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Ulla, Lundh
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Publications (10 of 33) Show all publications
Hellström, I., Nolan, M., Nordenfelt, L. & Lundh, U. (2007). Ethical and methodological issues in interviewing persons with dementia. Nursing Ethics, 14(5), 608-619
Open this publication in new window or tab >>Ethical and methodological issues in interviewing persons with dementia
2007 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 14, no 5, p. 608-619Article in journal (Refereed) Published
Abstract [en]

People with dementia have previously not been active participants in research, with ethical difficulties often being cited as the reason for this. A wider inclusion of people with dementia in research raises several ethical and methodological challenges. This article adds to the emerging debate by reflecting on the ethical and methodological issues raised during an interview study involving people with dementia and their spouses. The study sought to explore the impact of living with dementia. We argue that there is support for the inclusion of people with dementia in research and that the benefits of participation usually far outweigh the risks, particularly when a ;safe context' has been created. The role of gatekeepers as potentially responsible for excluding people with dementia needs further consideration, with particular reference to the appropriateness of viewing consent as a primarily cognitive, universalistic and exclusionary event as opposed to a more particularistic, inclusive and context relevant process.

Place, publisher, year, edition, pages
Sage Publications, 2007
Keywords
dementia, ethical considerations, informed consent
National Category
Medical Ethics Nursing
Identifiers
urn:nbn:se:liu:diva-13348 (URN)10.1177/0969733007080206 (DOI)17901172 (PubMedID)
Available from: 2005-09-02 Created: 2005-09-02 Last updated: 2017-12-13
Hellström, I., Nolan, M. & Lundh, U. (2007). Sustaining 'couplehood': Spouses' strategies for living positively with dementia. Dementia, 6(3), 383-409
Open this publication in new window or tab >>Sustaining 'couplehood': Spouses' strategies for living positively with dementia
2007 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 6, no 3, p. 383-409Article in journal (Refereed) Published
Abstract [en]

This article explores the strategies that spouses use in order to live positively when one partner has dementia. Data were collected from 152 interviews with 20 couples conducted over a period of five years. Using a constructivist grounded theory methodology, data were analysed to capture the main processes involved and charted how these changed over time. Three main phases were identified termed: `sustaining couplehood'; `maintaining involvement'; and `moving on', that operated in an iterative rather than linear fashion. The data highlight the very active role played by both partners, especially in the early stages of the disease, as they strive to maintain the quality and closeness of their relationship by creating what we term a `nurturative relational context'. The diverse strategies that the couples adopt are presented, and the gradual way in which the person with dementia `hands over' or `let's go' of responsibility to their partner is described. The article provides several new insights into the nature of spousal relationships in dementia and the ways in which they seek to maximize their quality of life, and, wherever possible, sustain couplehood.

Keywords
couplehood, dementia, grounded theory, spousal relationships
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-13347 (URN)10.1177/1471301207081571 (DOI)
Available from: 2005-09-02 Created: 2005-09-02 Last updated: 2017-12-13
Hellström, I., Nolan, M. & Ulla, L. (2005). Awareness context theory and the dynamics of dementia: Improving understanding using emergent fit. Dementia, 4(2), 269-295
Open this publication in new window or tab >>Awareness context theory and the dynamics of dementia: Improving understanding using emergent fit
2005 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 2, p. 269-295Article in journal (Refereed) Published
Abstract [en]

This article presents the initial results of an ongoing constructivistgrounded theory study (Charmaz, 2000) exploringthe impact of dementia on the everyday life and relationships of older spousal couples. Using a processof ‘emergent fit’ (Glaser, 1978)and drawing upon data from 74 interviews with 20 spouse couples living with dementia, it considers the relevanceof ‘awareness context theory’ (Glaser& Strauss, 1965) and the ‘dynamicsof dementia’ (Keady, 1999) to an understanding of interpersonal relationships among spouses. The combinationof existing literature and new data providefurther insights into how couples actively work to ‘construct’ awareness in a way that, forthe majority, maintains both a sense of ‘self’for the person with dementia (PWD) and the integrityof the relationship between couples. It is suggested that a‘mutual acknowledgement’ of thediagnosis and a subsequent focus on maintaininga meaningful life in the present combine to create a ‘nurturative relational context’ in whichliving with dementia unfolds.

Keywords
awareness contexts, dynamics of dementia, grounded theory, spousal relationships
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-13345 (URN)10.1177/1471301205051096 (DOI)
Available from: 2005-09-02 Created: 2005-09-02 Last updated: 2017-12-13Bibliographically approved
Hellström, I., Nolan, M. & Lundh, U. (2005). We do things together: A case study of couplehood. Dementia, 4(1), 7-22
Open this publication in new window or tab >>We do things together: A case study of couplehood
2005 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 1, p. 7-22Article in journal (Refereed) Published
Abstract [en]

The value of the single case study is well established in dementiacare with the seminal contributions of Alzheimerand Kitwood being based on the study of individuals.This article presents a case study of an elderly married coupleliving with dementia and explores how theirrelationship has continued to flourish. In drawingon their story we highlight ways in which both partners seekto ‘maintain involvement’ of theperson with dementia (PWD) (Keady, 1999), andconsider the various types of ‘work’ that is required. We suggest that whilst the ‘personhood’of the PWD as an individual has received muchrecent attention, a consideration of ‘couplehood’is also essential to a full understanding of how spouses live with and respond to the impact of dementia.

Place, publisher, year, edition, pages
Sage Publications, 2005
Keywords
couplehood, dementia, maintaining involvement
National Category
Social Sciences
Identifiers
urn:nbn:se:liu:diva-13346 (URN)10.1177/1471301205049188 (DOI)
Available from: 2005-09-02 Created: 2005-09-02 Last updated: 2017-12-13Bibliographically approved
Lundh, U. (2004). Att vara närstående till person med demens.. In: Gerthrud Östlinder (Ed.), Närståendes behov: omvårdnad som akademiskt ämne III (pp. 37-48). Bromma: Svensk Sjuksköterskeförening
Open this publication in new window or tab >>Att vara närstående till person med demens.
2004 (Swedish)In: Närståendes behov: omvårdnad som akademiskt ämne III / [ed] Gerthrud Östlinder, Bromma: Svensk Sjuksköterskeförening , 2004, p. 37-48Chapter in book (Other academic)
Place, publisher, year, edition, pages
Bromma: Svensk Sjuksköterskeförening, 2004
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-22911 (URN)2265 (Local ID)91-85060-09-7 (ISBN)978-9-1850-6009-2 (ISBN)2265 (Archive number)2265 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-10-25Bibliographically approved
Lundh, U., Hellström, I. & Nolan, M. (2004). God vård vid demenssjukdom: samarbete mellan personal och anhöriga.. In: Ingemar Nordin (Ed.), Rapporter från hälsans provinser. Jubileumsantologi.: (pp. 123-144). Linköping: Linköpings universitet
Open this publication in new window or tab >>God vård vid demenssjukdom: samarbete mellan personal och anhöriga.
2004 (English)In: Rapporter från hälsans provinser. Jubileumsantologi. / [ed] Ingemar Nordin, Linköping: Linköpings universitet , 2004, p. 123-144Chapter in book (Other academic)
Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2004
Series
SHS, ISSN 0281-4919 ; 32
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-22059 (URN)1136 (Local ID)9173739197 (ISBN)1136 (Archive number)1136 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2018-04-27Bibliographically approved
Nolan, M. & Lundh, U. (2004). Knowledge for practice-based disciplines: advancing the debate. (2ed.). In: Patrick Crookes (Ed.), Research into practice. Essential Skills for Reading and Applying Research in Nursing and Health Care.: . Edinburgh m fl: Baillière Tindall
Open this publication in new window or tab >>Knowledge for practice-based disciplines: advancing the debate.
2004 (English)In: Research into practice. Essential Skills for Reading and Applying Research in Nursing and Health Care. / [ed] Patrick Crookes, Edinburgh m fl: Baillière Tindall , 2004, 2, p. -308Chapter in book (Other academic)
Abstract [en]

The need for all health care professionals to develop research appreciation skills has been recognized and emphasized.  Otherwise, research remains irrelevant and unrelated to practice.  Traditional research textbooks have used the format of the research process which makes research seem even more difficult and remote. This book is different.  Because the purpose of research appreciation is to enable practitioners to use research to develop and improve practice, it focuses instead on the skills of research appreciation and application which are distinct from the skills necessary to undertake research.  It prepares you to access, critically evaluate, understand and use research-based literature within the multi-disciplinary context of today's health services, and emphasises:

  • The range of sources of knowledge which inform nursing practice
  • Contemporary research and the context in which health care research and development takes place
  • Critical evaluation of research reports and research-based literature, examining the implication of project design and conduct
  • The range of skills needed for the application of research findings and innovation within practice

Place, publisher, year, edition, pages
Edinburgh m fl: Baillière Tindall, 2004 Edition: 2
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-22063 (URN)1140 (Local ID)0-7020-2686-7 (ISBN)978-0-7020-2686-7 (ISBN)1140 (Archive number)1140 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-10-28Bibliographically approved
Nolan, M. & Lundh, U. (2004). Omsorgsansvar for närstående gamle. In: Geriatri. En tvärfaglig udfordring: (pp. 198-210). Köpenhamn: Munksgaard
Open this publication in new window or tab >>Omsorgsansvar for närstående gamle
2004 (Swedish)In: Geriatri. En tvärfaglig udfordring, Köpenhamn: Munksgaard , 2004, p. 198-210Chapter in book (Other academic)
Place, publisher, year, edition, pages
Köpenhamn: Munksgaard, 2004
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-22062 (URN)1139 (Local ID)87-628-0330-1 (ISBN)1139 (Archive number)1139 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-10-28Bibliographically approved
Lundh, U., Pålsson, Å. & Hellström, I. (2003). Forging partnerships in care homes: the impact of an educational intervention. In: Mike Nolan, Ulla Lundh, Gordon Grant, John Keady (Ed.), Partnerships in family care: (pp. 238-256). Linköping: Linköpings universitet
Open this publication in new window or tab >>Forging partnerships in care homes: the impact of an educational intervention
2003 (English)In: Partnerships in family care / [ed] Mike Nolan, Ulla Lundh, Gordon Grant, John Keady, Linköping: Linköpings universitet , 2003, p. 238-256Chapter in book (Other academic)
Abstract [en]

http://Considers how family and professional carers can work together more effectively in order to provide the highest quality of care to people who need support in order to remain in their own homes. Adopting a temporal perspective, this book looks at key transitions in caregiving and is useful for health care students and professionals

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2003
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-28123 (URN)12934 (Local ID)978-0-3352-1262-0 (ISBN)0-335-21261-1 (ISBN)12934 (Archive number)12934 (OAI)
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2013-11-13Bibliographically approved
Lundh, U. & Nolan, M. (2003). I wasn't aware of that: creating dialogue between family and professionals carers. In: Mike Nolan, Ulla Lundh, Gordon Grant, John Keady (Ed.), Partnerships in family care: (pp. 108-127). Linköping: Linköpings universitet
Open this publication in new window or tab >>I wasn't aware of that: creating dialogue between family and professionals carers
2003 (English)In: Partnerships in family care / [ed] Mike Nolan, Ulla Lundh, Gordon Grant, John Keady, Linköping: Linköpings universitet , 2003, p. 108-127Chapter in book (Other academic)
Abstract [en]

Considers how family and professional carers can work together more effectively in order to provide the highest quality of care to people who need support in order to remain in their own homes. Adopting a temporal perspective, this book looks at key transitions in caregiving and is useful for health care students and professionals

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2003
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-28127 (URN)12938 (Local ID)0-335-21261-1 (ISBN)978-0-3352-1262-0 (ISBN)12938 (Archive number)12938 (OAI)
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2013-11-13Bibliographically approved
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