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Self-care among patients with Inflammatory Bowel Disease: An interview study
Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten. County Council of Kalmar, Kalmar, Sweden.
Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Närsjukvården i västra Östergötland, Forsknings- och utvecklingsenheten för Närsjukvården i Östergötland.
Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för neuro- och inflammationsvetenskap. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Hjärt- och Medicincentrum, Magtarmmedicinska kliniken.
University of Pennsylvania, School of Nursing, Philadelphia, USA.
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2016 (engelsk)Inngår i: Gastroenterology Nursing, ISSN 1042-895X, Vol. 39, nr 2, s. 121-128Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Inflammatory bowel disease (IBD) is a chronic disease of unknown etiology. The disease occurs early in life and the burden of symptoms is significant. Patients need to perform self-care to handle their symptoms, but knowledge about what kind of self-care patients do is limited and these individuals need to learn how to manage the symptoms that arise. The aim of this study was to explore self-care among patients with IBD. Twenty adult patients with IBD, 25-66 years of age, were interviewed. Data were analyzed by performing a qualitative content analysis. Four categories with 10 subcategories emerged from the analysis of the interviews. The self-care patients perform consists of symptom recognition (subcategories: physiological sensations and psychological sensations), handling of symptoms (subcategories: adapting the diet, using medical treatment, stress management, and using complementary alternative medicine), planning life (subcategories: planning for when to do activities and when to refrain from activities), and seeking new options (subcategories: seeking knowledge and personal contacts). Self-care consists of symptom recognition, handling life through planning, and accommodating the existing situation with the ultimate goal of maintaining well-being. Being one step ahead facilitates living with IBD. A decision to actively participate in care of a chronic illness is a prerequisite for self-care. Healthcare professionals must consider patients' potential for and desire for self-care when giving advice on self-care activities. Doing so may help people better cope with IBD.

sted, utgiver, år, opplag, sider
Lippincott Williams & Wilkins, 2016. Vol. 39, nr 2, s. 121-128
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Identifikatorer
URN: urn:nbn:se:liu:diva-126617DOI: 10.1097/SGA.0000000000000120ISI: 000377983500007PubMedID: 26166423OAI: oai:DiVA.org:liu-126617DiVA, id: diva2:915919
Merknad

Funding agencies: Medical Research Council of Southeast Sweden-FORSS; County Council of Kalmar; Florence Nightingale Foundation; Ruth and Richard Juhlins foundation

Tilgjengelig fra: 2016-03-31 Laget: 2016-03-31 Sist oppdatert: 2017-05-03bibliografisk kontrollert

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