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Experiences of Parents of Specialist Peer Mentored Autistic University Students
Cooperat Res Ctr Living Autism Autism CRC, Australia; Curtin Univ, Australia.
Cooperat Res Ctr Living Autism Autism CRC, Australia; Curtin Univ, Australia.
Vanderbilt Univ, TN 37232 USA; Vanderbilt Univ, TN USA.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center. Cooperat Res Ctr Living Autism Autism CRC, Australia; Curtin Univ, Australia.
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2021 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 24, no 6, p. 368-378Article in journal (Refereed) Published
Abstract [en]

ABSTRCT Background: Parents continue to support to autistic university students, and consequently, experience considerable stress. Aim: To explore the experiences of parents of specialist peer mentored university students and to examine these using the ICF as a theoretical framework. Method: Thirteen semi-structured interviews were completed and analyzed using thematic analysis. Directive content analysis linked the data to the ICF core set for autism spectrum disorders (ASD). Results: Five interrelated themes emerged: The mentoring relationship is a facilitator, Developing skills for university, Mentoring changes lives, Mentoring is not a substitute for other supports, and University is an emotional rollercoaster. Specialist peer mentoring was linked to Activity and Participation (44%) and Environmental factors (32%) of the ICF core set for ASD. Conclusion: These results add to the specialist peer mentoring evidence-base, and indicate perceived benefits for autistic university students and their parents. An unintended consequence was that parents broadened their participation in activities.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS INC , 2021. Vol. 24, no 6, p. 368-378
Keywords [en]
Autism spectrum disorder; parents; parent– child relationship; mentoring; supports; university
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Other Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-174197DOI: 10.1080/17518423.2021.1886190ISI: 000618313500001PubMedID: 33588672OAI: oai:DiVA.org:liu-174197DiVA, id: diva2:1537495
Note

Funding Agencies|Cooperative Research Centre for Living with AutismAustralian GovernmentDepartment of Industry, Innovation and ScienceCooperative Research Centres (CRC) Programme [3.032RS]

Available from: 2021-03-15 Created: 2021-03-15 Last updated: 2022-03-18

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Falkmer, Torbjörn
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