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Patients’ and communication partners’ experiences of communicative changes in Parkinson’s disease
Linköping University, Department of Clinical and Experimental Medicine, Division of Speech language pathology, Audiology and Otorhinolaryngology. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Division of Speech language pathology, Audiology and Otorhinolaryngology. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Division of Speech language pathology, Audiology and Otorhinolaryngology. Linköping University, Faculty of Medicine and Health Sciences.ORCID iD: 0000-0002-4405-5340
2019 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose: The aim of the present study was to investigate the experiences of people with Parkinson’s disease and their close communication partners regarding disease-related communicative changes and participation in everyday conversations.

Materials and methods: Semi-structured qualitative interviews were conducted with six dyads consisting of a person with Parkinson’s disease and a close communication partner. The interview material was analysed through thematic analysis.

Results: The main theme was the experiences of barriers and facilitators for participation in conversations. Subthemes were experiences related to changes in voice and articulation, language and cognition, body language and facial expressions, fatigue, self-image, communicative initiative, and familiarity with conversation partner. The results show individual variation. A change observed in almost all dyads was the person with Parkinson’s disease participating less in conversations.

Conclusions: Assessment and interventions should be based on a broad perspective on communication, and individuals’ priorities should be foregrounded in intervention planning. Both the person with Parkinson’s disease and communication partners need to make adjustments for communication to work. Therefore, close communication partners should be included in assessment and intervention of communicationin Parkinson’s disease from an early stage.

Place, publisher, year, edition, pages
Taylor & Francis, 2019.
Keywords [en]
Communication; participation; dysarthria; Parkinson’s disease; experiences; communication partner
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Other Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-155068DOI: 10.1080/09638288.2018.1539875PubMedID: 30669899Scopus ID: 2-s2.0-85060575229OAI: oai:DiVA.org:liu-155068DiVA, id: diva2:1295558
Available from: 2019-03-12 Created: 2019-03-12 Last updated: 2019-07-26Bibliographically approved

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Samuelsson, ChristinaMüller, Nicole

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Johansson, Inga-LenaSamuelsson, ChristinaMüller, Nicole
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