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Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences.
Univ Manchester, England.
Univ Manchester, England.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Medicine and Health Sciences.
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2018 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 28, no 11, p. 1719-1734Article in journal (Refereed) Published
Abstract [en]

The aim of this study is to identify relevant content for a self-management guide by using the outcomes of previous research in combination with knowledge and experiences from couples where one partner has a diagnosis of dementia. The study was carried out in three phases: (a) literature search of previous research related to well-being and couplehood in dementia; (b) interviews with couples with dementia based on the findings of the literature search; and (c) further authentication of the findings within expert groups of people with dementia and carers. For analysis of data, we used a hybrid approach of thematic analysis with combined deductive and inductive approaches. The findings of this study indicated that the four main themes Home and Neighborhood, Meaningful Activities and Relationships, Approach and Empowerment, and Couplehood with related subthemes could be appropriate targets for a self-management guide for couples where one partner has a diagnosis of dementia.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS INC , 2018. Vol. 28, no 11, p. 1719-1734
Keywords [en]
couples; collaborative research; dementia; salutogenesis; self-management; Sweden; thematic analysis; UK
National Category
Other Social Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:liu:diva-151196DOI: 10.1177/1049732318786944ISI: 000442412400004PubMedID: 30033851OAI: oai:DiVA.org:liu-151196DiVA, id: diva2:1248612
Available from: 2018-09-17 Created: 2018-09-17 Last updated: 2019-08-23

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Bielsten, ThereseKullberg, AgnetaHellström, Ingrid
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CiteExportLink to record
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Citation style
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Output format
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