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Adolescent life with diabetes-Gender matters for level of distress. Experiences from the national TODS study
University of Gothenburg, Sweden; Sahlgrens University Hospital, Sweden.
Incentive, Denmark.
Karolinska Institute, Sweden.
Linköping University, Department of Clinical and Experimental Medicine, Division of Children's and Women's health. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center of Paediatrics and Gynaecology and Obstetrics, Department of Paediatrics in Linköping.
2017 (English)In: Pediatric Diabetes, ISSN 1399-543X, E-ISSN 1399-5448, Vol. 18, no 7, 651-659 p.Article in journal (Refereed) Published
Abstract [en]

Objective: To examine the relationship between diabetes distress and gender, and the association with glycemic control, social support, health behaviors, and socio-economic status. Methods: All adolescents, aged 15 to 18 years, in the national, pediatric diabetes registry SWE-DIABKIDS with type 1 diabetes were invited to complete an online questionnaire. A total of 2112 teenagers were identified. Results: 453 complete responses were valid for analyses. Young women scored significantly higher on the distress-screening instrument DDS-2. Almost half of the female respondents exhibited moderate to severe diabetes distress-more than twice the proportion than among male respondents (44% vs 19%). Females reported twice as high scores on the fear of hypoglycemia scale (P amp;lt; 0.0001) and had a higher HbA1c value than males (P amp;lt; 0.0001). Gender was highly correlated with distress level even when controlling for multiple factors that may affect distress (parameter(female) = 0.4, P = 0.0003). Particular social problems were highly significant, that is, those who trust that their parents can handle their diabetes when necessary were significantly less distressed than others (P = 0.018). Higher HbA1c levels were associated with higher distress scores (P = 0.0005 [female], P = 0.0487 [male]). Conclusions: Diabetes-related distress is a great burden for adolescents living with diabetes. Actively involved family and friends may reduce diabetes distress, but female adolescents appear to be particularly vulnerable and may need extra focus and support. Our findings indicate that pediatric diabetes teams working with teenagers must intensify the care during this vulnerable period of life in order to reduce the risk of both psychological and vascular complications in young adults.

Place, publisher, year, edition, pages
WILEY , 2017. Vol. 18, no 7, 651-659 p.
Keyword [en]
adolescent; diabetes; distress; female; gender
National Category
Endocrinology and Diabetes
Identifiers
URN: urn:nbn:se:liu:diva-142828DOI: 10.1111/pedi.12478ISI: 000413348000021PubMedID: 28004484OAI: oai:DiVA.org:liu-142828DiVA: diva2:1154949
Note

Funding Agencies|NovoNordisk

Available from: 2017-11-06 Created: 2017-11-06 Last updated: 2017-11-06

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Samuelsson, Ulf
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Division of Children's and Women's healthFaculty of Medicine and Health SciencesDepartment of Paediatrics in Linköping
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CiteExportLink to record
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