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Hellström, Ingrid
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Publications (10 of 41) Show all publications
Österlind, J., Ternestedt, B.-M., Hansebo, G. & Hellström, I. (2017). Feeling lonely in an unfamiliar place: older peoples experiences of life close to death in a nursing home. International Journal of Older People Nursing, 12(1), Article ID e12129.
Open this publication in new window or tab >>Feeling lonely in an unfamiliar place: older peoples experiences of life close to death in a nursing home
2017 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 12, no 1, article id e12129Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to deepen the understanding of how older persons living in a nursing home experience life close to death.

Place, publisher, year, edition, pages
John Wiley & Sons, 2017
Keywords
end-of-life care; nursing home care; older people; palliative care; transition
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-145579 (URN)10.1111/opn.12129 (DOI)000405747300008 ()27624362 (PubMedID)
Available from: 2018-03-20 Created: 2018-03-20 Last updated: 2018-03-20
Hellström, I. & Hydén, L.-C. (Eds.). (2016). Att leva med demens (1ed.). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Att leva med demens
2016 (Swedish)Collection (editor) (Other academic)
Abstract [sv]

För att personer med demenssjukdom ska kunna leva ett fullgott liv behövs mer kunskap. I grunden handlar det om att förändra föreställningar och attityder till personer som lever med en demenssjukdom så att personerna själva, deras anhöriga och personal inom hälso- och sjukvården och politiker, kan se nya möjligheter i stället för enbart förluster. I den här boken presenteras kunskap och forskning som sätter personer med demenssjukdom i centrum. Boken utgår alltså inte i första hand från vården eller anhöriga, utan från dem som lever med sjukdomen. På så sätt skapas en tankeram som ger stöd vid både utvecklingsarbete och reflektion bland människor som på olika sätt arbetar med och för personer med demenssjukdom.

Cirka 110 000 och 170 000 svenskar har i dag en demenssjukdom. Om ett tiotal år är det betydligt fler: ökad livslängd och en större medvetenhet om demenssjukdomar gör att allt fler personer får en diagnos tidigt i förloppet. Som en konsekvens av detta kommer alltfler personer att leva med en demenssjukdom under lång tid, och ofta i hemmet. Detta innebär inte bara en utmaning för vård, omsorg och socialpolitik, utan väcker också frågor som berör såväl personer med demens, som anhöriga och andra i det sociala nätverket: Hur kan personer med demens leva och fungera i sitt hem tillsammans med eventuella familjemedlemmar? Hur kan de fungera som medborgare och delta i samhällslivet, ha makt över sitt eget vardagsliv och fatta egna beslut om sitt eget liv?

I boken medverkar forskare från Centrum för demensforskning (CEDER) vid Linköpings universitet. Den innehåller många pedagogiska exempel och riktar sig till utbildningar inom vård, omvårdnad, socialt arbete och omsorg.

Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016. p. 240 Edition: 1
Keywords
Dementia, Cognition disorders, Demenssjuka, Demens, Hjärnsjukdomar
National Category
Social Sciences Interdisciplinary Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-123704 (URN)9789140691651 (ISBN)
Available from: 2016-01-08 Created: 2016-01-08 Last updated: 2018-01-10Bibliographically approved
Nilsson, E. & Hellström, I. (2016). Demens och identitet i relationer (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 71-77). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Demens och identitet i relationer
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 71-77Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126087 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-04Bibliographically approved
Bielsten, T. & Hellström, I. (2016). Den bortglömda kroppen (1ed.). In: Ingrid Hellström & Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 97-103). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Den bortglömda kroppen
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström & Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 97-103Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126081 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-08-23
Hedman, R., Hansebo, G., Ternestedt, B.-M., Hellström, I. & Norberg, A. (2016). Expressed Sense of Self by People With Alzheimers Disease in a Support Group Interpreted in Terms of Agency and Communion. Journal of Applied Gerontology, 35(4), 421-443
Open this publication in new window or tab >>Expressed Sense of Self by People With Alzheimers Disease in a Support Group Interpreted in Terms of Agency and Communion
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2016 (English)In: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523, Vol. 35, no 4, p. 421-443Article in journal (Refereed) Published
Abstract [en]

The self is constructed in cooperation with other people and social context influences how people perceive and express it. People with Alzheimers disease (AD) often receive insufficient support in constructing their preferred selves, but little is known about how they express themselves together with other people with AD. In accordance with Harres social constructionist theory of self, this study aimed to describe how five people with mild and moderate AD express their Self 2 (i.e., their personal attributes and life histories) in a support group with a facilitator experienced in communicating with people with AD. The participants expressions of their Self 2 were analyzed with qualitative abductive content analysis and interpreted in terms of agency and communion and a lack of agency and communion. The findings highlight the importance of supporting a sense of agency and communion when assisting people with AD in constructing their self.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS INC, 2016
Keywords
self; Alzheimers disease; agency; communion; support group
National Category
Sociology
Identifiers
urn:nbn:se:liu:diva-126798 (URN)10.1177/0733464814530804 (DOI)000371695800004 ()24776791 (PubMedID)
Note

Funding Agencies|Oscar and Maria Ekman Foundation; Ersta Diakoni; Dementia Association-The National Association for the Rights of the Demented; Swedish Order of St. John; Erling-Persson Family Foundation

Available from: 2016-04-07 Created: 2016-04-05 Last updated: 2017-04-21
Ekdahl, A. W., Odzakovic, E. & Hellström, I. (2016). LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY. The Journal of Nutrition, Health & Aging, 20(3), 275-279
Open this publication in new window or tab >>LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY
2016 (English)In: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 20, no 3, p. 275-279Article in journal (Refereed) Published
Abstract [en]

Objectives: To investigate the correlation between MMSE <= 23 and the presence of a diagnosis of dementia in the medical record in a population with multimorbidity. Design, setting, and participants: This cross-sectional study was part of the Ambulatory Geriatric Assessment - a Frailty Intervention Trial (AGe-FIT; N = 382). Participants were community dwelling, aged >= 75 years, had received inpatient hospital care at least three times during the past 12 months, and had three or more concomitant diagnoses according to the International Classification of Diseases, 10th revision. Measurements: The Mini Mental State Examination (MMSE) was administered at baseline. Medical records of participants with MMSE scores < 24 were examined for the presence of dementia diagnoses and two years ahead. Results: Fifty-three (16%) of 337 participants with a measure of MMSE had a MMSE scores < 24. Six of these 53 (11%) participants had diagnoses of dementia (vascular dementia, n = 4; unspecified dementia, n = 1; Alzheimers disease, n = 1) according to medical records; 89% did not. Conclusions: A MMSE-score < 24 is not well correlated to a diagnosis of dementia in the medical record in a population of elderly with multimorbidity. This could imply that cognitive decline and the diagnosis of dementia remain undetected in older people with multimorbidity. Proactive care of older people with multimorbidity should focus on cognitive decline to detect cognitive impairment and to provide necessary help and support to this very vulnerable group.

Place, publisher, year, edition, pages
SPRINGER FRANCE, 2016
Keywords
Multimorbidity; cognitive decline; dementia; under-diagnosis
National Category
Geriatrics
Identifiers
urn:nbn:se:liu:diva-128973 (URN)10.1007/s12603-015-0580-2 (DOI)000374701800006 ()26892576 (PubMedID)
Available from: 2016-06-09 Created: 2016-06-07 Last updated: 2017-11-30
Hellström, I. (2016). Vardag och samspel hemma eller på hemmet (1ed.). In: Ingrid Hellström & Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 51-53). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Vardag och samspel hemma eller på hemmet
2016 (Swedish)In: Att leva med demens / [ed] Ingrid Hellström & Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 51-53Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126083 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-08-23Bibliographically approved
Hellström, I., Eriksson, H. & Sandberg, J. (2015). Chores and sense of self: Gendered understandings of voices of older married women with dementia. International Journal of Older People Nursing, 10(2), 127-135
Open this publication in new window or tab >>Chores and sense of self: Gendered understandings of voices of older married women with dementia
2015 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 10, no 2, p. 127-135Article in journal (Refereed) Published
Abstract [en]

BACKGROUND:

Marital relationships in dementia are forged between the person with dementia and the care partner, and such relationships have an impact on the way in which dementia is understood and experienced. The everyday work that underpins the relationship is usually divided between spouses and based on traditional divisions of household chores.

AIMS AND OBJECTIVES:

The aim was to describe how older women with dementia express the importance of their homes and their chores in everyday life.

METHODS:

Seven women with dementia, who were cohabiting with their husbands, were interviewed on up to five occasions at home during a five-to-six-year period on the following themes: the home, their dementia illness, everyday life, their relationships with their husbands and dignity and autonomy.

RESULTS:

The qualitative analysis showed three different patterns in the women's narratives: keeping the core of the self through the home, keeping the self through polarising division of labour and keeping the self through (re-) negotiations of responsibilities. The feeling of one's home and home-related chores is an essential way to express who you are.

CONCLUSION:

The women stated that household chores are the centre of their lives despite their dementia disease and that the home, even though it shrinks, still makes the women see themselves as an important person, namely the 'competent wife'.

IMPLICATIONS FOR PRACTICE:

Nurses need to be aware that 'doing gender' may be a means of preserving personhood as well as of sustaining couplehood in dementia.

Keywords
couplehood, dementia, gender perspective, qualitative method
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-119005 (URN)10.1111/opn.12062 (DOI)000359833700006 ()25400172 (PubMedID)
Available from: 2015-06-07 Created: 2015-06-07 Last updated: 2018-03-09
Eckerblad, J., Theander, K., Ekdahl, A., Jaarsma, T. & Hellström, I. (2015). To adjust and endure: a qualitative study of symptom burden in older people with multimorbidity. Applied Nursing Research, 28(4), 322-327
Open this publication in new window or tab >>To adjust and endure: a qualitative study of symptom burden in older people with multimorbidity
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2015 (English)In: Applied Nursing Research, ISSN 0897-1897, E-ISSN 1532-8201, Vol. 28, no 4, p. 322-327Article in journal (Refereed) Published
Abstract [en]

Context Older people with multimorbidity are vulnerable and often suffer from conditions that produce a multiplicity of symptoms and a reduced health-related quality of life. Objectives The aim of this study is to explore the experience of living with a high symptom burden from the perspective of older community-dwelling people with multi-morbidity.

Method A qualitative descriptive design with semi-structured interviews, including 20 community-dwelling older people with multi-morbidity and a high symptom burden. The participants were 79-€“89 years old with a mean of 12 symptoms per person. Data were analyzed using content analyses.

Results The experience of living with a high symptom burden revealed the overall theme, “To adjust and endure” and three sub-themes. The first sub-theme was "To feel inadequate and limited". Participants reported that they no longer had the capacity or the ability to manage, and they felt limited and isolated from friends or family. The second sub-theme was "To feel dependent". This was a new and inconvenient experience; the burden they put on others caused a feeling of guilt. The final sub-theme was "To feel dejected". The strength to manage and control their conditions was gone; the only thing left to do was to sit or lie down and wait for it all to pass.

Conclusion This study highlights the importance of a holistic approach when taking care of older people with multi-morbidity. This approach should employ a broad symptom assessment to reveal diseases and conditions that are possible to treat or improve.

Place, publisher, year, edition, pages
Elsevier, 2015
Keywords
Multimorbidity, Older people, Symptom burden, Content analysis
National Category
Nursing Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-122740 (URN)10.1016/j.apnr.2015.03.008 (DOI)000366148700012 ()
Available from: 2015-11-19 Created: 2015-11-19 Last updated: 2018-01-10Bibliographically approved
Hellström, I. (2014). I’m his wife not his carer! - Dignity and couplehood in dementia.: dignity and couplehood in dementia. In: Lars-Christer Hydén, Hilde Lindemann, Jens Brockmeier (Ed.), Beyond Loss: dementia, identity, personhood (pp. 53-66). Oxford: Oxford University Press
Open this publication in new window or tab >>I’m his wife not his carer! - Dignity and couplehood in dementia.: dignity and couplehood in dementia
2014 (English)In: Beyond Loss: dementia, identity, personhood / [ed] Lars-Christer Hydén, Hilde Lindemann, Jens Brockmeier, Oxford: Oxford University Press, 2014, p. 53-66Chapter in book (Refereed)
Place, publisher, year, edition, pages
Oxford: Oxford University Press, 2014
Keywords
dementia, couplehood, dignity, Anhöriga, Demenssjuka
National Category
Nursing Ethics
Identifiers
urn:nbn:se:liu:diva-116639 (URN)978-01-999-6926-5 (ISBN)
Available from: 2015-03-30 Created: 2015-03-30 Last updated: 2015-04-14Bibliographically approved
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