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Prerequisites for carrying out physiotherapy and physical activity: experiences from adults with cerebral palsy
Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och hälsa, Sjukgymnastik. Östergötlands Läns Landsting, Rekonstruktionscentrum, Rehabiliteringsmedicinska kliniken US.
Linköpings universitet, Institutionen för klinisk och experimentell medicin, Rehabiliteringsmedicin. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Rekonstruktionscentrum, Rehabiliteringsmedicinska kliniken US.
Linköpings universitet, Institutionen för medicin och hälsa, Sjukgymnastik. Linköpings universitet, Hälsouniversitetet. (Landstinget i Östergötland; Centre for Public Health Sciences; Centre for Public Health Sciences; Folkhälsovetenskapligt centrum; Folkhälsovetenskapligt centrum:)
2009 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 31, nr 3, s. 161-169Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose: The aim of this study was to get a deeper understanding into how adults with cerebral palsy (CP) experience physiotherapy and physical activity in a perspective from childhood to adulthood; and how personal and environmental factors influence possibilities for physiotherapy and physical activity.

Method: Data was collected through interviews with 22 community-living adults (35 - 68 years) with CP, from five counties in Sweden. The questions were open-ended and the interviews were taped and transcribed to written language. The material was analysed through qualitative content analysis, a classification process resulting in different themes.

Results: The narratives from the 22 informants, based on experiences from childhood to adulthood, resulted in a description of prerequisites for carrying out physiotherapy and physical activity. Five different themes were identified: (i) Being enjoyable, (ii) Giving effects, (iii) Being comprehensible, (iv) Being integrated in daily life, and (v) Supportive healthcare with competent professionals.

Conclusion: The information from the interviews elucidates the importance of a lifelong support from healthcare professionals. Physiotherapists with attentiveness to different life situations in combination with good understanding and knowledge in CP could facilitate continuous physical activity in people growing up and ageing with CP.

Ort, förlag, år, upplaga, sidor
2009. Vol. 31, nr 3, s. 161-169
Nyckelord [en]
Ageing, cerebral palsy, healthcare, physical training, well-being
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
URN: urn:nbn:se:liu:diva-16371DOI: 10.1080/09638280701850934OAI: oai:DiVA.org:liu-16371DiVA, id: diva2:134214
Anmärkning
This is an electronic version of an article published in:Karin Sandström, Kersti Samuelsson and Birgitta Öberg, Prerequisites for carrying out physiotherapy and physical activity: experiences from adults with cerebral palsy, 2009, Disability and rehabilitation, (31), 3, 161-169.Disability and rehabilitation is available online at informaworld:http://dx.doi.org/10.1080/09638280701850934Copyright: Taylor Francis http://www.informaworld.com/Tillgänglig från: 2009-03-10 Skapad: 2009-01-19 Senast uppdaterad: 2017-12-14Bibliografiskt granskad
Ingår i avhandling
1. Adults with Cerebral Palsy: living with a lifelong disability
Öppna denna publikation i ny flik eller fönster >>Adults with Cerebral Palsy: living with a lifelong disability
2009 (Engelska)Licentiatavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Although Cerebral Palsy (CP) is a lifelong disability, the research has mainly focused in children with CP. However, in recent years new studies have examined the different aspects of being an adult with a congenital disability.

The overall aim of this thesis is to contribute to increased knowledge and understanding in living with cerebral palsy as an adult, with special focus on the lived body and physiotherapy/physical activity.

The thesis is based on two populations. The first population (study I) consists of 48 individuals with a variation in gross motor function equivalent to the general CP‐population, including all five levels according to a gross motor classification (Gross Motor Function Classification System, GMFCS). The second population (study II and III), consists of 22 individuals, representing level II to IV according to the gross motor classification (GMFCS).

Study I comprises structured questions and clinical investigations with well‐recognized assessment instruments and are analysed according to quantitative methods. Study II and III are based on in‐depth interviews and are analysed using qualitative methods.

The overall result is that there is a deterioration of motor function in many individuals already early in adulthood. These deteriorations are preceded and/or followed by musculoskeletal problems such as pain and limited range of motion, often in combination with fatigue. Despite deteriorations many people maintain daily personal activities, but are often forced to prioritize among societal activities.

The deterioration is often perceived as slow and imperceptible, but it also results in a change in self‐image with new thoughts about otherness and being different. This can be experienced in relation to activity limitations with difficulties in taking part in other people’s activities, but also in relation to attitudes and treatment from other people. The process of deterioration also influences autonomy, with limited ability to determine one’s own daily life.

Important prerequisites for carrying out physical activity in a longer perspective is that it has to be enjoyable, give effects, be comprehensible and integrated in daily life. In addition it is important with support from competent professionals in health care. Experiences of these prerequisites vary and, above all, in adulthood the lack of competent support is a factor which is illuminated of the majority of the interviewed and assessed individuals.

Ort, förlag, år, upplaga, sidor
Linköping: Linköping University Electronic Press, 2009. s. 59
Serie
Linköping Studies in Health Sciences. Thesis, ISSN 1100-6013 ; 91
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:liu:diva-15771 (URN)978-91-7393-731-3 (ISBN)
Presentation
2009-01-23, Berzeliussalen, ingång 65, Campus US, Linköpings Universitet, Linköping, 09:00 (Engelska)
Handledare
Tillgänglig från: 2009-01-19 Skapad: 2009-01-19 Senast uppdaterad: 2017-04-15Bibliografiskt granskad

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Sandström, KarinSamuelsson, KerstiÖberg, Birgitta

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