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Development and Validation of a Questionnaire to Measure Patients Experiences of Health Care in Pulmonary Arterial Hypertension Outpatient Clinics
Karolinska Inst, Sweden.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Australian Catholic Univ, Australia.ORCID iD: 0000-0002-4197-4026
Lund Univ, Sweden; Skane Univ Hosp, Sweden; Med Serv, Sweden.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Cardiology in Linköping.ORCID iD: 0000-0002-4259-3671
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2019 (English)In: Heart, Lung and Circulation, ISSN 1443-9506, E-ISSN 1444-2892, Vol. 28, no 7, p. 1074-1081Article in journal (Refereed) Published
Abstract [en]

Background Measuring the patients experience of care at an outpatient clinic can provide feedback about the quality of health care and if needed, can be support for quality improvements. To date, there is no patient reported experience measurement (PREM) developed targeting patients at the pulmonary arterial hypertension (PAH) outpatient clinics. Therefore, the aim was to develop and evaluate the psychometric properties of a PREM scale to be used for patients at PAH-outpatient clinics. Methods The development and psychometric evaluation of the PREM for patients at PAH outpatient clinics followed two stages: (I) development of the PAH Clinic PREM (PAHC-PREM) scale based on interviews with patients; and (II) psychometric evaluation of the PAHC-PREM scale including data quality, factor structure (construct validity), criterion validity and internal consistency. Results A sample of 156 patients at PAH outpatient clinics completed the PAHC-PREM scale (median age 69 years, 57% women). Unidimensionality of the PAHC-PREM scale was supported by parallel analysis. A single factor explained 67% of the variance. Inter-item and item-total correlations were satisfactory (0.46-0.88 and 0.64-0.91, respectively). Internal consistency reliability with ordinal coefficient alpha was good (0.93). Conclusions The PAHC-PREM scale was demonstrated to have good psychometric properties and is now ready to be used to measure quality of health care experience from patients at PAH-outpatient clinics.

Place, publisher, year, edition, pages
ELSEVIER SCIENCE INC , 2019. Vol. 28, no 7, p. 1074-1081
Keywords [en]
Pulmonary arterial hypertension; Patient reported experience measurement; Chronic disease; Quality of health care
National Category
Cardiac and Cardiovascular Systems
Identifiers
URN: urn:nbn:se:liu:diva-158539DOI: 10.1016/j.hlc.2018.07.011ISI: 000470117200017PubMedID: 30139595OAI: oai:DiVA.org:liu-158539DiVA, id: diva2:1334922
Note

Funding Agencies|Swedish National Quality Registry organisation; Swedish Pulmonary Artery Hypertension Registry (SPAHR)

Available from: 2019-07-03 Created: 2019-07-03 Last updated: 2019-10-17

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The full text will be freely available from 2020-08-10 07:57
Available from 2020-08-10 07:57

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Jaarsma, TinyStrömberg, Anna
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Division of Nursing ScienceFaculty of Medicine and Health SciencesDivision of Nursing ScienceDepartment of Cardiology in Linköping
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