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Like the worst toothache you've had - How people with rheumatoid arthritis describe and manage pain
Linköping University, Department of Social and Welfare Studies, Division of Occupational Therapy. Linköping University, Faculty of Medicine and Health Sciences.
Jönköping University, Sweden.
Linköping University, Department of Clinical and Experimental Medicine, Division of Neuro and Inflammation Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Rheumatology.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center. Jonköping University, Sweden; Curtin University, Australia.
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2017 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 24, no 6, 468-476 p.Article in journal (Refereed) Published
Abstract [en]

Background: Rheumatoid arthritis (RA) is a chronic inflammatory disease often associated with disability. Despite new treatments, pain and activity limitations are still present. Objectives: To describe how persons with RA experience and manage pain in their daily life. Methods: Seven semi-structured focus groups (FGs) were conducted and analyzed using content analysis. Results: The analysis revealed four categories: 1) Pain expresses itself in different ways referred to pain as overwhelming, aching or as a feeling of stiffness. 2) Mitigating pain referred to the use of heat, cold, medications and activities as distractions from the pain. 3) Adapting to pain referred to strategies employed as coping mechanisms for the pain, e.g. planning and adjustment of daily activities, and use of assistive devices. 4) Pain in a social context referred to the participants social environment as being both supportive and uncomprehending, the latter causing patients to hide their pain. Conclusions: Pain in RA is experienced in different ways. This emphasizes the multi-professional team to address this spectrum of experiences and to find pain management directed to the individual experience that also include the persons social environment.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS LTD , 2017. Vol. 24, no 6, 468-476 p.
Keyword [en]
Activities; adapting to pain; mitigating pain; social environment
National Category
Physiotherapy
Identifiers
URN: urn:nbn:se:liu:diva-140079DOI: 10.1080/11038128.2016.1272632ISI: 000407390500009PubMedID: 28052711OAI: oai:DiVA.org:liu-140079DiVA: diva2:1136572
Note

Funding Agencies|Swedish Association of Occupational Therapists

Available from: 2017-08-28 Created: 2017-08-28 Last updated: 2017-09-14

Open Access in DiVA

The full text will be freely available from 2018-01-05 15:20
Available from 2018-01-05 15:20

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Bergström, MariaThyberg, IngridFalkmer, TorbjörnBörsbo, BjörnBjörk, Mathilda
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Division of Occupational TherapyFaculty of Medicine and Health SciencesDivision of Neuro and Inflammation ScienceDepartment of RheumatologyDivision of Community MedicinePain and Rehabilitation CenterRehabilitation Center
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Scandinavian Journal of Occupational Therapy
Physiotherapy

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Citation style
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