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The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Gastroentorology.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Surgery, Orthopaedics and Cancer Treatment, Department of Oncology.ORCID iD: 0000-0002-9786-7326
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Department of Anaesthesiology and Intensive Care in Norrköping.
Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Gastroentorology. Linköping University, Department of Clinical and Experimental Medicine, Division of Neuro and Inflammation Science.
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2018 (English)In: Scandinavian Journal of Gastroenterology, ISSN 0036-5521, E-ISSN 1502-7708, Vol. 53, no 9, p. 1043-1050Article in journal (Refereed) Published
Abstract [en]

Background and aims: Quality of care is important in lifelong illnesses such as inflammatory bowel disease (IBD). Valid, reliable and short questionnaires to measure quality of care among persons with IBD are needed. The aim of this study was to develop a patient-derived questionnaire measuring quality of care in persons with IBD.Methods and results: The development of the questionnaire The Quality of Care -Questionnaire (QoC-Q) was based on a literature review of studies measuring quality of care, and the results of two qualitative studies aiming to identify the knowledge need and perception of health care among persons with IBD. Further development and evaluation was done by focus groups, individual testing and cognitive interviews with persons with IBD, as well as evaluation by a group of professionals. After the development, the questionnaire was tested for validity and test-retest reliability in 294 persons with IBD.Conclusions: The QoC-Q is showing promising validity and reliability for measuring the subjective perception of quality of care. Further testing in clinical practice is suggested to assess if the QoC-Q can be used to evaluate care and areas of improvement in health care for persons living with IBD.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS LTD , 2018. Vol. 53, no 9, p. 1043-1050
Keywords [en]
Quality of care; inflammatory bowel disease; Crohns disease; ulcerative colitis; perception of health care
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-153423DOI: 10.1080/00365521.2018.1495759ISI: 000450634000003PubMedID: 30299173OAI: oai:DiVA.org:liu-153423DiVA, id: diva2:1270603
Note

Funding Agencies|Ferring Pharmaceuticals; County Council of ostergotland, Linkoping, Sweden

Available from: 2018-12-13 Created: 2018-12-13 Last updated: 2019-05-01

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Hjortswang, HenrikWenemark, Marika

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Pihl Lesnovska, KatarinaBörjeson, SussanneHollman Frisman, GunillaHjortswang, HenrikWenemark, Marika
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Division of Nursing ScienceFaculty of Medicine and Health SciencesDepartment of GastroentorologyDepartment of OncologyDepartment of Anaesthesiology and Intensive Care in NorrköpingDivision of Neuro and Inflammation ScienceDivision of Community MedicineDepartment of Health and Care Development
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Scandinavian Journal of Gastroenterology
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