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Health-related quality of life in persons with long-term pain after a stroke
Linköping University, Department of Medicine and Care. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in Central Östergötland, Department of Acute Internal Medicine.
2004 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, Vol. 13, no 4, 497-505 p.Article in journal (Refereed) Published
Abstract [en]

Background. No study has, to our knowledge, previously been published on health-related quality of life (HRQoL) in a group suffering from long-term pain after a stroke.

Aim. The aim of the present study was to describe HRQoL in persons with long-term pain after a stroke, and to compare this with different types of pain conditions, age, gender and household status.

Design. This study has a design combining qualitative and quantitative methods.

Methods. Forty three participants suffering from long-term pain after a stroke were included. A qualitative interview was performed and then analysed by means of latent content analysis. In addition, two self-report questionnaires, SF-36 and the Hospital Anxiety and Depression Scale (HAD Scale), were used.

Results. The qualitative data revealed that physical and cognitive functioning, economic security and good relationships, support and having the ability to be together with family and friends were important factors with regard to experienced HRQoL. No significant differences were found in SF-36 and the HAD Scale with regard to the different types of pain. The older age group had decreased physical functioning in SF-36. The men had more decreased vitality than the women.

Conclusion. The results show, that the participants in this study have a lower HRQoL due to their long-term pain than those in previous studies on stroke survivors. It is evident that further research is needed with longitudinal studies and larger populations to gain more knowledge and thereby provide better supportive care.

Relevance to clinical practice. Awareness and understanding of the patients' perceptions and transitions with regard to their life situation and suffering from long-term pain after a stroke is important in order to support a maintained or increased HRQoL. This is also important after the acute stage and rehabilitation, including quality of life of the relatives, especially to older and dependent persons.

Place, publisher, year, edition, pages
2004. Vol. 13, no 4, 497-505 p.
Keyword [en]
chronic pain, health, mood, quality of life, stroke
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-13721DOI: 10.1046/j.1365-2702.2003.00815.xOAI: oai:DiVA.org:liu-13721DiVA: diva2:21204
Available from: 2004-01-18 Created: 2004-01-18 Last updated: 2009-08-21
In thesis
1. Living with Long-Term Pain after a Stroke
Open this publication in new window or tab >>Living with Long-Term Pain after a Stroke
2003 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this thesis was to classify and describe long-term pain two years after a stroke and to describe the experiences of pain, and the consequences it has on the persons’ lives. The studies were conducted from a multidimensional perspective on pain, combining quantitative and qualitative methods. Three types of long-term pain were classified and described among the 43 participants included, aged 33-82 years. These were central post-stroke pain, nociceptive, mainly shoulder pain, and tension-type headache. Pain onset, within one to six months in most of the cases was after discharge from the hospital. Continuous pain or pain almost every day was reported by nearly two-thirds. The pain was mostly described as troublesome, annoying and tiring in all pain groups. The rating of pain intensity revealed individual differences among the participants within the pain groups. In addition to long-term pain, the participants suffered several impairments and nearly half of them were dependent on others, and two-thirds on assistive devices. Several coping strategies were described, most often problem-focused. Their health-related quality of life was decreased, mostly related to their long-term pain and physical impairments. Their experiences of caring revealed the need of improvements in knowledge about longterm pain, attention and understanding among the professionals, and continuity in the contacts.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2003. 78 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 827
Keyword
stroke, central pain, chronic pain, neuropathic pain, nociceptive pain, shoulder, pain, tension-type headache, pain assessment, disability, activities of daily living, coping, health-related quality of life, mood, caring
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-5228 (URN)91-7373-518-3 (ISBN)
Public defence
2003-12-12, Aulan, Örbero universitet, Örebro, 13:00 (English)
Opponent
Supervisors
Note
On the day of the public defence the status of article III was: Accepted for publication and the status of article IV was: In press.Available from: 2004-01-18 Created: 2004-01-18 Last updated: 2012-01-25Bibliographically approved

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Ahlström, GerdEk, Anna-Christina

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