Experiences of Parents of Specialist Peer Mentored Autistic University StudentsShow others and affiliations
2021 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 24, no 6, p. 368-378Article in journal (Refereed) Published
Abstract [en]
ABSTRCT Background: Parents continue to support to autistic university students, and consequently, experience considerable stress. Aim: To explore the experiences of parents of specialist peer mentored university students and to examine these using the ICF as a theoretical framework. Method: Thirteen semi-structured interviews were completed and analyzed using thematic analysis. Directive content analysis linked the data to the ICF core set for autism spectrum disorders (ASD). Results: Five interrelated themes emerged: The mentoring relationship is a facilitator, Developing skills for university, Mentoring changes lives, Mentoring is not a substitute for other supports, and University is an emotional rollercoaster. Specialist peer mentoring was linked to Activity and Participation (44%) and Environmental factors (32%) of the ICF core set for ASD. Conclusion: These results add to the specialist peer mentoring evidence-base, and indicate perceived benefits for autistic university students and their parents. An unintended consequence was that parents broadened their participation in activities.
Place, publisher, year, edition, pages
TAYLOR & FRANCIS INC , 2021. Vol. 24, no 6, p. 368-378
Keywords [en]
Autism spectrum disorder; parents; parent– child relationship; mentoring; supports; university
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-174197DOI: 10.1080/17518423.2021.1886190ISI: 000618313500001PubMedID: 33588672OAI: oai:DiVA.org:liu-174197DiVA, id: diva2:1537495
Note
Funding Agencies|Cooperative Research Centre for Living with AutismAustralian GovernmentDepartment of Industry, Innovation and ScienceCooperative Research Centres (CRC) Programme [3.032RS]
2021-03-152021-03-152022-03-18