mostly concerns the elderly living at home. The aim of this study was to examine how residents and staff at a nursing home described the residents everyday doings. Methods: A nursing home was selected in which 15 of the residents and six of the staff were interviewed about the residents activities during an ordinary day and week. Results: The material was analysed using qualitative content analysis in which two categories emerged: shared doings and individual doings. The shared doings were important for supporting the residents in their social and physical activities, but participation in these was often hampered by reduced functions. The individual doings, where the residents own interests can be promoted, were also hampered by their disabilities. Being able to be active and having something to do were emphasized, either continuing with previous activities or participating in shared activities at the nursing home. Conclusions: Receiving care and being forced to adjust to the context at the nursing home had a significant impact on the residents daily doings. Most of the residents needed help to be able to continue performing their activities or to find new ones. The social environment consisting of other residents and staff also influenced the residents activities.

Place, publisher, year, edition, pages
TAYLOR and FRANCIS LTD, 2015
Keywords
qualitative method; participation; occupational therapy; aged; activity
National Category
Sociology
Identifiers
urn:nbn:se:liu:diva-121933 (URN)10.3109/11038128.2015.1044907 (DOI)000361328200004 ()26018609 (PubMedID)
Available from: 2015-10-13 Created: 2015-10-12 Last updated: 2017-12-01
Schaller, A., Larsson, B., Lindblad, M. & Liedberg, G. M. (2015). Experiences of Pain: A Longitudinal, Qualitative Study of Patients with Head and Neck Cancer Recently Treated with Radiotherapy. Pain Management Nursing, 16(3), 336-345
Open this publication in new window or tab >>Experiences of Pain: A Longitudinal, Qualitative Study of Patients with Head and Neck Cancer Recently Treated with Radiotherapy
2015 (English)In: Pain Management Nursing, ISSN 1524-9042, E-ISSN 1532-8635, Vol. 16, no 3, p. 336-345Article in journal (Refereed) Published
Abstract [en]

It is not unusual for patients with head and neck cancer (HNC) to suffer from both tumor- and treatment-related pain that is difficult to alleviate despite individualized pain management. The aim of this qualitative study was to describe how HNC patients experience pain and how pain influences those who are treated with radiotherapy (RT). Qualitative semistructured interviews were performed 1 and 6 months after patients completed RT. The interviews addressed symptoms, moods, and suffering. The study included 26 patients with HNC who had recently completed RT. The interviews were analyzed using manifest content analysis. The main category was: HNC patients did not report that their severe physical pain influenced their psychological suffering, but it did influence their social lives. Furthermore, four categories were revealed: pain in the head and neck region, overwhelming fatigue, altered mood and preoccupied mind, and decreased participation and changed relationships. Physical pain, psychological distress, and social withdrawal were prominent at both interviews and consequently their situation can be considered as chronic. Remarkably, patients did not express a clear relationship between pain and psychological load. This may imply a biomedical view of pain or may reflect the difficult situation patients were in (i.e., facing a possibly life-threatening cancer). Thus, their situation might require a prioritization and might negatively affect the possibility of identifying the interaction between the different pain dimensions. The biopsychosocial model of chronic pain aims to understand the interaction between pain and psychosocial factors. Interventions aiming to teach patients with HNC how to internalize the biopsychosocial model framework to manage pain could be useful and should be evaluated in future research.

National Category
Basic Medicine
Identifiers
urn:nbn:se:liu:diva-115363 (URN)10.1016/j.pmn.2014.08.010 (DOI)000355212500022 ()25532691 (PubMedID)
Available from: 2015-03-13 Created: 2015-03-13 Last updated: 2018-04-13
Hesselstrand, M., Samuelsson, K. & Liedberg, G. (2015). Occupational Therapy Interventions in Chronic Pain - A Systematic Review. Occupational Therapy International, 22(4), 183-194
Open this publication in new window or tab >>Occupational Therapy Interventions in Chronic Pain - A Systematic Review
2015 (English)In: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 22, no 4, p. 183-194Article, review/survey (Refereed) Published
Abstract [en]

The use of interventions based on the best available evidence in occupational therapy is essential, and evaluation of research is part of an evidence-based practice. The aim of this study was to assess the quality of studies describing and evaluating the effects of occupational therapy interventions on chronic pain. A systematic review of studies with diverse designs was carried out. A quality assessment was conducted, and the level of evidence was defined using the Research Pyramid Model. Of 19 included studies, three received the highest evidence level, and three were considered to be of high quality. The clinical recommendations that can be derived from this study are the following: occupational therapy interventions should start from the identified needs of the person with chronic pain; no support exists for the effectiveness of electromyographic biofeedback training as a supplement, more studies are needed to confirm this result; the efficacy of instructions on body mechanics was significant during work-hardening treatment; and occupational therapists need to perform and present more clinical studies of high quality and high-evidence level to build up a trustworthy arsenal of evidence-based interventions, for example, in persons with chronic pain. Copyright (C) 2015 John Wiley & Sons, Ltd.

Place, publisher, year, edition, pages
WILEY-BLACKWELL, 2015
Keywords
evidence-based practice; outcome; quality assessment; rehabilitation
National Category
Sociology
Identifiers
urn:nbn:se:liu:diva-124505 (URN)10.1002/oti.1396 (DOI)000367827300003 ()26076994 (PubMedID)
Available from: 2016-02-02 Created: 2016-02-01 Last updated: 2017-11-30
Liedberg, G., Björk, M. & Börsbo, B. (2015). Self-reported nonrestorative sleep in fibromyalgia - relationship to impairments of body functions, personal function factors, and quality of life. Journal of Pain Research, 8, 499-505
Open this publication in new window or tab >>Self-reported nonrestorative sleep in fibromyalgia - relationship to impairments of body functions, personal function factors, and quality of life
2015 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 8, p. 499-505Article in journal (Refereed) Published
Abstract [en]

Purpose: The purpose of this study was: 1) to determine variables that might characterize good or bad sleep; and 2) to describe the relationship between sleep, impairment of body functions, personal function factors, and quality of life based on quality of sleep in women with fibromyalgia (FM). Methods: This cross-sectional descriptive study included 224 consecutive patients diagnosed at a specialist center. These patients were mailed a questionnaire concerning sleep, body functions, personal factors, and health-related quality of life. In total, 145 completed questionnaires were collected. Results: Using sleep variables (sleep quality, waking up unrefreshed, and tiredness when getting up), we identified two subgroups - the good sleep subgroup and the bad sleep subgroup - of women with FM. These subgroups exhibited significantly different characteristics concerning pain intensity, psychological variables (depressed mood, anxiety, catastrophizing, and self-efficacy), impairments of body functions, and generic and health-related quality of life. The good sleep subgroup reported a significantly better situation, including higher employment/study rate. The bad sleep subgroup reported a greater use of sleep medication. Five variables determined inclusion into either a good sleep or a bad sleep subgroup: pain in the evening, self-efficacy, anxiety, and according to the Short Form health survey role emotional and physical functioning. Conclusion: This study found that it was possible to identify two subgroups of women with FM based on quality of sleep variables. The two subgroups differed significantly with respect to pain, psychological factors, impairments of body functions, and perceived quality of life, where the subgroup with bad sleep had a worse situation.

Place, publisher, year, edition, pages
DOVE MEDICAL PRESS LTD, 2015
Keywords
activities of daily living; chronic pain; sleep disturbance
National Category
Sociology Basic Medicine
Identifiers
urn:nbn:se:liu:diva-123172 (URN)10.2147/JPR.S86611 (DOI)000364719900001 ()26300656 (PubMedID)
Available from: 2015-12-06 Created: 2015-12-04 Last updated: 2018-01-10
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2980-2835

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