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Serious illness in childhood: the different threats of cancer and diabetes from a parent perspective.
Barncancerforskningsenheten Karolinska sjukhuset, Stockholm.
Avd för Psykologi Stockholms Universitet.
Barncancerforskningsenheten Karolinska sjukhuset, Stockholm.
Linköping University, Faculty of Health Sciences. Linköping University, Department of Molecular and Clinical Medicine, Pediatrics. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
2004 (English)In: Journal of Pediatrics, ISSN 0022-3476, Vol. 145, 373-379 p.Article in journal (Refereed) Published
Abstract [en]

Objectives To compare the incidence of disease-related distress symptoms in parents of children with cancer and diabetes. Study design A total of 675 parents of patients with cancer, patients with diabetes, and control subjects were assessed for 11 distress symptom clusters. Patient and control parent mean differences were tested by 2-tailed t tests, illness groups were compared by means of analysis of variance. Distress variations as a function of time since diagnosis were examined by regression analysis. Results The distress levels of patient parents exceeded those of control parents for global distress (P < .0001) and for most symptom subcategories. Distress levels of parents of patients with cancer (CP) significantly exceeded those of parents of patients with diabetes (DP) in anxiety (P < .0001), physical and psychologic distress (P < .0001), depression (P < .005), and loneliness (P < .05). Levels in DP matched those of CP in uncertainty, loss of control/the patient, self-esteem, disease-related fear, and sleep disturbances. Distress levels were lower in CP most distant hi time from diagnosis, whereas DP showed a reversed trend. Conclusions Parental distress patterns in childhood illness depend on illness type and time passed since diagnosis. Symptom profiles verify the need for psyehosocial attention at the initial shock after the cancer diagnosis and indicate long-term consequences for many parents. In pediatric diabetes, the persistence or intensification of distress over time is of specific clinical relevance.

Place, publisher, year, edition, pages
2004. Vol. 145, 373-379 p.
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-22070DOI: 10.1016/j.jpeds.2004.05.043Local ID: 1149OAI: diva2:242383
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2009-10-14

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Samuelsson, Ulf
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Faculty of Health SciencesPediatricsDepartment of Paediatrics in Linköping
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