Ethical and methodological issues in interviewing persons with dementia
2007 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 14, no 5, 608-619 p.Article in journal (Refereed) Published
People with dementia have previously not been active participants in research, with ethical difficulties often being cited as the reason for this. A wider inclusion of people with dementia in research raises several ethical and methodological challenges. This article adds to the emerging debate by reflecting on the ethical and methodological issues raised during an interview study involving people with dementia and their spouses. The study sought to explore the impact of living with dementia. We argue that there is support for the inclusion of people with dementia in research and that the benefits of participation usually far outweigh the risks, particularly when a ;safe context' has been created. The role of gatekeepers as potentially responsible for excluding people with dementia needs further consideration, with particular reference to the appropriateness of viewing consent as a primarily cognitive, universalistic and exclusionary event as opposed to a more particularistic, inclusive and context relevant process.
Place, publisher, year, edition, pages
Sage Publications, 2007. Vol. 14, no 5, 608-619 p.
dementia, ethical considerations, informed consent
Medical Ethics Nursing
IdentifiersURN: urn:nbn:se:liu:diva-13348DOI: 10.1177/0969733007080206PubMedID: 17901172OAI: oai:DiVA.org:liu-13348DiVA: diva2:20401