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Patients' Perspective of Factors Influencing Quality of Life While Living With Crohn Disease
Linköpings universitet, Institutionen för medicin och hälsa. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Hjärt- och Medicincentrum, Endokrin- och magtarmmedicinska kliniken US.
Linköpings universitet, Institutionen för klinisk och experimentell medicin, Gastroenterologi och hepatologi. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Hjärt- och Medicincentrum, Endokrin- och magtarmmedicinska kliniken US.
Linköpings universitet, Institutionen för medicin och hälsa, Omvårdnad. Linköpings universitet, Hälsouniversitetet.
Linköpings universitet, Institutionen för medicin och hälsa, Omvårdnad. Linköpings universitet, Hälsouniversitetet.
2010 (engelsk)Inngår i: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 33, nr 1, s. 37-44Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Crohn disease is a chronic inflammatory bowel disease of unknown etiology. The chronic, relapsing nature of Crohn disease produces physical, psychological, and social stress. The disease occurs early in life, and the effects of Crohn disease on daily life are associated with symptom burden; thus, managing their disease and coping with its impact is a lifelong process for sufferers. This study was undertaken to identify and describe the meaning of quality of life in patients with Crohn disease. Using a grounded theory methodology, 11 interviews were performed with 6 men and 5 women, 29–83 years of age, all suffering from Crohn disease. The experience of quality of life was associated with limitations in daily activity, the major theme that emerged from the analysis. Quality of life varied depending on how the patient managed limitations related to the symptoms of the disease. The categories of self-image, confirmatory relations, powerlessness, attitude toward life, and sense of well-being were conceptualized as the dominant themes derived from the data. When caring for these patients, it is important to identify limitations and provide support so that patients are able to maintain a daily life that can be perceived as normal and routine.

sted, utgiver, år, opplag, sider
Lippincott Williams & Wilkins, 2010. Vol. 33, nr 1, s. 37-44
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URN: urn:nbn:se:liu:diva-63183DOI: 10.1097/SGA.0b013e3181cd49d0OAI: oai:DiVA.org:liu-63183DiVA, id: diva2:376772
Tilgjengelig fra: 2010-12-13 Laget: 2010-12-13 Sist oppdatert: 2017-12-11bibliografisk kontrollert

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Pihl Lesnovska, KatarinaHjortswang, HenrikEk, Anna-ChristinaHollman Frisman, Gunilla

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