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Effects of a self-management programme on patient participation in patients with chronic heart failure or chronic obstructive pulmonary disease: A randomized controlled trial
University Health Care Research Centre, Faculty of Medicine and Health, School of Health Sciences, Örebro University, Sweden.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Department of Public Health and Caring Sciences, Uppsala University, Sweden.ORCID iD: 0000-0002-7737-169x
Centre for Clinical Research, County Council of Värmland, Karlstad, Sweden.
Faculty of Medicine and Health, Örebro University, Sweden.
2019 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 18, no 3, p. 185-193Article in journal (Refereed) Published
Abstract [en]

Background:

Self-management strategies are crucial to patients with long-term conditions and can presumably promote patient participation, given that to patients, patient participation connotes opportunities for self-care (along with being engaged in an exchange of knowledge, a phrasing of joint goals and planning of care). So far, limited attention has been given to what components support self-management and what outcomes can be achieved. An exclusive self-management programme in primary healthcare entailed assessing its influence on patient participation.

Aim:

To describe the effects of a self-management programme on preferences for, and experiences of, patient participation in patients with chronic obstructive pulmonary disease or chronic heart failure.

Methods:

A randomized controlled trial with a six session intervention programme, including phrasing of individual action plans and group discussions on the patients’ issues. The intervention group (n=59) received standard care and the self-management programme, and the control group (n=59) received standard care only. Data was collected at baseline and at three months and 12 months after the intervention started, using the Patient Preferences for Patient Participation (the 4Ps) measure.

Results:

No significant differences were found within the groups, or between the groups, in preferences and experiences of patient participation, either in summary score or at an item level.

Conclusion:

A self-management group programme led by trained primary healthcare staff in primary care did not serve as means to influence patients’ experience of patient participation in the care of their long-term condition. Further studies are needed in regard to what facilitates patient participation in this setting and beyond.

Place, publisher, year, edition, pages
Sage Publications, 2019. Vol. 18, no 3, p. 185-193
Keywords [en]
Chronic obstructive pulmonary disease, chronic heart failure, long-term conditions, patient participation, primary healthcare, self-management programme
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-154786DOI: 10.1177/1474515118804126ISI: 000459871100003PubMedID: 30277807Scopus ID: 2-s2.0-85059539432OAI: oai:DiVA.org:liu-154786DiVA, id: diva2:1292024
Note

Funding agencies: Region Orebro County, Sweden; Uppsala-Orebro Regional Research Council [1300671 SEK]; County Council of Varmland [652069 SEK]

Available from: 2019-02-26 Created: 2019-02-26 Last updated: 2019-03-20Bibliographically approved

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Eldh, Ann Catrine

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