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Aspergern, det är jag: En intervjustudie om att leva med Asperger syndrom
Linköping University, Department of Behavioural Sciences and Learning. Linköping University, Faculty of Arts and Sciences.
2007 (Swedish)Doctoral thesis, monograph (Other academic)Alternative title
Aspie, that’s me! : Personal experiences of living with Asperger syndrome (English)
Abstract [en]

The overall purpose of this interview-study is to increase the knowledge and understanding of persons with Asperger syndrome. For each participant has common and unique aspects been described. The ambition has been to illuminate their perspective of their situation in life and develop the understanding of their quality of life. The participants’ experiences of their diagnosis, and its consequences in their life has been studied. Several aspects of their everyday life have been reported, i.e. schooling, occupational problems, spare time and interests. The results show that the participants may experience their life as hard, as seemingly uncomplicated chores prove to be exhausting. Not fitting with the norms they believe other people in society have, is one aspect of experienced difference.

The diagnostic process has proved to be an important event in the life of the participants. It has been described as a way of taking control over one’s life. Their experienced difference may be acceptable to them, if it is in the form of an Asperger diagnosis. Experiences of chock, denial and ambivalence after receiving their Asperger diagnosis were also reported. However, all participants have accepted their diagnosis.

The participants’ biologically different way of being has given them consequences. Both psychological and social consequences have been illustrated, as well as interpersonal and societal. Disability research theory (Danermark, 2005; Rönnberg & Melinder, 2007) and Bronfenbrenner’s ecological systems theory (1979) have been used to illustrate the outcome of a diagnosis like Asperger syndrome. The study shows the participants’ experiences of their different way of being.

Abstract [sv]

Den här avhandlingen är en intervjustudie, med det övergripande syftet att öka kunskapen om individer med Asperger syndrom. Gemensamma och unika synsätt hos varje deltagare med diagnosen Asperger syndrom har undersökts. Ambitionen har varit att fånga deras perspektiv på sin livssituation och utveckla förståelsen för deras syn på livskvalitet. Avhandlingen har undersökt hur deltagarna uppfattar sitt funktionshinder och hur diagnosen har påverkat deras liv. Deltagarna har beskrivit sina vardagsliv utifrån flera infallsvinklar, där skolgång, försörjningsmöjligheter, sysselsättning och fritid har skildrats. Resultaten visar att flera beskriver sin vardag som arbetsam, exempelvis kan ett till synes enkelt moment upplevas som ansträngande. Att inte passa in i de normer som de uppfattar att andra i samhället har är en aspekt av upplevt annorlundaskap.

Diagnostiseringen har i visat sig vara en betydelsefull händelse i deltagarnas liv. Den har beskrivits som ett sätt att ta kontroll över sin livssituation. Genom att få diagnosen blir avvikelsen legitim. Deltagarna beskriver den som ett acceptabelt sätt att skilja sig från mängden. Det finns även skildringar av chock, förnekande och ambivalens när de har fått diagnosen om sitt funktionshinder. Samtliga av studiens deltagare säger sig dock acceptera sin aspergerdiagnos.

Deras annorlunda sätt att vara biologiskt har visat sig ge konsekvenser i hela deras livsvärld. Både psykologiska och sociala konsekvenser har illustrerats, liksom interpersonella och samhälleliga. Handikappvetenskaplig- och ekologisk systemteori har använts för att visa på vidden av de konsekvenser som Asperger syndrom kan ge. Studien visar på deltagarnas upplevelser av sitt annorlunda sätt att vara.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2007. , 199 + bilagor 1-10 p.
Series
Studies from the Swedish Institute for Disability Research, ISSN 1650-1128 ; 22Linköping Studies in Arts and Science, ISSN 0282-9800 ; 395
Keyword [en]
Asperger syndrome, everyday life, diagnosis, close relationships, selfimage, normality, empowerment
Keyword [sv]
Asperger syndrom, vardagsliv, diagnos, nära relationer, självbild, normalitet, empowerment
National Category
Social Work
Identifiers
URN: urn:nbn:se:liu:diva-9743ISBN: 978-91-85831-43-2 (print)OAI: oai:DiVA.org:liu-9743DiVA: diva2:24134
Public defence
2007-09-14, Key1, Hus Key, Campus Valla, Linköpings universitet, Linköping, 14:00 (English)
Opponent
Supervisors
Available from: 2007-09-06 Created: 2007-09-06 Last updated: 2014-09-12Bibliographically approved

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