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Odzakovic, E., Kullberg, A., Hellström, I., Andrew, C., Sarah, C., Kainde, M., . . . Richard, W. (2019). ‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia. Ageing & Society, 9, 1-26
Open this publication in new window or tab >>‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia
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2019 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 9, p. 1-26Article in journal (Refereed) Epub ahead of print
Abstract [en]

The extent of social isolation experienced by people living with dementia who reside in the community has been well acknowledged, yet little is known about how people living alone with dementia maintain neighbourhood-based connections. The purpose of this study is to examine the experiences of people with dementia who live alone, focusing upon how they establish social networks and relationships in a neighbourhood context, and how they are supported to maintain this social context within everyday life. Multiple data collection methods were used including, semi-structured interviews, walking interviews, guided home tours and social network mapping, which were conducted with 14 community-dwelling people living alone with dementia (11 women and three men) situated across the three international study sites in England, Scotland and Sweden. Data were analysed using thematic analysis. The analysis revealed four main themes: (a) making the effort to stay connected; (b) befriending by organisations and facilitated friendships; (c) the quiet neighbourhood atmosphere; and (d) changing social connections. The analysis suggests that people with dementia who live alone were active agents who took control to find and maintain relationships and social networks in the neighbourhood. Our findings indicate the need to raise awareness about this specific group in both policy and practice, and to find creative ways to help people connect through everyday activities and by spontaneous encounters in the neighbourhood.

Place, publisher, year, edition, pages
Cambridge University Press, 2019
Keywords
Dementia, living alone, neighbourhood, community, qualitative research, social networks, relationships, solitude
National Category
Public Health, Global Health, Social Medicine and Epidemiology Nursing Social Work
Identifiers
urn:nbn:se:liu:diva-160696 (URN)10.1017/s0144686x19001259 (DOI)
Available from: 2019-10-02 Created: 2019-10-02 Last updated: 2019-10-09Bibliographically approved
Odzakovic, E., Hyden, L.-C., Festin, K. & Kullberg, A. (2019). People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study. Scandinavian Journal of Public Health, 47(2), 229-239
Open this publication in new window or tab >>People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study
2019 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 47, no 2, p. 229-239Article in journal (Refereed) Published
Abstract [en]

AIMS: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area).

METHODS: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables.

RESULTS: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities.

CONCLUSIONS: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Home care services, cross-sectional study, dementia, foreign born, ordinary housing, special housing
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:liu:diva-146049 (URN)10.1177/1403494818755600 (DOI)000462758700019 ()29409432 (PubMedID)2-s2.0-85042217866 (Scopus ID)
Available from: 2018-03-23 Created: 2018-03-23 Last updated: 2019-04-18Bibliographically approved
Odzakovic, E., Hellström, I., Ward, R. & Kullberg, A. (2018). 'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.. Dementia, Article ID 1471301218817453.
Open this publication in new window or tab >>'Overjoyed that I can go outside': Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia.
2018 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, article id 1471301218817453Article in journal (Refereed) Epub ahead of print
Abstract [en]

This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish field site of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method. Four themes were revealed from these interviews: life narratives embedded within neighbourhood; the support of selfhood and wellbeing through movement; the neighbourhood as an immediate social context; and restorative connections to nature. These themes were distilled into the 'essence' of what neighbourhood meant for the people we interviewed: A walkable area of subjective significance and social opportunity in which to move freely and feel rejuvenated. We have found that the neighbourhood for community-dwelling people with dementia holds a sense of attachment and offers the potential for freedom of movement. Our research indicates that a dementia diagnosis doesn't necessarily reduce this freedom of movement. The implications for practice and policy are considered: future research should explore and pay closer attention to the diverse living conditions of people living with dementia, and not least the particular challenges faced by people living alone with dementia.

Keywords
community-dwelling, dementia, interpretative phenomenology, lived experiences, neighbourhood, walking interviews
National Category
Geriatrics
Identifiers
urn:nbn:se:liu:diva-153897 (URN)10.1177/1471301218817453 (DOI)30541394 (PubMedID)
Available from: 2019-01-18 Created: 2019-01-18 Last updated: 2019-08-23
Odzakovic, E. & Kullberg, A. (2016). Boendemiljö och grannskap (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 87-95). Malmö: Gleerups Utbildning AB
Open this publication in new window or tab >>Boendemiljö och grannskap
2016 (English)In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 87-95Chapter in book (Other academic)
Place, publisher, year, edition, pages
Malmö: Gleerups Utbildning AB, 2016 Edition: 1
Keywords
Demenssjuka, Demens
National Category
Humanities Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Identifiers
urn:nbn:se:liu:diva-126094 (URN)978-91-4069-165-1 (ISBN)
Available from: 2016-03-14 Created: 2016-03-14 Last updated: 2016-04-25Bibliographically approved
Ekdahl, A. W., Odzakovic, E. & Hellström, I. (2016). LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY. The Journal of Nutrition, Health & Aging, 20(3), 275-279
Open this publication in new window or tab >>LIVING UNNOTICED: COGNITIVE IMPAIRMENT IN OLDER PEOPLE WITH MULTIMORBIDITY
2016 (English)In: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 20, no 3, p. 275-279Article in journal (Refereed) Published
Abstract [en]

Objectives: To investigate the correlation between MMSE <= 23 and the presence of a diagnosis of dementia in the medical record in a population with multimorbidity. Design, setting, and participants: This cross-sectional study was part of the Ambulatory Geriatric Assessment - a Frailty Intervention Trial (AGe-FIT; N = 382). Participants were community dwelling, aged >= 75 years, had received inpatient hospital care at least three times during the past 12 months, and had three or more concomitant diagnoses according to the International Classification of Diseases, 10th revision. Measurements: The Mini Mental State Examination (MMSE) was administered at baseline. Medical records of participants with MMSE scores < 24 were examined for the presence of dementia diagnoses and two years ahead. Results: Fifty-three (16%) of 337 participants with a measure of MMSE had a MMSE scores < 24. Six of these 53 (11%) participants had diagnoses of dementia (vascular dementia, n = 4; unspecified dementia, n = 1; Alzheimers disease, n = 1) according to medical records; 89% did not. Conclusions: A MMSE-score < 24 is not well correlated to a diagnosis of dementia in the medical record in a population of elderly with multimorbidity. This could imply that cognitive decline and the diagnosis of dementia remain undetected in older people with multimorbidity. Proactive care of older people with multimorbidity should focus on cognitive decline to detect cognitive impairment and to provide necessary help and support to this very vulnerable group.

Place, publisher, year, edition, pages
SPRINGER FRANCE, 2016
Keywords
Multimorbidity; cognitive decline; dementia; under-diagnosis
National Category
Geriatrics
Identifiers
urn:nbn:se:liu:diva-128973 (URN)10.1007/s12603-015-0580-2 (DOI)000374701800006 ()26892576 (PubMedID)
Available from: 2016-06-09 Created: 2016-06-07 Last updated: 2017-11-30
Odzakovic, E., Nedlund, A.-C. & Taghizadeh Larsson, A. (2015). Citizenship and Social Inclusion for People with Dementia: A Register Study in a Swedish Context on the Distribution of Social - Care Services. In: : . Paper presented at Claiming Full Citizenship: Self Determination Personalization Individualized Funding 2015 International Conference, October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC.
Open this publication in new window or tab >>Citizenship and Social Inclusion for People with Dementia: A Register Study in a Swedish Context on the Distribution of Social - Care Services
2015 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

In Sweden, every citizen has equal right to social-care. The purpose of this session is to investigate how social support is distributed for people with dementia and to compare this distribution in an ethnicity perspective. A statistical analysis will be presented based on data in progress.

National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-124429 (URN)
Conference
Claiming Full Citizenship: Self Determination Personalization Individualized Funding 2015 International Conference, October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC
Available from: 2016-01-31 Created: 2016-01-31 Last updated: 2018-01-10
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-8163-5045

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