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Agency and Communion in People with Alzheimers Disease, as Described by Themselves and their Spousal Carers
Ersta Skondal Bracke Univ, Sweden; Ersta Skondal Univ Coll, Sweden.
Ersta Skondal Bracke Univ, Sweden; Ersta Skondal Univ Coll, Sweden; Umea Univ, Sweden.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Ersta Skondal Bracke Univ, Sweden; Ersta Skondal Univ Coll, Sweden.
2019 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, no 4, p. 1354-1372Article in journal (Refereed) Published
Abstract [en]

Agency (individuality) and communion (togetherness) are vital to a positive sense of self. People with Alzheimers disease are at risk of experiencing diminished agency and decreased communion. Their family members, especially their partners, view on their agency and communion is also likely to influence their sense of agency, communion, and self. In the present study, individual interviews with 10 people with Alzheimers disease and their spousal carers were qualitatively analysed to describe how in each couple the two spouses viewed the agency and communion of the person with Alzheimers disease from an individual perspective. The findings show that the carers generally described the agency of the person with Alzheimers disease as slightly weaker compared with the persons with Alzheimers disease themselves. The carers also appeared to have poor knowledge of what supported and threatened the sense of communion of the person with Alzheimers disease.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS LTD , 2019. Vol. 18, no 4, p. 1354-1372
Keywords [en]
agency; Alzheimers disease; communion; self; spousal relationships
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-158345DOI: 10.1177/1471301217706268ISI: 000469352700008PubMedID: 28440706OAI: oai:DiVA.org:liu-158345DiVA, id: diva2:1333849
Note

Funding Agencies|Oscar and Maria Ekman Foundation; Dementia Association - The National Association for the Rights of the Demented; Swedish Order of St John; Erling-Persson Family Foundation; Ersta Diakoni

Available from: 2019-07-02 Created: 2019-07-02 Last updated: 2019-07-02

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CiteExportLink to record
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