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Breast cancer patients' satisfaction with a spontaneous system of check-up visits to a specialist nurse
Oncology Clinic, Varberg Hospital, Varberg, Sweden and School of Social and Health Sciences, Halmstad University, Halmstad, Sweden.
Department of Surgical Sciences, Division of Surgery, Uppsala University, Uppsala, Sweden.
Linköping University, Department of Medicine and Care, Nursing Science. Linköping University, Faculty of Health Sciences.
2002 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 16, no 3, 209-215 p.Article in journal (Refereed) Published
Abstract [en]

Aim:  To describe breast cancer patients' satisfaction with a spontaneous system of check-up visits to a specialist nurse.

Background:  There is little evidence that routine follow-up visits after breast cancer surgery influence survival or patient satisfaction. Consequently, there is a need to evaluate alternative follow-up programmes.

Sample:  A strategic sample of 19 breast cancer patients, who were not involved in a routine follow-up system but who had the possibility of contacting a specialist nurse when necessary, were interviewed.

Method:  A qualitative descriptive design inspired by the method of phenomenographic analysis was used.

Findings:  Five description categories and 606 statements showing similarities and differences in conceptions were obtained. The patients satisfaction with the knowledgeable and professional skills of the nurses was high. Confirmation and trust were important and necessary in order for the women with breast cancer to feel secure. Patients had a need for information and self-care education . Accessibility and early assessment by professional personnel or an oncology nurse were essential in a system without routine follow-ups.

Discussion:  This study identifies key issues in a specialist nurse-led check-up system. The findings can be used for developing an education programme for women who have undergone breast cancer surgery. Additionally, the findings emphasize the need to introduce more flexible solutions to the follow-up programmes, one alternative being specialist nurse-led check-ups.

Place, publisher, year, edition, pages
2002. Vol. 16, no 3, 209-215 p.
Keyword [en]
breast cancer, follow-up, information, nursing, phenomenography, psychosocial, qualitative analysis, satisfaction, self-care
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-24786DOI: 10.1046/j.1471-6712.2002.00040.xLocal ID: 7048OAI: oai:DiVA.org:liu-24786DiVA: diva2:245109
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2017-12-13Bibliographically approved
In thesis
1. Traditional or individualised follow-up in women after breast cancer surgery
Open this publication in new window or tab >>Traditional or individualised follow-up in women after breast cancer surgery
2004 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim was to compare different follow-up approaches after breast cancer surgery, i.e. traditional follow-up to a physician and individualised approaches, with specific emphasis on satisfaction, well-being and self-care. Both quantitative and qualitative research methods have been employed. This thesis is based on two study cohorts; in studies 1-III, 264 women who had undergone surgery for breast cancer between 1991-2001 at two hospitals in Sweden were consecutively randomised to two parallel groups (study I). From this study cohort 20 women were interviewed about their experience of traditional follow-up to a physician (study II) and 19 women were interviewed about their experience from the nurse-led follow-up on demand (study III). Study I compared and evaluated the two systems; traditional physician follow-up and nurse led follow-up on demand. Studies II and III explored the needs of women after breast cancer surgery. Study IV contains a new study cohort of 96 women who had undergone surgery for breast cancer and who were consecutively selected and divided into two parallel groups between 2001-2003 at two hospitals in Sweden. Study IV compared traditional physician follow-up with a multi-disciplinary educational programme. Instruments such as The Hospitality Anxiety and Depression-scale, the Functional Assessment of Cancer Therapy-General scale and the Sense of Coherence scale as well as semi-structured interviews were used for the data collection. Analysis of the data was mainly performed by inferential statistical mainly non-parametric methods and by a phenomenographic approach. The result showed that women with breast cancer in stages I to II could be followed up by a specialist nurse leading to high patient satisfaction and good medical safety (study I). Women tend to vary in their appreciation of different aspects of the follow-up; some need routine while others require accessibility, continuity, confidence and security were demanded as self-care education and individualised information (studies II, III). A multidisciplinary education programme based on patients' needs led to a similar level of well-being, self-care and coping ability as that resulting from traditional physician follow-up and thus, can be considered as a viable alternative (study IV).

The women value the nurses professional knowledge and skills. Accessibility and early assessment by healthcare professionals or an oncology nurse are essential in a system without routine follow-up. There are good reasons for reviewing and changing the design of the traditional follow-up system in order to ensure the most effective and well-functioning system possible, to better meet the needs of women with breast cancer and to involve them in decision making concerning follow-up.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2004. 62 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 873
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-24054 (URN)3613 (Local ID)91-7373-852-2 (ISBN)3613 (Archive number)3613 (OAI)
Public defence
2004-12-03, Berzeliussalen, Hälsouniversitetet, Linköping, 13:00 (Swedish)
Opponent
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2012-10-25Bibliographically approved

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