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"To Cope with Everyday Life, I Need to Sleep" - A Phenomenographic Study Exploring Sleep Loss in Parents of Children with Atopic Dermatitis.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Clinical and Experimental Medicine. Region Östergötland, Center of Paediatrics and Gynaecology and Obstetrics, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus.ORCID iD: 0000-0002-0174-8630
Linköping University, Department of Clinical and Experimental Medicine, Division of Children's and Women's health. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center of Paediatrics and Gynaecology and Obstetrics, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus.
Linköping University, Department of Clinical and Experimental Medicine, Division of Children's and Women's health. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences.
2018 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 43, p. E59-E65Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The whole family is affected when a child has atopic dermatitis (AD), and parents experience sleep disruption related to the child's condition leading to physical and mental exhaustion, mood swings, loss of concentration and lower job performance. This study aimed to explore and describe perceptions of sleep in parents of children <2 years old with AD, consequences of parental sleep loss, and what strategies the parents used to manage sleep loss and to improve sleep.

DESIGN AND METHODS: This qualitative interview study had an inductive and descriptive design. Twelve parents (eleven mothers and one father) participated in the study. Data analysis was performed using a phenomenographic approach.

RESULTS: Three categories of description were found: Acceptance and normalization of parental sleep loss; Changed routines and behavior to compensate for sleep loss; and Support is needed to gain sleep and manage daily life.

CONCLUSIONS: Sleep loss due to the child's AD affected the parents' emotional state, mood, well-being, cognitive function, ability to concentrate and take initiative, and sensitivity to stress and sound negatively. The parents managed their sleep loss mainly by changing their behavior and creating new routines, by taking me-time and through support from partners.

PRACTICE IMPLICATIONS: Pediatric nurses should acknowledge sleep loss in parents of small children with AD in time to prevent negative consequences, which affect the well-being of the entire family. Advice on how to improve sleep should be given early to increase the parents' understanding, make them feel safer and strengthen them in their parenthood.

Place, publisher, year, edition, pages
Elsevier, 2018. Vol. 43, p. E59-E65
Keywords [en]
Atopic dermatitis, Family nursing, Family-centered care, Pediatric nursing, Pediatrics
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-152216DOI: 10.1016/j.pedn.2018.07.005ISI: 000450921100011PubMedID: 30037591OAI: oai:DiVA.org:liu-152216DiVA, id: diva2:1257505
Available from: 2018-10-22 Created: 2018-10-22 Last updated: 2019-05-02

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Angelhoff, CharlotteEdéll-Gustafsson, Ulla

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Angelhoff, CharlotteAskenteg, HannaWikner, UlricaEdéll-Gustafsson, Ulla
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Division of Nursing ScienceFaculty of Medicine and Health SciencesDepartment of Clinical and Experimental MedicineH.K.H. Kronprinsessan Victorias barn- och ungdomssjukhusDivision of Children's and Women's healthDivision of Nursing Science
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Journal of Pediatric Nursing: Nursing Care of Children and Families
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