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Time Use and Activity Patterns in Women with Long-term Pain
Linköping University, Department of Social and Welfare Studies, Health, Activity, Care. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Rehabilitation Medicine . Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre for Medicine, Pain and Rehabilitation Centre.
Linköping University, Department of Social and Welfare Studies. Linköping University, Faculty of Health Sciences.
2004 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128 (print) 1651-2014 (online), Vol. 11, no 1, 26-35 p.Article in journal (Refereed) Published
Abstract [en]

Earlier studies of people with fibromyalgia have shown that pain, tiredness, and sleep disruption seriously affect their daily performance and their ability to maintain life roles. A time-geographic diary method was used to study activities and time use in the daily lives of women with long-term pain. The results of the diaries were also used to evaluate activity changes over time. Sixteen women wrote diaries over seven days, and after three months for another four days. The diaries were analysed in a computer program. After considering the results of the first diary, the women formulated goals to be met in the following three months. The results showed that working women spent significantly less time on “Care for others”, “Care for oneself”, Rest, and “Procure and prepare food” compared with non-working women. Further, working women used time in a manner similar to that of the Swedish female population. The diary method gave a clear picture of the women's daily lives. Visualized in graphs and tables, it will serve as an educational tool in rehabilitation and can be used as a framework for discussing adjustment and coping strategies.

Place, publisher, year, edition, pages
2004. Vol. 11, no 1, 26-35 p.
Keyword [en]
activities of daily living, fibromyalgia, occupational therapy, qualitative research, rehabilitation, work
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-13643DOI: 10.1080/11038120410019081OAI: diva2:21098
Available from: 2004-05-21 Created: 2004-05-21 Last updated: 2009-08-19
In thesis
1. Women with fibromyalgia: Employment and daily life
Open this publication in new window or tab >>Women with fibromyalgia: Employment and daily life
2004 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Introduction: The major symptoms of fibromyalgia have been shown to severely impact everyday activities. As a consequence, many women have problems remaining in a work role. Not being able to fulfil valued roles influences quality of life. Moreover, consequences in terms of high costs in compensation for reduced work ability are also of importance for society. Today, the number of young women diagnosed with fibromyalgia is increasing.

Objectives: The general aim of this thesis was to increase and deepen knowledge of the life situation of women with fibromyalgia; to examine how to manage a work role when in constant pain, and especially the situation for newly-diagnosed women.

Subjects and Methods: 278 women with longstanding pain were included. The thesis includes five different studies, two of them with a focus on the work situation, two with focus on young, newly-diagnosed women’s life situation, and one investigating time-use and activity patterns in working and non-working women with fibromyalgia. Methods used are a postal questionnaire, instruments commonly used in fibromyalgia, a diary, and interviews.

Results: Despite limitations in physical capacity, 48% of the women are working, full-time or part-time. However, most job loss is associated with the fibromyalgia symptoms, and the women report that the symptoms influence their daily activities during most of their waking time. There is a rapid increase in sickness absence in the newly-diagnosed women, and the young women in particular do not return to the labour market during the first year after receiving their diagnosis. The non-working women have a more demanding family situation, and are also less satisfied with their present situation than working women.

Conclusion: When individual adjustments of the work situation are made and the women participate to a level that matches their ability, they are able to continue in a work role. In evaluating the women’s work capacity, the total life situation of the women should be considered.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2004. 47 p.
Linköping University Medical Dissertations, ISSN 0345-0082 ; 845
work role, newly-diagnosed, time-use, activity pattern, family work
National Category
Clinical Science
urn:nbn:se:liu:diva-5184 (URN)91-7373-818-2 (ISBN)
Public defence
2004-04-21, Victoriasalen, Campus US, Linköpings universitet, Linköping, 09:00 (English)
On the day of the public defence of the doctoral thesis, the status of article III and IV was Submitted.Available from: 2004-05-21 Created: 2004-05-21 Last updated: 2012-01-25Bibliographically approved

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Liedberg, GunillaHesselstrand, MalinHenriksson, Chris
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