liu.seSearch for publications in DiVA
Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Cancer patients' interpretations of verbal expressions when given information about ending cancer treatment
Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Närsjukvården i östra Östergötland, Palliativt kompetenscentrum.ORCID-id: 0000-0002-9606-3238
Karolinska Institutet, FOUU, Stockholms Sjukhem, Stockholm .
Department of Public Health and Caring Sciences, Section of Caring Sciences, Uppsala University, Uppsala, Sweden.
2002 (engelsk)Inngår i: Palliative Medicine, ISSN 0269-2163, Vol. 16, nr 4, s. 323-330Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

BACKGROUND: Cancer patients' interpretations of the meaning of words used when given bad news are not well studied in medical settings. The aim of this study was to ascertain what significance verbal expressions had for cancer patients when they were given information about ending active tumour treatment, and what message they felt they received.

METHODS: Tape-recorded semi-structured interviews were performed and analysed using a qualitative phenomenographical approach.

RESULTS: Thirty patients with incurable cancer admitted to hospital-based home care unit in Sweden participated. Three main categories about the significance of words emerged: 1) words could indicate indirect warnings as being forewarnings, evasive or ambiguous; 2) words could also be perceived as emotionally trying, as threats or abandoning; 3) other words were fortifying and strengthened the patient in this situation. The overall message given during the information could be interpreted differently: either focused on treatment, on quality of life, or on threat and death.

CONCLUSION: The understanding of the significance of words to tailor the information to patients helps the physician to use forewarnings and fortifying words and to identify and avoid the use of threatening words.

sted, utgiver, år, opplag, sider
2002. Vol. 16, nr 4, s. 323-330
Emneord [en]
communication, neoplasms, palliative care, patient perception, phenomenography
HSV kategori
Identifikatorer
URN: urn:nbn:se:liu:diva-13725DOI: 10.1191/0269216302pm543oaOAI: oai:DiVA.org:liu-13725DiVA, id: diva2:21211
Tilgjengelig fra: 2002-05-24 Laget: 2002-05-24 Sist oppdatert: 2015-06-10
Inngår i avhandling
1. Crossing the border: Different ways cancer patients, family members and physicians experience information in the transition to the late palliative phase
Åpne denne publikasjonen i ny fane eller vindu >>Crossing the border: Different ways cancer patients, family members and physicians experience information in the transition to the late palliative phase
2002 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

Information in the transition to the late palliative phase is not a well-studied area, especially not from the perspective of patients and family members. The aim of this thesis was to describe how cancer patients, family members and physicians experience information during the transition from a curative or early palliative phase to a late palliative phase, i.e. when tumour-specific treatment could not be offered. Cancer patients (n=30) admitted to palliative hospital based home care, family members (n=20) of cancer patients, and physicians (n=30) working with cancer patients in different settings were included in order to create a maximum variation sampling.

Tape-recorded, semi-structured interviews and qualitative, phenomenographic analyses were done in all the studies.

Patients described the physician as an expert (study I), an important person during this event, despite characterising him/her in different ways ranging from the empathetic professional to the rough and ready expert. Their relationship with the physician was also stressed. Their own resources, i.e. a sense of well being, a sense of security and individual strength, and their previous knowledge, were important components regarding their ability to take part in the communication (study II). Patients interpret words and phrases carefully and can perceive them as forewarnings, as being emotionally trying, and as fortifying and strengthening (study III). The overall message could be interpreted as either focused on quality if life, on treatment or on death and threat.

Family members wanted to protect the patient during this period and could be very active and prominent in their protective role (study IV). However, other family members described themselves as being in the background more or less involuntarily. Family members also felt that there were expectations regarding their behaviour, either that they should take over in terms of communication, or that they should restrict their participation. When giving information, the physicians had a clear goal - to make the patient understand while being as considerate toward the patient as possible. However, the strategies for reaching this goal differed and included: explaining and convincing, softening the impact and vaguely suggesting, preparing and adapting. Some physicians had a main strategy while others mixed different strategies depending on the context.

The experience of receiving and providing information about discontinuing tumour specific treatment is like crossing a border, where patients experience the behaviour of the physician and the words they express of great significance. Family members assume the role of protectors. Physicians use different strategies in order to help patients cross the border.

sted, utgiver, år, opplag, sider
Linköping: Linköping University Electronic Press, 2002. s. 68
Serie
Linköping University Medical Dissertations, ISSN 0345-0082 ; 727
Emneord
communication, information, patient-physician relationship, family, prognosis, palliative care, cancer
HSV kategori
Identifikatorer
urn:nbn:se:liu:diva-5231 (URN)91-7373-166-8 (ISBN)
Disputas
2002-04-26, Fornborgen, Vrinnevisjukhuset, Norrköping, 09:00 (engelsk)
Opponent
Veileder
Merknad
On the day of the public defence the status of the article II was: In press and the title was: Patient interpretation of verbal expressions when given information about ending cancer treatment.; the status of article V was: Submitted.Tilgjengelig fra: 2002-05-24 Laget: 2002-05-24 Sist oppdatert: 2015-06-10bibliografisk kontrollert

Open Access i DiVA

Fulltekst mangler i DiVA

Andre lenker

Forlagets fulltekstLink to Ph.D. Thesis

Personposter BETA

Friedrichsen, MariaStrang, Peter

Søk i DiVA

Av forfatter/redaktør
Friedrichsen, MariaStrang, Peter
Av organisasjonen

Søk utenfor DiVA

GoogleGoogle Scholar

doi
urn-nbn

Altmetric

doi
urn-nbn
Totalt: 244 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf