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Identifying Unmet Rehabilitation Needs in Patients After Stroke With a Graphic Rehab-Compass (TM)
Umea Univ, Sweden.
Umea Univ, Sweden; Karolinska Inst, Sweden.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Department of Rehabilitation Medicine.
Umea Univ, Sweden.
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2018 (English)In: Journal of Stroke & Cerebrovascular Diseases, ISSN 1052-3057, E-ISSN 1532-8511, Vol. 27, no 11, p. 3224-3235Article in journal (Refereed) Published
Abstract [en]

Background: Unmet rehabilitation needs are common among stroke survivors. We aimed to evaluate whether a comprehensive graphic "Rehab-Compass," a novel combination of structured patient-reported outcome measures, was feasible and useful in facilitating a capture of patients rehabilitation needs in clinical practice. Methods: A new graphic overview of broad unmet rehabilitation needs covers deficits in functioning, daily activity, participation, and quality of life. It was constructed by using 5 patient-oriented, well-validated, and reliable existing instruments with converted data into a 0 (worst outcome) to 100 (best outcome) scale but unchanged in terms of variable properties. Satisfaction of the Rehab-Compass (TM) was studied by a qualitative interview of 9 patients with stroke and 3 clinicians. Practical feasibility and capacity of the instrument were evaluated in a cross sectional study with 48 patients at 5-month follow-ups after subarachnoid hemorrhage. Results: The Rehab-Compass (TM) identified and graphically visualized a panoramic view of the multidimensional needs over time which was completed before clinical consultation. The Rehab-Compass (TM) appeared to be feasible and time efficient in clinical use. The interviews of both patients and clinicians showed high satisfaction when using the Rehab-Compass (TM) graph. In the studied stroke patients, the Rehab-Compass (TM) identified memory and processing information, fatigue, mood, and pain after subarachnoid hemorrhage as the most common problems. Conclusions: The graphic Rehab-Compass (TM) seems to be a feasible, useful, and time-saving tool for identification of unmet rehabilitation needs among stroke survivors in clinical practice. Further research is needed to make the Rehab-Compass (TM) more concise and evaluate the instrument among different stroke subgroups.

Place, publisher, year, edition, pages
ELSEVIER SCIENCE BV , 2018. Vol. 27, no 11, p. 3224-3235
Keywords [en]
Stroke; rehabilitation; needs assessment; outcome and process assessment; referral and consultation; quality improvement
National Category
Neurology
Identifiers
URN: urn:nbn:se:liu:diva-153387DOI: 10.1016/j.jstrokecerebrovasdis.2018.07.013ISI: 000450569700044PubMedID: 30097401OAI: oai:DiVA.org:liu-153387DiVA, id: diva2:1271785
Note

Funding Agencies|Vasterbotten County Council; Umea University (ALF Foundation); Swedish Stroke Foundation (Stroke Riksforbundet); Northern Swedish Stroke Fund (Strokeforskning I Norrland Insamlingsstiftelse); Swedish Heart and Lung Foundation

Available from: 2018-12-18 Created: 2018-12-18 Last updated: 2019-04-30

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Levi, Richard

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Division of Community MedicineFaculty of Medicine and Health SciencesDepartment of Rehabilitation Medicine
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