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Gunnarsson, Stina
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Gunnarsson, S., Alehagen, S., Lemming, D., Ertzgaard, P., Berntsson, S. G. & Samuelsson, K. (2019). Experiences from intrathecal baclofen treatment based on medical records and patient- and proxy-reported outcome: a multicentre study. Disability and Rehabilitation, 41(9), 1037-1043
Open this publication in new window or tab >>Experiences from intrathecal baclofen treatment based on medical records and patient- and proxy-reported outcome: a multicentre study
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2019 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 41, no 9, p. 1037-1043Article in journal (Refereed) Published
Abstract [en]

Purpose: To investigate patient satisfaction with intrathecal baclofen treatment, complications from the treatment, and the impact of general expectations on treatment outcome in relation to satisfaction.

Methods: A multicentre study with cross-sectional design. Data were collected through questionnaires and patient records. Patients were recruited from six outpatient intrathecal baclofen clinics in Sweden. Eighty-three patients who had been treated with intrathecal baclofen for 1–4 years were included. For patients unable to communicate, data were collected through a proxy. The Patient Global Impression of Change was used to measure patients’ general satisfaction with change from intrathecal baclofen treatment. The Life Orientation Test – revised, was used to measure general expectations/optimism.

Results: General satisfaction with intrathecal baclofen treatment was high; 51/77 patients reported “much improved” or “very much improved.” There was no relationship between the two main outcomes (general satisfaction and general expectations/optimism) (rs = 0.12, p = 0.382). The two groups; those who could and those who could not communicate, did differ regarding personal characteristics and should be evaluated as such.

Conclusions: Most patients/proxies reported a high level of satisfaction with intrathecal baclofen treatment. The reported satisfaction with intrathecal baclofen treatment was not dependent on general expectations.

  • Implications for Rehabilitation
  • Patients with intrathecal baclofen treatment report low levels of health and quality of life at the same time as they are highly satisfied with their treatment.

  • Intrathecal baclofen should be equally offered to both optimistic and less optimistic patients.

  • Patients who are able to/not able to communicate, differs in characteristics and should be informed and followed up in different ways in daily clinical practice.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
General expectations, optimism, ITB, satisfaction, proxy
National Category
Clinical Medicine
urn:nbn:se:liu:diva-144427 (URN)10.1080/09638288.2017.1419291 (DOI)000465207500004 ()29307239 (PubMedID)2-s2.0-85041008064 (Scopus ID)

Funding agencies:  County Council of Ostergotland; Medical Research Council of Southeast Sweden; Swedish Association of Persons with Neurological Disabilities

Available from: 2018-01-22 Created: 2018-01-22 Last updated: 2019-05-28Bibliographically approved

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