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"Not getting worse": a qualitative study of patients perceptions of treatment goals in patients with heart failure
Univ Gröningen, Netherlands.
Univ Gröningen, Netherlands.
Univ Groningen, Netherlands.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Australian Catholic Univ, Australia.ORCID iD: 0000-0002-4197-4026
2018 (English)In: Applied Nursing Research, ISSN 0897-1897, E-ISSN 1532-8201, Vol. 39, p. 41-45Article in journal (Refereed) Published
Abstract [en]

Background Knowledge of patient reported outcomes helps to provide personalized care on a patient level, optimize care on a population level, and identify the most appropriate patient reported outcomes for clinical trials. To be able to provide personalized care to patients with HF, it is important to know which treatment goals patients with HF consider the most important. This is particularly useful for interventions aimed at improving symptoms, functional status, or health-related quality of life. Aim: The aim of this study was (1) to explore which treatment goals patients with heart failure (HF) perceive as important for their treatment and (2) to identify which treatment goals take priority over other treatment goals. Methods: The study had a qualitative design and included one focus group interview with 6 patients with HF. Data were analyzed using qualitative content analysis. Results: The overall theme of this study was found to be Not getting worse. This theme was composed of 4 categories that described how the patients perceived the goals of treatment: to decrease symptoms, to improve physical function, to prevent readmission, and to live a normal life. None of the participants mentioned improved survival or being cured of their HF as a treatment goal. Conclusion Not getting worse was perceived as the treatment goal that matters to patients with HF and is in line with currently used endpoints for the evaluation of a treatment in a clinical trial. More research is necessary to develop endpoints that are consistent with the perception of patients, useful for clinical practice, and measurable.

Place, publisher, year, edition, pages
Saunders Elsevier, 2018. Vol. 39, p. 41-45
Keywords [en]
Cardiovascular; Focus group; Patient centered care; Qualitative; Heart failure
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:liu:diva-145774DOI: 10.1016/j.apnr.2017.10.010ISI: 000425838500007PubMedID: 29422175OAI: oai:DiVA.org:liu-145774DiVA, id: diva2:1192455
Note

Funding Agencies|Dutch Ministry of Health, Welfare, and Sport

Available from: 2018-03-22 Created: 2018-03-22 Last updated: 2019-06-27

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