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Digital pens and pain diaries in palliative home healthcare: Professional caregivers’ experiences.
Linköping University, Department of Biomedical Engineering, Medical Informatics. Linköping University, The Institute of Technology.
Linköping University, Department of Biomedical Engineering, Medical Informatics. Linköping University, The Institute of Technology.
School of Health Sciences & Social Work, Växjö University, Sweden.
2007 (English)In: Medical Informatics and the Internet in Medicine, ISSN 1753-8157, Vol. 32, no 4, 287-296 p.Article in journal (Refereed) Published
Abstract [en]

Frequent pain assessment by the use of pain diaries for the follow-up of pain treatment can facilitate the caregivers' work with pain control in home health care. The aim was to explore and describe professional caregivers' experiences of palliative home health-care patients' use of pain diaries and digital pen technology for frequent pain assessment. A system for the follow-up of pain treatment was implemented in routine care and evaluated by means of a qualitative content analysis. Three nurses, two physicians and one secretary were interviewed. Additional analysis data were collected from patients' medical records, and the system log. The caregivers showed a shifting outlook towards the pain-assessment method, an initial cautious outlook due to low expectations of the patients' abilities to use the pain assessment method. Despite this, the caregivers experienced positive outcomes in terms of an increased awareness of pain, and positive patient influences including increased participation in their care, increased security, and improved changes in pain treatment as a response to reported pain assessments. Pain assessment by the use of pain diaries and digital pen technology has positive influences on palliative home-care patients and supports the caregivers' focus on the pain.

Place, publisher, year, edition, pages
2007. Vol. 32, no 4, 287-296 p.
Keyword [en]
Pain assessment; home care services, hospital-based; digital pens; mobile phones; Internet
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-14170DOI: 10.1080/14639230701785381OAI: oai:DiVA.org:liu-14170DiVA: diva2:22778
Available from: 2006-11-30 Created: 2006-11-30
In thesis
1. Towards Effortless Use of Information Technology in Home Healthcare with a Networked Digital Pen
Open this publication in new window or tab >>Towards Effortless Use of Information Technology in Home Healthcare with a Networked Digital Pen
2006 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

When care is moved from the hospital to the home the demands for high quality care still remain. For problems arising from the geographical separation of patients and professional caregivers, information and communication technology may offer important solutions. The overall aim of this thesis was to describe relevant requirements, to design and implement an IT-based system, and finally to evaluate the system’s influence on symptom control and support for both patients/next-of-kin and professional caregivers in advanced home healthcare. Of importance were needs in basic as well as advanced home healthcare, as were usability perspectives of both patients and professional caregivers. Requirement areas such as security, mobility, and responsibility, which should be considered when monitoring patients in the home, were identified. A prototype system for everyday assistance for diabetes patients was designed, and a system for frequent pain assessment for palliative home healthcare patients using a pain diary, digital pen and mobile Internet technology, was developed and evaluated through a qualitative content analysis approach. Twelve palliative cancer patients and six professional caregivers participated. The data collected included an ease-of-use questionnaire, and interviews with patients, spouses and professional caregivers. Patients expressed increased and improved contact with the caregivers, increased participation in their own care, a sense of increased security, and easiness in using the equipment in spite of severe illness and difficulties in comprehending the technology and system intervention. The professional caregivers showed a shifting outlook towards the pain assessment method; an initial cautious outlook due to low expectations of the patients’ abilities to use the pain assessment method and the caregivers’ own reluctance to use the system and change their way-of-working. Despite this, the professional caregivers experienced positive outcomes in terms of an increased awareness of pain, and positive patient influences including increased participation in their care, increased security and improved changes in pain treatment as a response to reported pain assessments. In conclusion, the networked digital pen system provided an effortless method for pain assessment and had positive influences on the care. The results imply that digital pen technology is suitable for the assessment of symptoms by palliative patients since these patients often have a limited capacity to handle technology due to their state of health.

Series
Linköping Studies in Science and Technology. Dissertations, ISSN 0345-7524 ; 1039
Keyword
Home care services, Hospital-based, Requirements, Pain Assessment, Visual Analogue Scale, Palliative care, Digital pens, Mobile phones, Internet
National Category
Biomedical Laboratory Science/Technology
Identifiers
urn:nbn:se:liu:diva-7840 (URN)91-85523-17-8 (ISBN)
Public defence
2006-10-06, Linden, Hälsouniversitetet, Campus US, Linköpings Universitet, Linköping, 09:15 (English)
Opponent
Supervisors
Note
On the day of the public defence date of the doctoral thesis the status of article III and IV was Submitted.Available from: 2006-11-30 Created: 2006-11-30 Last updated: 2009-03-05

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Lind, LeiliKarlsson, Daniel

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