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No exchange, same pain, no gain: Risk–reward of wearable healthcare disclosure of health personally identifiable information for enhanced pain treatment
Linköping University, Department of Science and Technology, Media and Information Technology. Linköping University, Faculty of Science & Engineering.ORCID iD: 0000-0003-1253-9671
2019 (English)In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 25, no 4, p. 1675-1691Article in journal (Refereed) Published
Abstract [en]

Wearable technologies have created fascinating opportunities for patients to treat chronic pain in a discreet, mobile fashion. However, many of these health wearables require patients to disclose sensitive information, including health information (e.g., heart rate, glucose levels) and personal information (location, email, name, etc.). Individuals using wearables for treatment of chronic pain may sacrifice social health elements, including their privacy, in exchange for better physical and mental health. Utilizing communication privacy management, a popular disclosure theory, this article explores the policy and ethical ramifications of patients disclosing sensitive health information in exchange for better health treatment and relief of chronic pain. The article identifies scenarios where a user must disclose information, and what factors motivate or dissuade disclosure, and ultimately the use of a health wearable. Practical implications of this conceptual article include an improved understanding of how and why consumers may disclose personal data to health wearables, and potential impacts for public policy and ethics regarding how wearables and their manufacturers entice disclosure of private health information.

Place, publisher, year, edition, pages
Sage Publications, 2019. Vol. 25, no 4, p. 1675-1691
Keywords [en]
disclosure, ehealth, health policy, health technology, pain management, privacy, wearables
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:liu:diva-151276DOI: 10.1177/1460458218796634ISI: 000488101400037PubMedID: 30204037OAI: oai:DiVA.org:liu-151276DiVA, id: diva2:1248256
Available from: 2018-09-14 Created: 2018-09-14 Last updated: 2019-10-24Bibliographically approved

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Robinson, Stephen Cory

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