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How everyday life is affected: An interview study of relatives of men suffering from testicular cancer
Department of Nursing, Trollhättan-Uddevalla University.
Linköping University, The Tema Institute, Department of Communications Studies. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-3033-9879
2002 (English)In: Journal of psychosocial oncology, ISSN 0734-7332, Vol. 20, no 2, 27-44 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to describe, by means of explorative interviews, the experiences of relatives of male family members suffering from testicular cancer. The central questions concerned how the disease and its treatment affected the life of the family, how its daily routines were affected, the form of relationships and closeness during the period of the disease, and how the future was given shape. The results revealed four main themes presented by the relatives during the interviews: the disease and its course, normalization, the long-term consequences of the disease, and the social network. The results showed that relatives of men suffering from cancer live in a vulnerable situation characterized by social isolation.

Place, publisher, year, edition, pages
2002. Vol. 20, no 2, 27-44 p.
Keyword [en]
Close relatives, cancer, men, testicular cancer, family life
National Category
Social Sciences Interdisciplinary
URN: urn:nbn:se:liu:diva-22861DOI: 10.1300/J077v20n02_02Local ID: 2202OAI: diva2:243174
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-09-04Bibliographically approved
In thesis
1. Att drabbas av testikelcancer: En studie av män med behandlad testikelcancer och deras anhöriga
Open this publication in new window or tab >>Att drabbas av testikelcancer: En studie av män med behandlad testikelcancer och deras anhöriga
2000 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
Contracting Testicular Cancer : A Study of Men with Medically Treated Testicular Cancer and Their Close Relatives
Abstract [en]

The aim of the thesis is to describe and analyse men's experience of testicular cancer, the interaction with caregivers during the course of the disease and in the subsequent medical care process and the attitude of close relatives during this period and how they describe their life during the medical care process.

The results reported in article I describe, on the basis of audio-taped dialogues between patients and physicians and interviews between patients and physicians, the impact the medical care program SWENOTECA has on the interaction between patient and physician and on how the patients experience their disease and the follow-up of care and treatment. As a result of the medical care program SWENOTECA, oncological care and treatment is framed in a structured care context which gives the patients a perspective of the future and very much influences their sense of safety and security. Article II describes how, in interviews, men reconstructed their discovery of a testicular tumour, how they express their thoughts about and attitudes towards cancer. The men have a functionally oriented approach to their body, which means that the ability to work and carry out their day-to-day duties is a more important sign that they are not ill than are individual physical changes in an organ. In article III, the audio-taped dialogues between patients and physicians have been analysed in order to determine how routinization in the dialogue affects the patient's ability to talk about sensitive subjects and bring up questions and problems on his own initiative. A consequence of the routinised medical care context is that follow-up consultations between patients and physicians focus on restoring trust in the value of the check-ups and the prospects of the disease being cured. In article IV, interviews with close relatives of men treated for testicular cancer are analysed. In these interviews, the parties discussed how cancer affected family life and daily routines as well as how relationships and closeness developed and what the future held. Testicular cancer is something that very much affects the men's close relatives. They do not regard themselves, or are regarded by others, as people with needs of their own and the sorrow and fear they feel results in social isolation during the period of the disease.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2000. 128 p.
Linköping Studies in Arts and Science, ISSN 0282-9800 ; 217
men, close relatives, testicular cancer, medical care program, oncological follow-up consultations, routinization, sensitivity, everyday life, Testikelcancer, Andrologi, Tumörer, Onkologi, Cancer
National Category
Social Sciences Interdisciplinary
urn:nbn:se:liu:diva-35329 (URN)26313 (Local ID)91-7219-835-4 (ISBN)26313 (Archive number)26313 (OAI)
Public defence
2000-10-06, Sal Elysion, Hus-T, Universitetsområdet Valla, Linköping, 13:15 (Swedish)
Available from: 2009-10-10 Created: 2009-10-10 Last updated: 2014-08-27Bibliographically approved

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Sandén, IngerHydén, Lars-Christer
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Department of Communications StudiesFaculty of Arts and Sciences
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