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Considering patient non-participation in health care.
FoU Seniorium, Danderyd; Örebro universitet, Hälsovetenskapliga institutionen.
Institutionen för vårdvetenskap och hälsa, Sahlgrenska akademin, Göteborg.
Örebro universitet, Institutionen för vårdvetenskap och omsorg.
2008 (English)In: Health Expectations, ISSN 1369-6513, E-ISSN 1369-7625, Vol. 11, no 3, 263-71 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of this study was to depict patient non-participation as described by a diverse group with recent experiences of being patients.

BACKGROUND: Patient participation is regarded as a primary condition for optimal quality of care, suggesting that non-participation should be avoided. A common understanding of the concept of patient non-participation is needed. A discrepancy in definitions of patient non-participation has been found in health-care interactions, health-care classifications and health-care research, and little is known of what patient non-participation represents to patients.

STUDY DESIGN: A survey consisting of closed-ended and open-ended questions was administered to persons that had recently been patients to gather respondents' descriptions of what they considered as patient non-participation. Qualitative content analysis was used to analyse free-text descriptions, and descriptive statistics were used for the close-ended alternatives.

FINDINGS: Lacking information (e.g. not being provided with appropriate information) and lacking recognition (e.g. not being listened to and/or lacking recognition as an individual with individual needs and concerns) were significant aspects of patient non-participation. Furthermore, non-participation encompassed facing organization-centred, as opposed to patient-centred, health care as well as feeling insecure in health care interactions.

CONCLUSION: The findings provide input for a better understanding of what patients experience as non-participation. Organising for the caregivers to be able to thoroughly listen to the patients' illness narratives would easily reduce the risk of patient's experiencing what is described as non-participation and would provide a sound base for patient learning needs.

Place, publisher, year, edition, pages
2008. Vol. 11, no 3, 263-71 p.
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-135712DOI: 10.1111/j.1369-7625.2008.00488.xPubMedID: 18816322OAI: oai:DiVA.org:liu-135712DiVA: diva2:1082705
Available from: 2017-03-17 Created: 2017-03-17 Last updated: 2017-11-29

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
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  • Other style
More styles
Language
  • de-DE
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  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
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