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Kullberg, Agneta
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Odzakovic, E., Kullberg, A., Hellström, I., Andrew, C., Sarah, C., Kainde, M., . . . Richard, W. (2019). ‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia. Ageing & Society, 9, 1-26
Open this publication in new window or tab >>‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia
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2019 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 9, p. 1-26Article in journal (Refereed) Epub ahead of print
Abstract [en]

The extent of social isolation experienced by people living with dementia who reside in the community has been well acknowledged, yet little is known about how people living alone with dementia maintain neighbourhood-based connections. The purpose of this study is to examine the experiences of people with dementia who live alone, focusing upon how they establish social networks and relationships in a neighbourhood context, and how they are supported to maintain this social context within everyday life. Multiple data collection methods were used including, semi-structured interviews, walking interviews, guided home tours and social network mapping, which were conducted with 14 community-dwelling people living alone with dementia (11 women and three men) situated across the three international study sites in England, Scotland and Sweden. Data were analysed using thematic analysis. The analysis revealed four main themes: (a) making the effort to stay connected; (b) befriending by organisations and facilitated friendships; (c) the quiet neighbourhood atmosphere; and (d) changing social connections. The analysis suggests that people with dementia who live alone were active agents who took control to find and maintain relationships and social networks in the neighbourhood. Our findings indicate the need to raise awareness about this specific group in both policy and practice, and to find creative ways to help people connect through everyday activities and by spontaneous encounters in the neighbourhood.

Place, publisher, year, edition, pages
Cambridge University Press, 2019
Keywords
Dementia, living alone, neighbourhood, community, qualitative research, social networks, relationships, solitude
National Category
Public Health, Global Health, Social Medicine and Epidemiology Nursing Social Work
Identifiers
urn:nbn:se:liu:diva-160696 (URN)10.1017/s0144686x19001259 (DOI)
Available from: 2019-10-02 Created: 2019-10-02 Last updated: 2019-10-09Bibliographically approved
Campbell, S., Clark, A., Keady, J., Kullberg, A., Manji, K., Rummery, K. & Ward, R. (2019). Participatory social network map making with family carers of people living with dementia. Methodological Innovations, 12(1)
Open this publication in new window or tab >>Participatory social network map making with family carers of people living with dementia
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2019 (English)In: Methodological Innovations, ISSN 2059-7991, Vol. 12, no 1Article in journal (Refereed) Epub ahead of print
Abstract [en]

This article focuses on the use of a participatory social network mapping method with family carers. This is one of a suite of methods developed in a 5-year qualitative multi-centre project exploring how neighbourhoods support, enable or disable people with dementia and their families to live well in their communities. The article considers how mapping provides insights into family support networks, revealing the fluidity of support and care within relationships as well as providing opportunity for individuals to represent the complexities of their relationships with more and less significant others. However, the potential offered by the approach goes beyond those of visual representations of networks and contacts. Paying attention to the co-production process, as well as the reflexive dialogue that emerges in the exchange between researcher, participants, and the maps themselves, we consider how the maps emerge as affective artifacts, weighted with emotion.

Place, publisher, year, edition, pages
SAGE Publications Ltd, 2019
Keywords
Participatory social network mapping, neighbourhood, dementia, care, social relationships, emotion, reflexivity
National Category
Health Sciences
Identifiers
urn:nbn:se:liu:diva-160127 (URN)10.1177/2059799119844445 (DOI)
Note

Funding: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The support of the Economic and Social Research Council (ESRC) and National Institute for Health Research (NIHR) is gratefully acknowledged.

Available from: 2019-09-06 Created: 2019-09-06 Last updated: 2019-09-06
Odzakovic, E., Hyden, L.-C., Festin, K. & Kullberg, A. (2019). People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study. Scandinavian Journal of Public Health, 47(2), 229-239
Open this publication in new window or tab >>People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study
2019 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 47, no 2, p. 229-239Article in journal (Refereed) Published
Abstract [en]

AIMS: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area).

METHODS: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables.

RESULTS: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities.

CONCLUSIONS: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Home care services, cross-sectional study, dementia, foreign born, ordinary housing, special housing
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:liu:diva-146049 (URN)10.1177/1403494818755600 (DOI)000462758700019 ()29409432 (PubMedID)2-s2.0-85042217866 (Scopus ID)
Available from: 2018-03-23 Created: 2018-03-23 Last updated: 2019-04-18Bibliographically approved
Odzakovic, E., Hellström, I., Ward, R. & Kullberg, A. (2018). 'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.. Dementia, Article ID 1471301218817453.
Open this publication in new window or tab >>'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.
2018 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, article id 1471301218817453Article in journal (Refereed) Epub ahead of print
Abstract [en]

This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish field site of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method. Four themes were revealed from these interviews: life narratives embedded within neighbourhood; the support of selfhood and wellbeing through movement; the neighbourhood as an immediate social context; and restorative connections to nature. These themes were distilled into the 'essence' of what neighbourhood meant for the people we interviewed: A walkable area of subjective significance and social opportunity in which to move freely and feel rejuvenated. We have found that the neighbourhood for community-dwelling people with dementia holds a sense of attachment and offers the potential for freedom of movement. Our research indicates that a dementia diagnosis doesn't necessarily reduce this freedom of movement. The implications for practice and policy are considered: future research should explore and pay closer attention to the diverse living conditions of people living with dementia, and not least the particular challenges faced by people living alone with dementia.

Keywords
community-dwelling, dementia, interpretative phenomenology, lived experiences, neighbourhood, walking interviews
National Category
Geriatrics
Identifiers
urn:nbn:se:liu:diva-153897 (URN)10.1177/1471301218817453 (DOI)30541394 (PubMedID)
Available from: 2019-01-18 Created: 2019-01-18 Last updated: 2019-08-23
Odzakovic, E. & Kullberg, A. (2016). Boendemiljö och grannskap (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 87-95). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Boendemiljö och grannskap
2016 (English)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 87-95Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126094 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-25Bibliographically approved
Kullberg, A., Nordqvist, C., Lindqvist, K. & Timpka, T. (2014). Examining quality function deployment in safety promotion in Sweden.. Health Promotion International, 29(3), 414-426
Open this publication in new window or tab >>Examining quality function deployment in safety promotion in Sweden.
2014 (English)In: Health Promotion International, ISSN 0957-4824, E-ISSN 1460-2245, Vol. 29, no 3, p. 414-426Article in journal (Refereed) Published
Abstract [en]

The first-hand needs and demands of laypersons are not always considered when safety promotion programmes are being developed. We compared focal areas for interventions identified from residents' statements of safety needs with focal areas for interventions identified by local government professionals in a Swedish urban community certified by the international Safe Community movement supported by the World Health Organization. Quantitative and qualitative data on self-expressed safety needs from 787 housing residents were transformed into an intervention design, using the quality function deployment (QFD) technique and compared with the safety intervention programme developed by professionals at the municipality administrative office. The outcome of the comparison was investigated with regard to implications for the Safe Community movement. The QFD analysis identified the initiation and maintenance of social integrative processes in housing areas as the most highly prioritized interventions among the residents, but failed to highlight the safety needs of several vulnerable groups (the elderly, infants and persons with disabilities). The intervention programme designed by the public health professionals did not address the social integrative processes, but it did highlight the vulnerable groups. This study indicates that the QFD technique is suitable for providing residential safety promotion efforts with a quality orientation from the layperson's perspective. Views of public health professionals have to be included to ascertain that the needs of socially deprived residents are adequately taken into account. QFD can augment the methodological toolbox for safety promotion programmes, including interventions in residential areas.

Place, publisher, year, edition, pages
Oxford University Press, 2014
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-100229 (URN)10.1093/heapro/das079 (DOI)000345959200004 ()23322486 (PubMedID)
Available from: 2013-10-31 Created: 2013-10-31 Last updated: 2017-12-06
Kullberg, A., Nordqvist, C., Timpka, T. & Lindqvist, K. (2011). Residents’ perspectives on safety support needs in different types of housing areas. Scandinavian Journal of Public Health, 39(6), 590-597
Open this publication in new window or tab >>Residents’ perspectives on safety support needs in different types of housing areas
2011 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 39, no 6, p. 590-597Article in journal (Refereed) Published
Abstract [en]

Background: Knowledge about conditions that are understood to support safety is important for planning residential safety promotion in interactions with residents. How residents themselves perceive and reason about their own safety needs has seldom been investigated in Scandinavia. Aim: To identify factors perceived to be necessary to feel safe by residents in areas with blocks of flats and detached houses.

Methods: Residents in a Swedish municipality were asked an open-ended question on the research topic by a mail survey; 787 residents provided narrative data that were fed into a summative qualitative and quantitative content analysis.

Results: A stable social structure in the housing area was perceived to be the central factor in a safety-supportive residential environment. Whereas maintenance of good and reassuring relations was emphasized in detached housing areas, support for management of poor or even fear-provoking neighbour relations was requested from areas with blocks of flats. This finding emphasizes the need to reduce the differential exposure to safety-related factors in the living environment.

Conclusions: The results of our study encourage the continued use of a setting-orientated safety promotion approach in which residents and other stakeholders are involved. The policy recommendation that can be drawn from the study is that both the subjective and objective dimensions of safety should be identified and considered when developing local safety promotion interventions in community contexts.

Place, publisher, year, edition, pages
Sage, 2011
Keywords
Safety promotion; resident perspective; housing; neighbourhoods; safety inequalities, content analysis
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:liu:diva-60158 (URN)10.1177/1403494810395988 (DOI)000293249400005 ()
Available from: 2010-10-07 Created: 2010-10-07 Last updated: 2017-12-12Bibliographically approved
Kullberg, A., Timpka, T., Svensson, T., Karlsson, N. & Lindqvist, K. (2010). Does the perceived neighborhood reputation contribute to neighborhood differences in social trust and residential wellbeing?. Journal of community psychology (Print), 38(5), 591-606
Open this publication in new window or tab >>Does the perceived neighborhood reputation contribute to neighborhood differences in social trust and residential wellbeing?
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2010 (English)In: Journal of community psychology (Print), ISSN 0090-4392, E-ISSN 1520-6629, Vol. 38, no 5, p. 591-606Article in journal (Refereed) Published
Abstract [en]

The authors used a mixed methods approach to examine if the reputation of a housing area has bearing on residential wellbeing and social trust in three pairs of socioeconomically contrasting neighborhoods in a Swedish urban municipality. Multilevel logistic regression analyses were performed to examine associations between area reputation and residential wellbeing and social trust, controlling for the random effect of neighborhood and individual level sociodemographic factors. Qualitative data were analyzed to identify mechanisms of how neighborhood reputations were established. The housing area reputation was found to be strongly associated with wellbeing and social trust. The area reputation also seemed to be a determinant of position in the local social structure; residents were found to position themselves in a rank order The results suggest that area reputation is an important and probably underestimated dimension in the development of residential wellbeing and social trust in housing.

Place, publisher, year, edition, pages
John Wiley and Sons, Ltd, 2010
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-58346 (URN)10.1002/jcop.20383 (DOI)000278776400004 ()
Available from: 2010-08-13 Created: 2010-08-11 Last updated: 2017-12-12
Kullberg, A. (2010). My Home is my Castle: Residential Well being and Perceived Safety in Different Types of Housing Areas in Sweden. (Doctoral dissertation). Linköping: Linköping University Electronic Press
Open this publication in new window or tab >>My Home is my Castle: Residential Well being and Perceived Safety in Different Types of Housing Areas in Sweden
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Safety in the housing environment is a basic human need and may be a prerequisite for health but studies from the perspective of the residents are limited in the literature. Although historically public health research has recognized the housing environment as an important determinant of health, there is a need for more research on how housing conditions influence residential well-being.

Aim: The overall aim of this thesis was to examine factors and conditions associated with residential well-being and perceived safety in different types of housing areas and to compare safety promotion intervention designs based on residents self-expressed safety needs with corresponding designs developed by local government professionals.

Materials and methods: A postal survey (response rate 56%, n=2476) and 11 focus groups (57 participants) were conducted among the residents in 3 small-scale housing areas with detached houses and 3 housing areas with blocks of flats in a Swedish municipality. The areas were geographically contiguous as each of the small-scale areas bordered on an area with blocks of flats. The study municipality is a designated member of WHO Safe Community network that have signed up to work in line with the indicators developed by WHO Collaborating Centre on Community Safety Promotion. Narrative data from a postal questionnaire were used to analyze the lay perspective and identify features perceived to be necessary to feel safe by residents in areas with blocks of flats and small-scale housing areas. Quantitative data were used to examine correlates of local safety-related concerns through a factor analysis. Logistic regression analysis examined associations between high-level scores of the safetyrelated dimensions found and area-level crime rate and being a victim of crime, area reputation, gender, age, education, country of birth, household civil status and type of housing. To examine how self-assessed area reputation is associated with social trust and residential well-being, a multilevel logistic regression analysis was performed using quantitative data, controlling for the random effect of neighbourhood- and individual-level socio-demographic factors. Data from focus group interviews were analyzed to identify mechanisms of how neighbourhood reputation was established. The quality function deployment (QFD) technique was used in a case study to integrate residents’ demands into the design of safety promotion interventions in housing areas. The resulting design was then compared with the safety intervention programme designed by professionals at the municipality administrative office. The results from this comparison were then investigated to identify improvements for the indicators for Safe Homes in the Safe Community programme.

Results: The residents’ narratives showed that a stable social structure in the housing area was perceived to be the central factor in a safety-supportive residential environment. Whereas maintenance of good and reassuring relations was emphasized in small-scale housing areas, support for management of poor or even fear-provoking neighbour relations was requested from areas with blocks of flats. The crime rates were lower and safety-related concerns were less in small-scale housing areas. Three composite dimensions (CD) of perceived residential safety were identified: structural indicators of social disorder (CD 1); contact with disorderly behaviour (CD 2); and existential insecurity (CD 3). Area-level crime rates and individual-level variables were associated with dimensions (CD 1) and (CD 3), but only individuallevel variables were associated with dimension (CD 2). The level of residential well-being and social trust was higher in small-scale areas. The housing area reputation was found to be strongly associated with safety-related concerns, residential well-being and social trust. The area reputation also seemed to be a determinant of position in the local social structure; residents were found to position themselves in a rank order. The QFD analysis showed that the initiation and maintenance of social integrative processes in housing areas were the most highly prioritized interventions among the residents, but the analysis did not highlight the safety needs of several vulnerable groups. The Safe Community programme designed by professionals did not address the social integrative processes, but did cover the vulnerable groups.

Conclusions: Area reputation is an important and probably underestimated dimension in the development of residential well-being and perceived safety. The QFD technique can be added to the methodological toolbox for residential safety promotion. The technique is particular suitable for providing a quality orientation from the lay perspective on safety promotion in local residential areas. The current Safe Homes concept in the Safe Community programme would benefit from being widened to Safe Housing.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2010. p. 95
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 1190
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:liu:diva-60160 (URN)978-91-7393-349-0 (ISBN)
Public defence
2010-10-14, Aulan, Hälsans Hus, Campus US, Linköpings universitet, Linköping, 13:00
Opponent
Supervisors
Available from: 2010-10-07 Created: 2010-10-07 Last updated: 2013-09-05Bibliographically approved
Kullberg, A., Karlsson, N., Timpka, T. & Lindqvist, K. (2009). Correlates of local safety-related concerns in a Swedish Community: a cross-sectional study. BMC Public Health, 9(221)
Open this publication in new window or tab >>Correlates of local safety-related concerns in a Swedish Community: a cross-sectional study
2009 (English)In: BMC Public Health, ISSN 1471-2458, E-ISSN 1471-2458, Vol. 9, no 221Article in journal (Refereed) Published
Abstract [en]

Background: Crime in a neighbourhood has been recognized as a key stressor in the residential environment. Fear of crime is related to risk assessment, which depends on the concentration of objective risk in time and space, and on the presence of subjective perceived early signs of imminent hazard. The aim of the study was to examine environmental, socio-demographic, and personal correlates of safety-related concerns at the local level in urban communities. The specific aim was to investigate such correlates in contiguous neighbourhoods in a Swedish urban municipality. Methods: A cross-sectional study design was used to investigate three neighbourhood settings with two pair-wise conterminous but socially contrasting areas within each setting. Crime data were retrieved from police records. Study data were collected through a postal questionnaire distributed to adult residents (n = 2476) (response rate 56%). Composite dimensions of perceived residential safety were derived through a factor analysis. Logistic regression analysis was used to examine associations between high-level scores of the three safety-related dimensions and area-level crime rate, being a victim of crime, area reputation, gender, age, education, country of birth, household civil status and type of housing. Results: Three composite dimensions of perceived residential safety were identified: (I) structural indicators of social disorder; (II) contact with disorderly behavior; and (III) existential insecurity. We found that area-level crime rates and individual-level variables were associated with the dimensions structural indicators of social disorder and existential insecurity, but only individual-level variables were associated with the dimension contact with disorderly behavior. Self-assessed less favorable area reputation was found to be strongly associated with all three factors. Being female accorded existential insecurity more than being a victim of crime. Conclusion: We have identified environmental, socio-demographic, and personal correlates of safety-related concerns in contiguous neighbourhoods in a Swedish community. The results of this study suggest that residents self-assessed area reputation is an important underlying mechanism of perceived safety. We also found a difference in crime rates and safety-related concerns between areas with blocks of flats compared with small-scale areas although the neighbourhoods were close geographically.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-20757 (URN)10.1186/1471-2458-9-221 (DOI)
Note
Original Publication: Agneta Kullberg, Nadine Karlsson, Toomas Timpka and Kent Lindqvist, Correlates of local safety-related concerns in a Swedish Community: a cross-sectional study, 2009, BMC PUBLIC HEALTH, (9), 221. http://dx.doi.org/10.1186/1471-2458-9-221 Licensee: BioMed Central http://www.biomedcentral.com/ Available from: 2009-09-19 Created: 2009-09-18 Last updated: 2017-12-13
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