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Roos, Susanne
Publications (10 of 16) Show all publications
Spetz, K., Andersson, E. & Roos, S. (2019). Adherence to vitamin and mineral supplementation after bariatric surgery- A cohort and register study. In: : . Paper presented at 24th IFSO world congress, Madrid, Spain, September 3-7, 2019.
Open this publication in new window or tab >>Adherence to vitamin and mineral supplementation after bariatric surgery- A cohort and register study
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-162436 (URN)
Conference
24th IFSO world congress, Madrid, Spain, September 3-7, 2019
Available from: 2019-12-03 Created: 2019-12-03 Last updated: 2019-12-11Bibliographically approved
Roos, S., Liedberg, G., Hellström, I. & Wilhelmsson, S. (2019). Persistent symptoms in people with celiac disease despite gluten-free diet: A concern?. Gastroenterology Nursing, 42(6), 496-503
Open this publication in new window or tab >>Persistent symptoms in people with celiac disease despite gluten-free diet: A concern?
2019 (English)In: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 42, no 6, p. 496-503Article in journal (Refereed) Published
Abstract [en]

Studies show that people with celiac disease have reduced well-being and have persistent symptoms, mainly related to the gastrointestinal tract. The aim of this study was to analyze how persons in a celiac disease member association report their symptoms, health, and life satisfaction. A questionnaire, with both open and closed questions, was distributed to all members (n = 726) of a celiac association in the southeast of Sweden. The response rate was 74.5%, of which 524 (72%) said they had received a celiac disease diagnosis and were thus included in the study. Almost half of the participants (40.7%-42.2%) stated that they had persistent celiac disease symptoms despite following a gluten-free diet. Diarrhea, abdominal pain, and congestion were persistent symptoms reported and could contribute to a lower health status compared with people without persistent symptoms. The life satisfaction scale (LiSat-9) showed differences in 5 of 9 variables between the groups. Living with celiac disease is far from easy when you have persistent symptoms. People with celiac disease require follow-up by healthcare services, and a new treatment needs to be developed because following the gluten-free diet alone does not seem to alleviate symptoms in everyone.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2019
Keywords
Celiac disease, Comorbidity, Health status, Life satisfaction
National Category
Medical and Health Sciences Gastroenterology and Hepatology
Identifiers
urn:nbn:se:liu:diva-162435 (URN)10.1097/sga.0000000000000377 (DOI)000501331100005 ()31770352 (PubMedID)2-s2.0-85075672187 (Scopus ID)
Note

Funding agencies:  LIONS research fund

Available from: 2019-12-03 Created: 2019-12-03 Last updated: 2019-12-28Bibliographically approved
Roos, S., Ingrid, H., Hallert, C. & Susan, W. (2013). Everyday life for women with celiac disease. Gastroenterology Nursing, 36(4), 266-273
Open this publication in new window or tab >>Everyday life for women with celiac disease
2013 (English)In: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 36, no 4, p. 266-273Article in journal (Refereed) Published
Abstract [en]

The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2013
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-96441 (URN)10.1097/SGA.0b013e31829ed98d (DOI)000330364800004 ()23899485 (PubMedID)
Available from: 2013-08-20 Created: 2013-08-20 Last updated: 2017-12-06Bibliographically approved
Hallert, C. & Roos, S. (2012). On treatment outcomes in coeliac disease diagnosed in adulthood. In: Peter Kruzliak and Govind Bhagat (Ed.), Celiac Disease - From Pathophysiology to Advanced Therapies: (pp. 159-184). InTech
Open this publication in new window or tab >>On treatment outcomes in coeliac disease diagnosed in adulthood
2012 (English)In: Celiac Disease - From Pathophysiology to Advanced Therapies / [ed] Peter Kruzliak and Govind Bhagat, InTech, 2012, p. 159-184Chapter in book (Other academic)
Abstract [en]

Celiac disease (CD) is an immune-mediated enteropathy triggered by the ingestion of gluten-containing grains (including wheat, rye and barley) in genetically susceptible individuals. CD can manifest itself with a previously unappreciated range of clinical presentations, including the typical malabsorption syndrome and a spectrum of symptoms potentially affecting any organ system. Since CD often presents in an atypical or even silent manner, many cases remain undiagnosed and carry the risk of long-term complications, including anemia and other hematological complications, osteoporosis, neurological complications or cancer. The high prevalence of the disease and its variety of clinical outcomes raise several interesting questions. This book covers most of the aforementioned controversial and yet unresolved topics by including the contributions of experts in CD.What the reader will surely find stimulating about this book is not only its exhaustive coverage of our current knowledge of CD, but also provocative new concepts in disease pathogenesis and  treatment.

Place, publisher, year, edition, pages
InTech, 2012
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-86396 (URN)10.5772/50268 (DOI)978-953-51-0684-5 (ISBN)
Available from: 2012-12-14 Created: 2012-12-14 Last updated: 2014-11-20Bibliographically approved
Roos, S., Wilhelmsson, S., Vulcan, A., Sjöberg, K. & Hallert, C. (2011). Bowel symptoms, self-image and comorbidity impact on well-being of women with coeliac disease. Journal of Nursing and Healthcare of Chronic Illness, 3(3), 302-309
Open this publication in new window or tab >>Bowel symptoms, self-image and comorbidity impact on well-being of women with coeliac disease
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2011 (English)In: Journal of Nursing and Healthcare of Chronic Illness, ISSN 1752-9816, E-ISSN 1752-9824, Vol. 3, no 3, p. 302-309Article in journal (Refereed) Published
Abstract [en]

Aim. To explore if gastrointestinal (GI) symptoms, self-image and comorbidity are related to well-being in women with coeliac disease (CD) and whether a history of CD in childhood impacts on well-being in adulthood.

Background. Women in Sweden living with CD show a reduced level of well-being and report a high rate of GI complaints for unclear reasons. The self-image of these women is unknown.

Design. A cross-sectional survey of 231 Swedish women with CD on long-term treatment (≥5 years) with a gluten-free diet (GFD) was conducted in 2010.

Results.  The study showed that well-being is related to a high rate GI symptoms (OR 16·9, 95% CI 5·6-50·7), a negative self-image (OR 8·9, 95% CI 3·5-22·9) and comorbidity (OR 3·3, 95% CI 1·7-6·4). There was no impact of childhood symptoms on well-being, GI symptoms, self-image or comorbidity in adulthood. Half of the study population showed reduced well-being compared with norms. Practically all women (97%) declared that they were always or usually following a GFD and 62% reported at least one disease besides CD.

Conclusion. The study demonstrated that the well-being of women living with CD is affected by GI complaints, self-image and a high rate of comorbidity whereas a history of signs and symptoms of CD in childhood not seems to impact on the well-being in adulthood.

Relevance to clinical practice. Gastrointestinal symptoms, self-image and comorbidity are factors contributing to a low level of well-being of CD women living on a GFD. Launching a multi-disciplinary team for follow-up would represent a novel approach to support these women and may prove valuable in improving their subjective health.

Place, publisher, year, edition, pages
Oxford: Wiley-Blackwell, 2011
Keywords
adults;comorbidity;gastrointestinal symptoms;nursing;self-image;well-being
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-71428 (URN)10.1111/j.1752-9824.2011.01104.x (DOI)
Available from: 2011-10-17 Created: 2011-10-17 Last updated: 2017-12-08Bibliographically approved
Roos, S. (2011). Living with coeliac disease beyond the diagnosis. (Doctoral dissertation). Linköping: Linköping University Electronic Press
Open this publication in new window or tab >>Living with coeliac disease beyond the diagnosis
2011 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Introduction: Studies show that women living in Sweden treated for coeliac disease have lower subjective health than other women. After showing signs of remission, adults who have coeliac disease and follow a gluten-free diet, are expected to handle the treatment without any further planned follow-up by health care.

Aim: The overall aim of this thesis was to study aspects of living with coeliac disease in adults in the years beyond the diagnosis.

Methods: Quantitative methods were used in Studies I, II and III. A qualitative content analysis was performed in Study IV.

Results: The results show that women with coeliac disease have a lower level of well-being than men with coeliac disease. The women who have coeliac disease reported a high rate of gastrointestinal symptoms, although they followed a gluten-free diet, and they visited health care services more frequently than women who did not have coeliac disease. A low rate of gastrointestinal symptoms, a positive self-image and few comorbidity emerged as factors that positively affected well-being. Worries also seemed to be a companion of women diagnosed with coeliac disease in adulthood, typically evident when socializing with others.

Conclusion: This thesis may provide evidence questioning the validity of declaring all women with coeliac disease showing a normalized intestinal mucosa to be in remission, and thus leaving them to self-management.

Clinical implications: Health care professionals need to be aware of that the transition to a gluten-free life may vary for individuals. It does not seem enough to follow a gluten-free diet to reach a state of good well-being for all women. A major task for health care providers is therefore to support women with CD in reaching better subjective treatment outcomes. The results may also contribute to that health care system develops routines in order to optimise the care and treatment of these patients.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2011. p. 85
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 1278
Keywords
Chronic illness, Coeliac disease, Comorbidity, Gastrointestinal complaints, Health care use, Self-image, Well-being
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-71898 (URN)978-91-7393-019-2 (ISBN)
Public defence
2011-12-08, Aulan K1, Kåkenhus, Campus Norrköping, Linköpings universitet, Norrköping, 13:00 (English)
Opponent
Supervisors
Available from: 2011-11-09 Created: 2011-11-09 Last updated: 2011-12-12Bibliographically approved
Roos, S., Grip, B. & Hallert, C. (2011). Swedish coeliac women in remission show raised health-care costs: Controlled study. Paper presented at Gastro 2011 UEGW/WCOG, Stockholm.
Open this publication in new window or tab >>Swedish coeliac women in remission show raised health-care costs: Controlled study
2011 (English)Conference paper, Published paper (Refereed)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-75179 (URN)
Conference
Gastro 2011 UEGW/WCOG, Stockholm
Available from: 2012-02-20 Created: 2012-02-20 Last updated: 2012-02-27
Roos, S., Wilhelmsson, S. & Hallert, C. (2011). Swedish women with coeliac disease in remission use more health care services than other women: a controlled study. Scandinavian Journal of Gastroenterology, 46(1), 13-19
Open this publication in new window or tab >>Swedish women with coeliac disease in remission use more health care services than other women: a controlled study
2011 (English)In: Scandinavian Journal of Gastroenterology, ISSN 0036-5521, E-ISSN 1502-7708, Vol. 46, no 1, p. 13-19Article in journal (Refereed) Published
Abstract [en]

Objective. To examine whether the perceived poor outcome of dietary treatment makes Swedish women with coeliac disease (CD) prone to use more health care services than other women. Material and methods. The health care consumption over 36 consecutive months was examined for 137 Swedish women aged 20-80 years with CD in remission after living on a gluten-free diet for a median of 4 years (range 1-8 years). Comparisons were made with the health care consumption of 411 women in the general population matched for age and residence. Results. The results show that women with CD use health care services annually a median of 5.0 times (range 0-76) that is more than female controls 3.6 (0-311) (p andlt; 0.05) mainly in primary care and for complaints related to mental and behavioral disorders (ICD F), diseases of the digestive system (ICD K) and diseases of the musculoskeletal system and connective tissue (ICD M). Conclusions. Women with CD used health care services in keeping with studies indicating reduced health-related quality of life of people with this condition. The results provide evidence that women with CD in remission suffer from co-morbidities that may signal a need for a multidisciplinary follow-up of subjects with CD in Sweden.

Place, publisher, year, edition, pages
Informa Healthcare, 2011
Keywords
Adults, coeliac disease, gluten-free diet, health care consumption, Sweden
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-65712 (URN)10.3109/00365521.2010.516448 (DOI)000286124300003 ()
Available from: 2011-02-18 Created: 2011-02-18 Last updated: 2017-12-11Bibliographically approved
Roos, S. & Hallert, C. (2010). Coping with and adapting to celiac disease. In: Melinda Dennis, Daniel Leffler (Ed.), Real life with Celiac Disease: Troubleshooting and thriving gluten free (pp. 223-226). Bethesda: AGA Press
Open this publication in new window or tab >>Coping with and adapting to celiac disease
2010 (English)In: Real life with Celiac Disease: Troubleshooting and thriving gluten free / [ed] Melinda Dennis, Daniel Leffler, Bethesda: AGA Press , 2010, p. 223-226Chapter in book (Other academic)
Abstract [en]

This book helps readers identify if they have undiagnosed celiac disease. For those already diagnosed the authors, joined by more than 50 experts, share their knowledge of problems related to celiac disease and gluten-related disorders. Discover recommended treatments and lifestyle changes, and their outcomes. Learn proper nutritional guidelines and how to eat gluten free even while dining out or traveling, how to support a friend or family member and who should be tested and much more.Show more Show less

Place, publisher, year, edition, pages
Bethesda: AGA Press, 2010
Series
AGA Press
Keywords
Coeliac disease, Gluten intolerance
National Category
Gastroenterology and Hepatology
Identifiers
urn:nbn:se:liu:diva-58728 (URN)9781603560085 (ISBN)
Available from: 2010-08-24 Created: 2010-08-24 Last updated: 2018-04-10Bibliographically approved
Faresjö, Å., Johansson, S., Faresjö, T., Roos, S. & Hallert, C. (2010). Sex differences in dietary coping with gastrointestinal symptoms. EUROPEAN JOURNAL OF GASTROENTEROLOGY and HEPATOLOGY, 22(3), 327-333
Open this publication in new window or tab >>Sex differences in dietary coping with gastrointestinal symptoms
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2010 (English)In: EUROPEAN JOURNAL OF GASTROENTEROLOGY and HEPATOLOGY, ISSN 0954-691X, Vol. 22, no 3, p. 327-333Article in journal (Refereed) Published
Abstract [en]

Aim Nutritional changes are often considered first-line treatment in public health diseases that apply to many gastrointestinal (GI) disorders, as different food and beverages may modulate GI motor and sensory functions, and may provoke GI symptoms. The aim of this study was to examine dietary coping and possible changes in food and beverage intake in relation to GI symptoms reported by identified irritable bowel syndrome (IBS) patients compared with healthy controls, and whether any sex differences were observed in these respects. Methods A population-based case-control design was used. Three primary healthcare centres were selected in the city of Linko ping in Sweden. The IBS patients were recruited from the studied primary healthcare centers on the basis of diagnoses from computerized medical records. The controls were randomly selected from the general population in the same region. A questionnaire was used with specific questions about self-reported food and beverage increase or decrease of GI symptoms and self-reported changes in dietary habits. Results Female IBS patients seem to be more willing to change dietary habits because of their GI problems than men. Effects of these nutritional behaviour changes were reported for almost all participants that had made dietary adjustments. Fatty food, certain vegetables, dairy products and eggs were significantly more reported to cause GI complaints among IBS patients compared with their controls. Conclusion Female IBS patients reported more changes in their dietary habits because of GI problems than men with the disease. The majority of both women and men who changed their dietary habits because of GI problems experienced improvement in their symptoms.

Place, publisher, year, edition, pages
Wolter kluwer Health, 2010
Keywords
case-control study, diet, gastrointestinal disorders, sex
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-54402 (URN)10.1097/MEG.0b013e32832b9c53 (DOI)000274797600010 ()19550348 (PubMedID)
Note
Original Publication: Åshild Olsen Faresjö, Saga Johansson, Tomas Faresjö and Claes Hallert, Sex differences in dietary coping with gastrointestinal symptoms, 2010, EUROPEAN JOURNAL OF GASTROENTEROLOGY and HEPATOLOGY, (22), 3, 327-333. http://dx.doi.org/10.1097/MEG.0b013e32832b9c53 Copyright: Lippincott Williams and Wilkins http://www.lww.com/ Available from: 2010-03-12 Created: 2010-03-12 Last updated: 2013-09-05
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