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Sunnaas Rehabilitation Hospital.
Norwegian Assoc Spina Bifida & Hydrocephalus.
Sunnaas Rehabilitation Hospital.
Linköping University, Department of Clinical and Experimental Medicine, Rehabilitation Medicine . Linköping University, Faculty of Health Sciences.
2009 (English)In: JOURNAL OF REHABILITATION MEDICINE, ISSN 1650-1977, Vol. 41, no 7, 506-511 p.Article in journal (Refereed) Published
Abstract [en]

Objective: To describe problematic aspects of faecal incontinence according to the experience of adults with spina bifida. Design: Qualitative interview study. Subjects: Eleven adults with spina bifida and bowel problems. Method: Semi-structured open-ended interviews and qualitative analysis. Results: Problematic aspects were related to participation in terms of time consumption, communication, social isolation, love and sexuality, and accessibility. Also, to a sense of helplessness in terms of panic and worry, to a sense of shame in terms of impurity, social acceptance and self-image, and to bowel function in terms of decisions about colostomy, voluntary constipation, and changing patterns. Conclusion: The results reveal aspects relevant to supporting clinical practice and suggesting issues for questionnaire studies.

Place, publisher, year, edition, pages
2009. Vol. 41, no 7, 506-511 p.
Keyword [en]
bowel function; interview; myelomeningocele; participation; patients perspective; qualitative; rehabilitation
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-20218DOI: 10.2340/16501977-0373OAI: diva2:233806
Available from: 2009-09-02 Created: 2009-08-31 Last updated: 2009-09-02

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Thyberg, Mikael
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Rehabilitation Medicine Faculty of Health Sciences
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