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Family members experiences of the end-of-life care environments in acute care settings - a photo-elicitation study
Region Östergötland, Local Health Care Services in East Östergötland, Center of Palliative Care. Sophiahemmet Univ, Sweden.
Karolinska Inst, Sweden; Vasterbottens Cty Council VLL, Sweden; Stockholms Country Council SLL, Sweden.
Karolinska Inst, Sweden; Umea Univ, Sweden.
Karolinska Inst, Sweden; Ersta Hosp, Sweden.
2018 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 13, no 1, article id 1511767Article in journal (Refereed) Published
Abstract [en]

Purpose: This article explores experiences of the acute-care environment as a setting for end-of-life (EoL) care from the perspective of family members of a dying person. Method: We used participant-produced photographs in conjunction with follow-up interviews with nine family members to persons at the EoL, cared for in two acute-care settings. Results: The interpretive description analysis process resulted in three constructed themes-Aesthetic and unaesthetic impressions, Space for privacy and social relationships, and Need for guidance in crucial times. Aspects of importance in the physical setting related to aesthetics, particularly in regard to sensory experience, and to a need for enough privacy to facilitate the maintenance of social relationships. Interactions between the world of family members and that of professionals were described as intrinsically related to guidance about both the material and immaterial environment at crucial times. Conclusion: The care environment, already recognized to have an impact in relation to patients, is concluded to also affect the participating family members in this study in a variety of ways.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS LTD , 2018. Vol. 13, no 1, article id 1511767
Keywords [en]
Acute care; care environment; end-of-life; family members; hospital; photo-elicitation; visual research methods
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-151478DOI: 10.1080/17482631.2018.1511767ISI: 000443885900001PubMedID: 30176152OAI: oai:DiVA.org:liu-151478DiVA, id: diva2:1250697
Note

Funding Agencies|Strategic Research Area in Health Care Science, Karolinska Institutet (SE); Local Health Care Eastern Ostergotland; ALF PickUp [20110118/1101-0043]

Available from: 2018-09-24 Created: 2018-09-24 Last updated: 2019-05-05

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
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  • Other style
More styles
Language
  • de-DE
  • en-GB
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  • nn-NB
  • sv-SE
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More languages
Output format
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