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Interpretability of the European Heart Failure Self-care Behaviour scale
University of Medical Centre Utrecht, Netherlands.
University of Medical Centre Utrecht, Netherlands.
University of Medical Centre Utrecht, Netherlands.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Cardiology in Linköping.ORCID iD: 0000-0002-4259-3671
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2017 (English)In: Patient Preference and Adherence, ISSN 1177-889X, E-ISSN 1177-889X, Vol. 11, 1841-1848 p.Article in journal (Refereed) Published
Abstract [en]

Objective: The European Heart Failure Self-care Behaviour scale (EHFScBs) is a valid patient-reported questionnaire to measure self-care behavior of heart failure (HF) patients. We assessed the interpretability of the EHFScBs. Methods: We used data of 1,023 HF patients. Interpretability refers to the clinical meaning of the score and its changes over time. We operationalized interpretability by evaluating distributions of EHFScBs scores across relevant HF subgroups by eyeballing, by testing the risk on hospitalizations and mortality of a plausible threshold, and by determining a clinically relevant minimal important change (MIC). The scale score ranged from 0 to 100, with a higher score meaning better self-care. A threshold of amp;gt;= 70 was defined as adequate and amp;lt; 70 as inadequate self-care. Results: The EHFScBs scores were similarly normally distributed among the subgroups with a mean between 57.8 (SD 19.4) and 72.0 (SD 18.0). The 464 HF patients with adequate self-care had significantly less all-cause hospitalizations than the 559 patients with inadequate self-care. Conclusion: The degree of self-care showed to be independent of relevant HF subgroups. A single threshold of 70 accurately discriminated between patients with adequate and inadequate self-care.

Place, publisher, year, edition, pages
DOVE MEDICAL PRESS LTD , 2017. Vol. 11, 1841-1848 p.
Keyword [en]
heart failure; self-care; interpretability; patient-reported outcome; threshold and minimal important change
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-143001DOI: 10.2147/PPA.S144915ISI: 000413867600001OAI: oai:DiVA.org:liu-143001DiVA: diva2:1156523
Note

Funding Agencies|Foundation "Care Within Reach" (in Dutch: Stichting Zorg Binnen Bereik)

Available from: 2017-11-13 Created: 2017-11-13 Last updated: 2017-12-07

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Strömberg, AnnaJaarsma, Tiny
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Division of Nursing ScienceFaculty of Medicine and Health SciencesDepartment of Cardiology in Linköping
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