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'I want to know why and need to be involved in my own care…': a qualitative interview study with liver, bile duct or pancreatic cancer patients about their experiences with involvement in care.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Surgery, Orthopaedics and Cancer Treatment, Department of Surgery in Linköping. Linköping University, Department of Clinical and Experimental Medicine, Division of Surgery, Orthopedics and Oncology.
Linköping University, Department of Clinical and Experimental Medicine, Division of Surgery, Orthopedics and Oncology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Surgery, Orthopaedics and Cancer Treatment, Department of Surgery in Linköping.
Linköping University, Department of Clinical and Experimental Medicine, Division of Surgery, Orthopedics and Oncology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Surgery, Orthopaedics and Cancer Treatment, Department of Surgery in Linköping.
Linköping University, Department of Clinical and Experimental Medicine, Division of Surgery, Orthopedics and Oncology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Surgery, Orthopaedics and Cancer Treatment, Department of Surgery in Linköping.
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2019 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 27, no 7, p. 2561-2567Article in journal (Refereed) Published
Abstract [en]

Purpose

Patients’ involvement in their own care is important for those with upper abdominal tumours. Care is often conducted according to standardized fast-track care programs (FTCP), and a shorter hospital stay is one of the goals. However, there is no research providing an in-depth perspective on patients’ experiences of involvement in care. In this qualitative study, we explored experiences of involvement among patients who had surgery for upper abdominal tumours and were cared for according to an FTCP.

Methods

Qualitative in-depth face-to-face interviews about patient involvement in care were conducted with 20 patients who had surgery for the liver, bile duct, or pancreatic cancer using an open-interview guide.

Results

The most important findings are that customized information and active dialogue about care decisions stimulate patient involvement. We identified three themes from the analysed data: involvement depended on the quality of information, communication and involvement during the care period, and safety at discharge.

Conclusions

Individualized care and continuous information about treatment and care goals in the FTCP during the care process create trust between patients and healthcare professionals and increase patient experiences of involvement.

Place, publisher, year, edition, pages
Springer, 2019. Vol. 27, no 7, p. 2561-2567
Keywords [en]
Upper abdominal cancer; Involvement Qualitative research; Surgery; Fast-track care programme
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-154882DOI: 10.1007/s00520-018-4548-8ISI: 000469516100025PubMedID: 30430301Scopus ID: 2-s2.0-85056480153OAI: oai:DiVA.org:liu-154882DiVA, id: diva2:1293163
Available from: 2019-03-04 Created: 2019-03-04 Last updated: 2019-07-03Bibliographically approved

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Sandström, Per A.Björnsson, BergthorLindhoff Larsson, Anna

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Ibrahim, FarzanaSandström, Per A.Björnsson, BergthorLindhoff Larsson, AnnaDrott, Jenny
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Division of Nursing ScienceFaculty of Medicine and Health SciencesDepartment of Surgery in LinköpingDivision of Surgery, Orthopedics and Oncology
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Supportive Care in Cancer
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