liu.seSök publikationer i DiVA
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
"Experiences of the burden of treatment" - patient-reports of facilitated subcutaneous immunoglobulin treatment in adults with immunodeficiency.
School of Health and Welfare at Jönköping University, Region Jönköping Council, Sweden.
Region Östergötland, Hjärt- och Medicincentrum, Infektionskliniken i Östergötland.
Region Hospital of Ryhov, Jönköping, Sweden..
Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för mikrobiologi och molekylär medicin. Linköpings universitet, Medicinska fakulteten. Region Hospital of Ryhov, Jönköping, Sweden.
Visa övriga samt affilieringar
2018 (Engelska)Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, nr 23-24, s. 4270-4278Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

AIMS AND OBJECTIVES: To evaluate patient-reported experiences of facilitated subcutaneous immunoglobulin treatment in adults with primary or secondary immunodeficiency.

BACKGROUND: Decreased levels of circulating antibodies (humoral immunodeficiency) are often associated with higher infection rates which cause problems in daily living, for example symptoms of severe and recurrent bacterial infections that may cause chronic lung diseases. For some diagnoses, treatment with immunoglobulin becomes critical and life-long. The acceptability of administration forms is important to achieve adherence to treatment, and to increase quality of life for these patients.

DESIGN: Convergent mixed method approach.

METHODS: A structured telephone interview with nine questions evaluated on a score scale about treatment experience, satisfaction, and ancillary supplies was used, followed by open-ended questions for each item.

RESULTS: Prohibiting factors were revealed, exemplified by problems due to technical issues and ancillary supply issues. Promoting factors was shown by high a satisfaction when combining treatment with daily life as well as increased wellbeing. Facilitated subcutaneous immunoglobulin treatment led to fewer treatment sessions, with a time-saving aspect also described by high scores in the item concerning longer treatment interval.

CONCLUSIONS: The opportunity to be given the best possible treatment plan adjusted for each patients' situation is central. Healthcare professionals should discuss the different aspects that can promote and inhibit the outcomes of treatment.

RELEVANCE TO CLINICAL PRACTICE: The results can help professionals to understand different factors that may impinge on the patients' everyday life when they are forced into a lifelong treatment regimen. This knowledge is also important for nurses who have a responsibility to promote health concerning patients with long-term conditions in general. This article is protected by copyright. All rights reserved.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2018. Vol. 27, nr 23-24, s. 4270-4278
Nyckelord [en]
Facilitated subcutaneous immunoglobulin, immunodeficiency, long-term conditions, adherence, burden of treatment, convergent mixed-method, patient preferences, self-management
Nationell ämneskategori
Infektionsmedicin
Identifikatorer
URN: urn:nbn:se:liu:diva-148996DOI: 10.1111/jocn.14580ISI: 000449828900006PubMedID: 29917296OAI: oai:DiVA.org:liu-148996DiVA, id: diva2:1223146
Anmärkning

Funding agencies: Shire

Tillgänglig från: 2018-06-25 Skapad: 2018-06-25 Senast uppdaterad: 2022-03-24

Open Access i DiVA

Fulltext saknas i DiVA

Övriga länkar

Förlagets fulltextPubMed

Sök vidare i DiVA

Av författaren/redaktören
Vågström, PerNilsdotter-Augustinsson, Åsa
Av organisationen
Infektionskliniken i ÖstergötlandAvdelningen för mikrobiologi och molekylär medicinMedicinska fakulteten
I samma tidskrift
Journal of Clinical Nursing
Infektionsmedicin

Sök vidare utanför DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 143 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf