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2023 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 43, no 8, p. 1934-1953, article id PII S0144686X21001525Article in journal (Refereed) Published
Abstract [en]
Having opportunities to make decisions and choices regarding one's life is crucial when living with dementia. This inter-disciplinary study draws on the concept of relational autonomy to explore how working-age people living dementia seek to influence their lives, and what makes it easier or more difficult for them in their everyday life. The data consist of three focus group discussions conducted with 12 retired adults who developed dementia while still employed. The results illuminate various resources that enable a person to (a) handle their difficulties at work and related consequences with dignity, (b) manage everyday tasks and live a fulfilling life, and (c) fight the stigma associated with (working-age) dementia. Challenges related to these aspects reported by the participants reveal gaps and obstacles that impede the full realisation of the rights of people living with early onset dementia. This research highlights the need for workplace education for different stakeholders, equal and ongoing access to guidance and counselling for younger people who live with dementia, and an effort by society as a whole to eradicate stigma.
Place, publisher, year, edition, pages
Cambridge University Press, 2023
Keywords
Public Health, Environmental and Occupational Health, Geriatrics and Gerontology, Arts and Humanities (miscellaneous), Social Psychology, Health(social science)
National Category
Other Social Sciences Health Sciences
Identifiers
urn:nbn:se:liu:diva-180830 (URN)10.1017/s0144686x21001525 (DOI)000742554300001 ()
Funder
Academy of Finland, 318848Forte, Swedish Research Council for Health, Working Life and Welfare, 2017-02303
Note
Funding: Academy of FinlandAcademy of FinlandEuropean Commission [314749, 318848]; Swedish Council for Health, Working Life and Welfare, FORTE [2017-02303]; Canadian Institute for Health ResearchCanadian Institutes of Health Research (CIHR) [MYB155683]; Ontario Shores Research Chair in Dementia Well-being
2021-11-032021-11-032023-11-07Bibliographically approved