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Condition-related knowledge among children and adolescents with spina bifida in a Swedish county
Östergötlands Läns Landsting, Sinnescentrum, Smärt och rehabiliteringscentrum.
Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för inflammationsmedicin. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Hjärt- och Medicincentrum, Hudkliniken i Östergötland. Östergötlands Läns Landsting, Närsjukvården i västra Östergötland, Forsknings- och utvecklingsenheten för Närsjukvården i Östergötland.ORCID-id: 0000-0001-8336-9767
Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Närsjukvården i västra Östergötland, Forsknings- och utvecklingsenheten för Närsjukvården i Östergötland.
Linköpings universitet, Institutionen för teknik och naturvetenskap, Medie- och Informationsteknik. Linköpings universitet, Tekniska högskolan. (Visual learning and communication)ORCID-id: 0000-0003-1032-2145
2014 (engelsk)Inngår i: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 16, nr 2, s. 127-140Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Spina bifida is a congenital birth defect, resulting in physical and cognitive dysfunctions. Condition-related knowledge among children and adolescents with spina bifida is essential to facilitate independent management of their condition. The aim was to describe the condition-related knowledge among children and adolescents with spina bifida in a Swedish county. Thirteen persons with spina bifida (10 to 17 years) participated. Condition-related knowledge was assessed (n = 13) using a questionnaire (KOSB) and a semi-structured interview (n = 8). Interview data were analyzed using qualitative content analysis. The participants had well-developed knowledge concerning proper bladder management, but were lacking knowledge of signs of shunt malfunctioning and etiology. Some participants were uninterested in learning about their condition, despite being aware that they lacked knowledge. The findings indicate potential areas that may be included in local educational initiatives. It should be considered that persons with spina bifida may not be motivated to learn more about their condition.

sted, utgiver, år, opplag, sider
Taylor & Francis Group, 2014. Vol. 16, nr 2, s. 127-140
Emneord [en]
spina bifida, children, adolescents, condition knowledge, qualitative content analysis
HSV kategori
Identifikatorer
URN: urn:nbn:se:liu:diva-84979DOI: 10.1080/15017419.2012.735202OAI: oai:DiVA.org:liu-84979DiVA, id: diva2:563349
Tilgjengelig fra: 2012-10-29 Laget: 2012-10-29 Sist oppdatert: 2017-12-07

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Falk, LarsWilhelmsson, SusanHöst, Gunnar E.

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