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Grief and loss for patients before and after heart transplant
School of Social Work, Faculty of Community Services, Ryerson University, Toronto, Ontario, Canada.
School of Social Work, Faculty of Community Services, Ryerson University, Toronto, Ontario, Canada.
Division of Cardiology and Transplant, University Health Network, 585 University Avenue, Toronto, Ontario, Canada.
Linköpings universitet, Institutionen för tema, Tema Genus. Linköpings universitet, Filosofiska fakulteten.ORCID-id: 0000-0002-9360-0931
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2016 (Engelska)Ingår i: Heart & Lung, ISSN 0147-9563, E-ISSN 1527-3288, Vol. 45, nr 3, s. 193-198Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Objectives

The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts.

Background

There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience.

Methods

Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants.

Results

Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned.

Conclusions

Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.

Ort, förlag, år, upplaga, sidor
Philadelphia, PA, USA: Mosby, Inc. , 2016. Vol. 45, nr 3, s. 193-198
Nyckelord [en]
Grief; Transplantation; Heart; Qualitative; Merleau-Ponty; Disenfranchised
Nationell ämneskategori
Övrig annan medicin och hälsovetenskap
Identifikatorer
URN: urn:nbn:se:liu:diva-126230DOI: 10.1016/j.hrtlng.2016.01.006ISI: 000375819900006PubMedID: 26897722OAI: oai:DiVA.org:liu-126230DiVA, id: diva2:913063
Anmärkning

Funding agencies: Faculty of Community Services at Ryerson University

Tillgänglig från: 2016-03-18 Skapad: 2016-03-18 Senast uppdaterad: 2017-11-30Bibliografiskt granskad

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Shildrick, Margrit

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