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Living with an implantable cardioverter defibrillator: Swedish and US patients' experiences of their life situation
Linköping University, Department of Medicine and Care, Nursing Science. Linköping University, Faculty of Health Sciences.
2004 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this study was to describe changes in uncertainty and satisfaction as well as to explore how patients with an ICD experience their life situation over a two year period. The design was explorative and descriptive, combining both quantitative and qualitative approaches. Data were collected from two locations, Sweden and the US. The data collection methods employed were questionnaires, the Uncertainty in Illness Scale- Community version (MUIS-C) and the Quality of Life Index, (Cardiac III, Parts I, II). Interviews were based on a phenomenographic approach. Statistical analysis was chosen to describe the patients' life situation.

During the initial phase the patients went through a process of adaption and learning to trust the ICD as well as becoming aware of the restrictions in their everyday lives. This was followed by a reorientation phase during which they adapted to and accepted their new life situation, after which both the patient and his/her family regained trust. The present findings can facilitate life style modifications and ensure that the goal of care is to take account of the patients' and healthcare professionals' understanding of living with an ICD.

Place, publisher, year, edition, pages
2004. , 41 p.
Series
Linköping Studies in Health Sciences. Thesis, ISSN 1100-6013 ; 66
Series
Omvårdnadsforskning vid Hälsouniversitetet i Linköping, 12
Keyword [en]
CHD, . ICD-implantation, MUIS, life situation, QLI, phenomenography, satisfaction, uncertainty
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-24176Local ID: 3763ISBN: 91-7373-843-3 (print)OAI: oai:DiVA.org:liu-24176DiVA: diva2:244493
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-09-10
List of papers
1. Life situation related to the ICD implantation: self-reported uncertainty and satisfaction in Swedish and US samples
Open this publication in new window or tab >>Life situation related to the ICD implantation: self-reported uncertainty and satisfaction in Swedish and US samples
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2002 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 1, no 4, 243-251 p.Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to describe changes in the life situation related to the ICD implantation of Swedish and US samples with regard to uncertainty and satisfaction. The life situation was measured by reference to the uncertainty caused by the condition and satisfaction with the life situation. Inferential statistics were used to analyse changes within and between the Swedish and US samples. Uncertainty showed a statistically significant difference between the Swedish and US samples before as well as after the ICD implantation. A higher level of uncertainty was indicated for the US sample prior to the ICD implantation and for the Swedish sample following the implantation. In the Swedish sample, satisfaction with life showed a statistically significant difference within the socio-economic domain, indicating a higher degree of satisfaction 3 months after implantation. Satisfaction within the domains of health and functioning, socio-economics and psychological-spiritual showed a statistically significant difference between the Swedish and US samples both before and after ICD implantation, indicating a higher degree of satisfaction in the US sample. The previous study shows that the ICD-patient's life situation is changed after the implantation and that it is necessary to provide the patient with information and education based on their own preconditions. The fact that US sample was investigated at a later stage after ICD implantation than the Swedish sample may have influenced the results of the study.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-26818 (URN)10.1016/S1474-5151(02)00048-8 (DOI)11431 (Local ID)11431 (Archive number)11431 (OAI)
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2017-12-13Bibliographically approved
2. Patients with implantable cardioverter-defibrillators and their conceptions of the life situation: a qualitative analysis
Open this publication in new window or tab >>Patients with implantable cardioverter-defibrillators and their conceptions of the life situation: a qualitative analysis
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2000 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 9, no 1, 37-45 p.Article in journal (Refereed) Published
Abstract [en]

• The implantable cardioverter-defibrillator (ICD) is today widely used for the treatment of sudden cardiac near-death episodes as a result of malignant ventricular dysrhythmia.

• After examining the literature, only four descriptive studies, all carried out in the USA, with a qualitative analysis based on ICD-patients’ own perspectives on their life situation have been found.

•  The aim of this study was to describe how patients living with an ICD-device in south-western Sweden conceive their life situation.

•  As the focus was on patients’ conceptions seen from a holistic perspective, an analysis inspired by phenomenography was employed on a strategic sample of 15 ICD-patients.

• Six categories emerged: a feeling of safety, a feeling of gratitude, a feeling of being, having a network, having a belief in the future, and gaining awareness.

• Although the findings cannot be generalized because of the descriptive research design, they illuminate the beneficial as well as intrusive effects of such a device, and emphasize the need for support groups for patients and families as well as further education for personnel in hospital and primary health care.

Keyword
Coronary heart disease, implantable cardioverter de®brillator, life situation, phenomenography, qualitative analysis
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-51799 (URN)10.1046/j.1365-2702.2000.00335.x (DOI)
Available from: 2009-11-18 Created: 2009-11-18 Last updated: 2017-12-12Bibliographically approved
3. Ways of Experiencing the Life Situation Among United States Patients With an Implantable Cardioverter-Defibrillator: A Qualitative Study
Open this publication in new window or tab >>Ways of Experiencing the Life Situation Among United States Patients With an Implantable Cardioverter-Defibrillator: A Qualitative Study
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2004 (English)In: Progress in Cardiovascular Nursing, ISSN 0889-7204, E-ISSN 1751-7117, Vol. 20, no 1, 4-10 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this paper is to describe how a selected group of United States patients with an implantable cardioverter- defibrillator perceived their life situation. A qualitative design based on the phenomenographic approach was chosen to describe the patients' conceptions of their life situation. Fourteen patients—eight men and six women, aged 21–84—were strategically selected to obtain as broad a variation as possible. The descriptive categories to emerge from the analysis of the interviews were trust, adaptability, and empowerment. The category labeled trust describes how patients trusted in the organization around them. The category labeled adaptability describes how patients adapted to living with an implantable cardioverter-defibrillator device. The category entitled empowerment describes how patients considered that they received support from family and friends as well as from health care professionals. This study suggests the need for a holistic intervention program comprising family, work, and leisure, focusing on patients' future life situation.

Place, publisher, year, edition, pages
Wiley InterScience, 2004
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-51802 (URN)10.1111/j.0889-7204.2005.03797.x (DOI)
Available from: 2009-11-18 Created: 2009-11-18 Last updated: 2017-12-12Bibliographically approved

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