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Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management A statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the Association for Acute CardioVascular Care (ACVC), European Association of Percutaneous Cardiovascular Interventions (EAPCI), European Association of Preventive Cardiology (EAPC), Heart Failure Association (HFA), European Heart Rhythm Association (EHRA), European Association of Cardiovascular Imaging (EACVI), ESC Regulatory Affairs Committee, ESC Advocacy Committee, ESC Digital Health Committee, ESC Education Committee, and the ESC Patient Forum
KU Leuven Univ Leuven, Belgium; Univ Gothenburg, Sweden; Univ Cape Town, South Africa.
Haukeland Hosp, Norway; Univ Bergen, Norway.
Univ Barcelona, Spain; Inst Invest August Pi I Sunyer IDIBAPS, Spain; Ctr Invest Biomed Red Enfermedades Cardiovasc CIBE, Spain.
Odense Univ Hosp, Denmark; Univ Southern Denmark, Denmark.
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2023 (English)In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 44, no 36, p. 3405-3422Article in journal (Refereed) Published
Abstract [en]

Patient-reported outcomes (PROs) provide important insights into patients own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.

Place, publisher, year, edition, pages
OXFORD UNIV PRESS , 2023. Vol. 44, no 36, p. 3405-3422
Keywords [en]
Health status; Measurement; Patient experiences; Patient-reported outcomes; Quality of life
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-197419DOI: 10.1093/eurheartj/ehad514ISI: 001053595600001PubMedID: 37606064OAI: oai:DiVA.org:liu-197419DiVA, id: diva2:1794400
Available from: 2023-09-05 Created: 2023-09-05 Last updated: 2024-04-11

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