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Health and Social Service Access Among Family Caregivers of People with Parkinsons Disease
Lund University, Sweden.
Lund University, Sweden.
Ersta Skondal University of Coll, Sweden; Capio Palliat Care Unit, Sweden.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Ersta Skondal University of Coll, Sweden; Linnaeus University, Sweden.
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2016 (English)In: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 6, no 3, 581-587 p.Article in journal (Refereed) Published
Abstract [en]

Background: Being a family caregiver for a person with Parkinsons disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHP-Sleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.

Place, publisher, year, edition, pages
IOS PRESS , 2016. Vol. 6, no 3, 581-587 p.
Keyword [en]
Caregivers; health; health services needs and demand; Parkinson disease
National Category
Public Health, Global Health, Social Medicine and Epidemiology
URN: urn:nbn:se:liu:diva-132101DOI: 10.3233/JPD-160811ISI: 000383803000012PubMedID: 27176624OAI: diva2:1038353

Funding Agencies|Swedish Research Council; Swedish Parkinson Foundation; Swedish Parkinson Academy; Capio Palliative Care Unit, Stockholm, Sweden; Center for Collaborative Palliative Care, Linnaeus University, Kalmar, Sweden; Kristianstad University, Kristianstad, Sweden

Available from: 2016-10-18 Created: 2016-10-17 Last updated: 2016-10-18

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