Health and Social Service Access Among Family Caregivers of People with Parkinsons Disease
2016 (English)In: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 6, no 3, 581-587 p.Article in journal (Refereed) Published
Background: Being a family caregiver for a person with Parkinsons disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHP-Sleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.
Place, publisher, year, edition, pages
IOS PRESS , 2016. Vol. 6, no 3, 581-587 p.
Caregivers; health; health services needs and demand; Parkinson disease
Public Health, Global Health, Social Medicine and Epidemiology
IdentifiersURN: urn:nbn:se:liu:diva-132101DOI: 10.3233/JPD-160811ISI: 000383803000012PubMedID: 27176624OAI: oai:DiVA.org:liu-132101DiVA: diva2:1038353
Funding Agencies|Swedish Research Council; Swedish Parkinson Foundation; Swedish Parkinson Academy; Capio Palliative Care Unit, Stockholm, Sweden; Center for Collaborative Palliative Care, Linnaeus University, Kalmar, Sweden; Kristianstad University, Kristianstad, Sweden2016-10-182016-10-172016-10-18