Activities that girls and women with Rett syndrome liked or did ot like to do
2016 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, 1-11 p.Article in journal (Refereed) Epub ahead of print
Objective: Activities occur in all people’s lives. This study investigated over a period of time, 15 years, what activities were enjoyed or not enjoyed and what activities parents and staff liked to do with girls/women with Rett syndrome.
Method: A descriptive study was conducted using secondary data from three earlier questionnaires at the Swedish National Rett Center. The first questionnaire provided data on 123 girls/women with Rett syndrome, the second on 52 and the third questionnaire, on 39. Informants were parents and/or staff, in total 365. Open-ended questions were analysed using a content analysis approach.
Results: Three categories appeared: Being in motion, receiving impressions and having contact. Bathing/swimming, listening to music and being outdoors/walking were the most enjoyed activities over the years. Of the few activities that were reported as being unenjoyable, most were daily care activities. The activities that the parents/staff enjoyed doing with the girls/women were similar to those the girls/women themselves liked to do.
Conclusion: A preliminary overview for both liked and disliked activities of girls/women with Rett syndrome was presented. This knowledge could facilitate the choice and use of activities.
Place, publisher, year, edition, pages
Taylor & Francis, 2016. 1-11 p.
Activities of daily living, human activities, human development, neurodevelopmental disorders, qualitative research
IdentifiersURN: urn:nbn:se:liu:diva-136247DOI: 10.1080/11038128.2016.1250812OAI: oai:DiVA.org:liu-136247DiVA: diva2:1086424